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Old 08-28-2008, 11:34 AM   #1
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what is temple lobe epilepsy ?

what is temple lobe epilepsy ?

 
Old 08-28-2008, 02:59 PM   #2
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Re: what is temple lobe epilepsy ?

We're restricted on posting links here, but you can do a search on TLE, or temporal lobe epilepsy. The seizures originate from the temporal lobe of the brain. It's a recurrent condition.
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Old 09-26-2008, 10:41 AM   #3
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Re: what is temple lobe epilepsy ?

Through my research, I have been informed that temporal lobe epilepsy is not hereditary. Rather, it is precipitated by trauma to the brain. The trauma can be from an impact or high fever.

After recent testings it was verified that my focus, in the left temporal lobe, was caused by the impact of a steel bar above my left ear. This happened at the age of about 7 years.

Most persons speech and memory centers are located in the left temporal lobe. There are exceptions.

Due to my injury, at such an early age, my right temporal lobe began to take on a role of memory function. Via a WADA test, it was confirmed that I have equal memory capcity in both the right and left temporal lobes.

Hope this is informative.

Jim

 
Old 09-26-2008, 11:20 AM   #4
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Re: what is temple lobe epilepsy ?

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Originally Posted by vanjay View Post
what is temple lobe epilepsy ?
Epilepsy that is characterized by abnormal electrical activity in the temporal lobe of the brain. This activity does not cause grand mal seizures; rather, it causes unusual behaviors and patterns of cognition. Temporal lobe epilepsy may, for example, cause sudden outbursts of unexpected aggression or agitation, or it may be characterized by aura-like phenomena. The seizures of temporal-lobe epilepsy often start in childhood. Temporal-lobe epilepsy is usually classified as simple or complex partial seizures. You can do more research on your own since there is too much information on this topic, but depending on the type of seizures and its location of the lobe, there are possible cures. I underwent Right Anterior Temporal Lobectomy last year, and it was a sucess. Temporal Lobe surgeries are the most common nowdays. Hope this help..
Laura

Last edited by 030free; 09-26-2008 at 11:21 AM.

 
Old 09-26-2008, 11:27 AM   #5
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Re: what is temple lobe epilepsy ?

Hi 030free:

I have wrapped up my pre-surgery tests and am awaiting word from my Neurologist. I am sitting on pins and needles!

Jim

 
Old 09-26-2008, 06:24 PM   #6
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Re: what is temple lobe epilepsy ?

Hi Jim, I know is nerve wrecking but its a blessing to be a candidate for these surgeries. Which temporal lobe R or L? so they think your a candidate? I had partial complex seizures every month, for 20 yrs, and on meds for 10 yrs now. I underwent all my pre-surgical evaluations except for the wada test, since it was on the right lobe, and the neuro-eval showed all my motor skills on the left lobe I was lucky. Yes, I was nerves as H.. for months before my surgery, but it was worth it, and to be honest I hope you are a candidate and you can undergo this surgery because they are very sucessful and I been free for 19 months now, waitting to tamper off these meds to hopefully start a family. What type of seizures you have?
Laura

Last edited by 030free; 09-26-2008 at 06:25 PM.

 
Old 09-27-2008, 08:27 AM   #7
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Re: what is temple lobe epilepsy ?

Hi Laura:

I very much appreciate your input!

My seizure focus is in my Left Temporal Lobe. I too have, monthly, partial complex seizures. I have been experiencing these seizures for 50 years and have been on meds for 40 years.

The WADA test confirmed my speech center is located in my left temporal lobe. The test also revealed I have equal, if not better, memory capacity in my right Temporal Lobe. Usually the speech and memory functions are in the Left Temporal Lobe. However, there are exceptions.

I am glad to hear you are doing so well after surgery. I hope I realize the same benefits. I am tired of being on meds and want to feel whole again.

I hope I am not foresaking the beauty and gift that is life, given me by my creator. Despite beign burdened with epilepsy, I am still grateful just for being alive and able to appreciate Life in all of its forms.

I hope to keep you and others informed as events unfold.

Take Care!

Jim

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Originally Posted by 030free View Post
Hi Jim, I know is nerve wrecking but its a blessing to be a candidate for these surgeries. Which temporal lobe R or L? so they think your a candidate? I had partial complex seizures every month, for 20 yrs, and on meds for 10 yrs now. I underwent all my pre-surgical evaluations except for the wada test, since it was on the right lobe, and the neuro-eval showed all my motor skills on the left lobe I was lucky. Yes, I was nerves as H.. for months before my surgery, but it was worth it, and to be honest I hope you are a candidate and you can undergo this surgery because they are very sucessful and I been free for 19 months now, waitting to tamper off these meds to hopefully start a family. What type of seizures you have?
Laura

 
Old 09-27-2008, 10:48 AM   #8
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Re: what is temple lobe epilepsy ?

well Jim I think this sounds pretty good, its just too bad you had to wait 50 yrs to undergo this surgery of even think about. Im still on my meds Keppra 3000mg/day and Trileptal 1200mg/day, and this was one of the my major reasons for undergoing surgery to get off these meds and start a family. I though it would be 1 yr seizure free prior to tamperring off the meds but my neuro told me 2 yrs so now I have to wait until April 09. You know where which part of your temporal lobe? I hope they give you word soon on when they can operate, the sooner the better. I was out of work for 8 months (personal choice) and when I decided to go back to teaching, I felt great the surgery had actually helped me. My post surgery-phych eval. showed improvement on both short and long term memory, movements, motor skills and more. I feel much happier and healthier, its so good to not worry about those spells coming around the menstrual cycle..lol I know it will be the same for you if your neuro and neuro-surgeon think so. Ill give you all the specific on the pre and post surgery personal details if you'll like later, but for now stay positive and keep us updated
Laura

 
Old 10-04-2008, 12:01 PM   #9
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Re: what is temple lobe epilepsy ?

