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Old 08-15-2008, 09:07 AM   #1
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Join Date: May 2005
Posts: 3
zakatak HB User
New here with some questions...

Hi there,

My 8 year old daughter was just diagnosed yesterday with Benign Rolandic Epilepsy based on a seizure (her first) and an abnormal EEG done at the hospital.

She said she was sitting watching TV when her chin & fingers went numb. She then started to drool and tried to get up to find me (I was in my office working). She said everything went foggy but she found her way to my office.

When I saw her, she looked like she was gargling (head tilted back, making gaspy, gargling noises, jerking her head back and forth). I thought she was choking on something as I had never seen a seizure before. This lasted about 3 minutes - when she came to on my lap (as I was calling 911), she didn't know where she was or what happened. She was taken by ambulance (with me) to the Children's Hospital where she was diagnosed by the Neurologist on staff.

Questions now:

1) How can I get this memory to go away. I makes me sick to my stomach every time I think of her standing there.

2) She is very, very clingy - doesn't want to leave my side at all "incase I have another seizure". We are trying to comfort her but are scared ourselves.

3) During the EEG (and strobe lights) she had incontinence while sleeping. Yep, she slept through the EEG. Is this normal? She never wets the bed.

4) We were given a script for Tegretol but not sure to start it or not. We'd like to see if she has any more first because of the side-effects but if it would help with her anxiety, we might start. Any experiences with Tegretol?

I would love any advice on how you relax again...

Thanks,

Karen

 
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Old 08-15-2008, 09:22 AM   #2
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Join Date: Aug 2008
Location: illinois
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pikedb HB User
Re: New here with some questions...

Hi Karen
my six year old has been taking zarontin since she was 3 for absence seizures. she progressed rapidly from when i first noticed absence seizure (oct.) to partial clonic (i thnk that's the term) in dec. she would be walking across the room...stop...stare and lose her bladder. as she was only three at first i thought she was regressing then I put two and two together. so the bladder loss is normal. i know nothing about the medicine your daughter has to take unfortunately but i can tell you that as helpless as you feel, i have been there and I feel for you. on a good note, my sister had epilepsy as a child and grew out of it. hopefully someone else will be able to advise you on the medication adn please know that my thoughts are with you and your daughter! pikedb

 
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