Re: 20+ Yrs Seizure Free?
I have been on Dilantin for approximately 40 years. While it has helped to one degree or another, it has not resulted in being siezure free. Additional meds were necessary when Dilantin failed to maintain adequate control. Only slight improvement resulted from addons.
One of the last addons to Dilantin was Depakote(Valproic Acid) for approximately 9 years (horrible stuff). Like with past addons only limited success.
I demanded to be taken off of Depakote. The doctor put me on a regimine of Keppra, originally 500mg/day then 1000mg/day and most recently 2000mg/day.
Stress triggers most of my siezures (Complex Partial Seizures, Left Temporal Lobe focus). I have no complaints about the Keppra. Since being on Keppra with Dilantin, I have been in situations of intense stress without resulting in a seizure. Prior to the use of Keppra, I KNOW I would have experienced siezures. Stress no longer seems to have the same impact on triggering siezures as in the past.
A word of caution. Keppra can result in mood swings. In my case I seem to be more relaxed, but I have heard from others it can result in being impatient and somewhat cranky. Talk with the doctor about these symptoms.
Being that you father has been on Dilantin for many decades, it is important to note that such longterm use can result in bone loss. He should have been taking Calcium supplements. I was not made aware of this necessity till last year and have suffered bone loss myself.
I hope all goes well for you and your dad.