Hi Laura and others:

Currently, my head is kind of in a fog! Apparently, I did TOO well on my Neuro-Psychological test (akin to genius maybe, LOL)! Concerns have surfaced about the potential for erasure of some of these “excellent” qualities, resulting from left temporal lobe surgery for partial complex seizures. I understand the relevance of these concerns. I certainly do not want to “jump from the fire pan and into the fire”.

While all other tests seem indicative of my being a good candidate for surgery, I am not certain if I am at the end of a chapter here or the end of the novel.

Have you or others encountered this same scenario? I am wondering if this is typical procedure for testing ones willingness to make daunting decisions. The light at the end of the tunnel now seems ever more distant.

Feedback from you and others is greatly appreciated.

Jim

 
Old 10-04-2008, 01:21 PM   #10
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Re: what is temple lobe epilepsy ?

Hi Jim,

Sorry to hear of this decision, I knew left temporal surgeries all together can be risky and have minor memory problems, but the chances are minimal. I know of other candidates who were told the same prognosis but luckily had excellent outcomes. I guess this depends on the actual surgery your having and the area the surgeon is cutting out. How much damage did they say it can? how how much memory can be damaged, if any? You sould take your time to discuss this again with the surgeon, and see what is the percentage of this prognosis. Best of luck to you...
Laura

 
Old 10-04-2008, 02:06 PM   #11
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Re: what is temple lobe epilepsy ?

Quote:
Originally Posted by 030free View Post
Hi Jim,

Sorry to hear of this decision, I knew left temporal surgeries all together can be risky and have minor memory problems, but the chances are minimal. I know of other candidates who were told the same prognosis but luckily had excellent outcomes. I guess this depends on the actual surgery your having and the area the surgeon is cutting out. How much damage did they say it can? how how much memory can be damaged, if any? You sould take your time to discuss this again with the surgeon, and see what is the percentage of this prognosis. Best of luck to you...
Laura

 
Old 10-04-2008, 02:23 PM   #12
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Re: what is temple lobe epilepsy ?



Hi Laura:

I appreciate your response.

The questions you ask are the very same questions I have of the doctor. As yet, there have been no specifics. I have researched, extensively, ways to help ascertain locations where vital activity is taking place, hence my inquirey of the doctor about Functioal MRI testing. Do you know of others who have taken such test and the results.

I do not even know how extensive the trauma is. But my research and the doctors admission, surgery to remove lessions causing my type of seizures is highly successful(80%-90%). The question is, at what cost.

He has suggested we meet to discuss options, if any, to my avail. I hope to meet with him in November upon my return from Augusta, GA.

I need a break from all the deluge of information, questions and considerations. It will be a pleasant break to see my daughter & son-in-law and especially my four grand children. I plan to spoil them rotten and turn them back on my daughter, PAY-BACK TIME! (;o).

Thanks again and please keep in touch!

Jim

 
Old 10-04-2008, 10:09 PM   #13
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Re: what is temple lobe epilepsy ?

Jim,

I really hope you have a great time in GA (you need it) relax... Actually I know of someone that underwent the left temporal lobectomy in 1994. I cant post her sites here or ill get thrown out, but I'll give you her name and the book she wrote (Lisa Marie Kinsman) "Free at Last"... I hope this doesnt get me in trouble, but as long as it helps it's ok. I think the functional MRI your talking about is the WADA, have you had this test done yet? this will be more precise on the location of your memory and speech, and everyone undergoes this test prior to brain surgery (any). If you said the chances for success were 80-90% this is great, mine was around the same, and my memory actually got better. Go on your vacation, do your research, and let me know how everything goes. If you dont hear from me again, then you know why... Best Of luck to you
Laura

 
Old 10-07-2008, 06:24 AM   #14
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Re: what is temple lobe epilepsy ?

Hi Laura:

I have had the MRI test done for memory and language. The functional MRI is a test that shows blood flow to different regions of the brain while performing certain tasks e.i. talking, movement performing abstract thinking like performing mathematical functions and visual performance. Through this test they can actually create a visual 3D model of your brain and the areas of prime functioning and their locations relative to the lession area under consideration for removal. An excellent site for review of this and other Neurological information is a the Nerosurgery.mgh.harvard.edu/Functioal /ep-sxtre.htm. It has answered many of my questions and helps me in assessing what I should be asking my doctor. Unfortunately it does not have feed back from actual patients such at this wonderful site.

Thanks for the info. I will follow up and keep you and others informed.

Thanks again.

Jim

 
Old 10-07-2008, 03:50 PM   #15
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Re: what is temple lobe epilepsy ?

This is excellent, I hope the test turns out on your favor. How long you think it'll take before they give you the results? Im glad you found this site, and as long as you feel comfortable, and happy with your decision, that's all that matters. I know this will be the best decision and step you'll ever take. Lisa marie has her own chatrooms, so check it out...
laura

 
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