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Old 08-27-2008, 07:26 AM   #1
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Join Date: Feb 2007
Location: logansport ,indiana usa
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vickie45 HB Uservickie45 HB User
im getting so frustrated when drs tell me to see a psychiatrist for my seizures .

hi all ,im so frustrated because i go to a neuro dr and if they dont find nothing they tell me i need to see a psychiatrist i do not need that what i need is to be on the right merdication and dose ,last wednesday i went to the hospital because my sister had breast cancer surgery and yes i was very stressed i thought we was going to lose her well when she came out of recovery i was in a wheelchair just to be safe and while i was there i had a very bad seizure and i know it was a seizure i couldnt talk ,move nothing and the people around me were helping me but there faces were blurry i can never focus the faces and my mom said i held her hand and she felt me stiffen out and said my whole body shook my eyes rolled back in my head and started flickering even the hospital staff said the same thing ok then after about 30 mins i was ok but so tired and worn out so we leave and i goto my moms for awhole and i was ok for a little bit then i started getting confused and dizzy and told my niece to hurry and help me sit down and boom i had another one my body was shaking so bad my mom thinks i have EP since it does run in my family and also i take 1 mgs xanax 3 times a day as needed and darvocets as needed for my headpain well not the neuro dr but the internal med dr wants me to get off them but i believe i need them cause they are the only thing that calms me down .plus a internal dr dont know anything about seizures or EP i looked on internet and found this thing that said some people with seizures or EP also have bad anxiety /panic attacks i do i panic right before a seizure .well i found a specialist im going too and i pray he helps i been to like 4 different neuro drs one said yes its seizures but he wont change my depakote er and it makes me sleep too much but all the rest say what i just posted say its panic attacks and if im standing i will drop without warning sometimes i get this very strange feeling and not know whats going on then im on the floor sometimes i rememember what happen and sometimes not well i dont think its panic i think its both cause i start getting this very scared feeling and i also screem and my lips are like they are glued shut first i moan then i start screeming and making weird sounds .
so what do any of you think ??
my one neuro dr went by my symtons and i took depakote er for 6 mos and never had 1 seizure then they came back and there are days where i can walk in the stores or drs and never fall and then i have days where i fall when i go out for one my husband has me stressed because he makes me ride in a wheelchair like im handicapped which im not he wont let me drive but i do when hes at work .
thanks any advice would surely help
vickie

 
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