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Old 09-02-2008, 10:50 AM   #1
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A Type of Seizure??

Hi - haven't posted in quite some time, but I have a question... Short history.. I had a GrandMal Seizure - first and only time in April 2007. But, yesterday, while driving, I noticed something similar to 'double vision.' I just didn't feel right, and couldn't seem to focus my eyes - I was seeing 1 1/2 signs - almost like seeing two signs trying to align... does that make sense? I pulled over and had my husband drive the rest of the way home, which was only 3 miles or so. Today I feel extremely tired and listless... my question is this - I'm not familiar with seizures other than the GrandMal - could this have been a type of seizure? THANKS for any help!

 
Old 09-02-2008, 01:22 PM   #2
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Re: A Type of Seizure??

Need more info! Are you on medication? I imagine if you had a grand mal you were put on an anti-seizure med, correct? If so, it could be a side effect of the medication. I've had lots of episodes of blurred vision (in addition to walking into walls and other feats of clumsiness) due to meds., so it could be that...

Are you currently seeing a neurologist on a regular basis?
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Old 09-02-2008, 06:27 PM   #3
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Re: A Type of Seizure??

No, not on meds - I'm not impressed with the Neuro that I saw - he actually left the decision up to me, as to whether I went on meds or not! So, I opted to see if I had another one, so I wouldn't have to put up with side effects. I have not seen a Neuro since April 2007 - and I also wonder if I should have a check-up, just b/c I did have the Grandmal - and no real reason was discovered. Do you think your blurred vision is due to side effects of meds, or 'small seizures?' Thanks for your response!

 
Old 09-03-2008, 09:39 AM   #4
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Re: A Type of Seizure??

Well, all of my meds state that "blurred vision" is a common side effect and I just had my annual eye exam, so I attribute the blurriness to the drugs.

I've had lots of simple and complex partial seizures and have never really experienced any vision problems...but everyone is different. You don't want to take any chances! After your Grand Mal in April '07, your neuro didn't send you for an EEG or MRI? Didn't he/she want to find out just why you had that sudden, violent seizure?

I know that something like 1 out of 10 adults will have a seizure in their lifetime but I would assume an ER doctor would want to check out just why you had it in the first place? When I had my grand mal out of nowhere in '05, the ER doc ordered full bloodwork, a head CT, EKG, chest xray...the works. Then I met w/a neurologist and had a MRI and EEG.

I thought this was standard protocol. Have you been feeling ok otherwise? No weird episodes other than the vision thing the other day?

I'm not trying to scare you or anything, REALLY! But pay attention to what's going on with what your body is telling you and seek out a different neurologist if necessary.

Small seizures, or partial seizures can include many different symptoms...ones that I didn't recognize I was experiencing up to three years before my grand mal seizure, which included my left arm jerking suddenly for no reason after feeling like someone punched me in the stomach, the feeling would rise up to my throat and turn to nausea...I would then be confused, have a headache and fatigued...sometimes I'd be in the recording studio at work doing one thing and suddenly find myself in the storage room just standing there, staring at nothing (complex partial seizure.)

Then there's the feelings of sudden fear, or smelling or tasting something foul, deja vu...there are LOTS of signals out there that we can attribute to just being overstressed or overtired. But, as I learned, we should NOT ignore them!

Keep posting and let us know what's up, ok?
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Old 09-03-2008, 11:08 AM   #5
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Re: A Type of Seizure??

Your experience sounds alot like a non-epileptic experience. There's alot of things that can leave one feelling peculiar;low blood sugar, hang-overs, mild concusions, sleeplessness,or just plain exaustion. What I did in a similiar situation was keep a detailed diary of my sleep + food +meds, and I found some very definite patterns in my proneness to seizures. After having a GP tell me some information that was simply false and wrong, I started to look into neurology for myself. Wow! Have you ever looked at the Milky Way with a pair of good binoculurs on a dark clear night? That's what looking at the brain and it's workings is like. It's beuatiful, vast, eloquent and amazing. It also is a pleasure to talk across to ones neurologist, and know if you should value them, or in some cases dump them. You could call me abit of a neuro-nerd, but I encourage any-one with epilepsy to indulge in the beuaty of it all. Get a copy of your MRI and look at what's looking at you. There's a spooky sort of awe and amazement to it all that words just don't quite catch. Anyhow, I'm getting abit carried away as usuall when I get onto this tangent. Get to know your epilepsy, both what is known about it and be intrigued by the mysteries as well. When you get caught up in the beuaty and complexity of it all, it's so much more easy to deal with, and so are the "proffesionals" who have read about epilepsy, but never lived it. Finally, if there is some young person out there who does get cuaght up in the beuaty of it all, DON'T let dullards tell you "you can't be a doctor!" YOU CAN!! and when I retire I hope my doctor will be someone who has LIVED epilepsy, not merely read about it in a text book.
Take care and best of health to you!

PSF

 
Old 09-03-2008, 11:13 AM   #6
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Re: A Type of Seizure??

Your experience sounds alot like a non-epileptic experience. There's alot of things that can leave one feeling peculiar;low blood sugar, hang-overs, mild concussion, sleeplessness,or just plain exhaustion. What I did in a similar situation was keep a detailed diary of my sleep + food +meds, and I found some very definite patterns in my proneness to seizures. After having a GP tell me some information that was simply false and wrong, I started to look into neurology for myself. Wow! Have you ever looked at the Milky Way with a pair of good binoculars on a dark clear night? That's what looking at the brain and it's workings is like. It's beautiful, vast, eloquent and amazing. It also is a pleasure to talk across to ones neurologist, and know if you should value them, or in some cases dump them. You could call me abit of a neuro-nerd, but I encourage any-one with epilepsy to indulge in the beauty of it all. Get a copy of your MRI and look at what's looking at you. There's a spooky sort of awe and amazement to it all that words just don't quite catch. Anyhow, I'm getting abit carried away as usual when I get onto this tangent. Get to know your epilepsy, both what is known about it and be intrigued by the mysteries as well. When you get caught up in the beuaty and complexity of it all, it's so much more easy to deal with, and so are the "professionals" who have read about epilepsy, but never lived it. Finally, if there is some young person out there who does get cuaght up in the beuaty of it all, DON'T let dullards tell you "you can't be a doctor!" YOU CAN!! and when I retire I hope my doctor will be someone who has LIVED epilepsy, not merely read about it in a text book.
Take care and best of health to you!

PSF

 
Old 09-03-2008, 11:45 AM   #7
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Re: A Type of Seizure??

Quote:
Originally Posted by cindlcoym View Post
Your experience sounds alot like a non-epileptic experience. There's alot of things that can leave one feeling peculiar;low blood sugar, hang-overs, mild concussion, sleeplessness,or just plain exhaustion. What I did in a similar situation was keep a detailed diary of my sleep + food +meds, and I found some very definite patterns in my proneness to seizures. After having a GP tell me some information that was simply false and wrong, I started to look into neurology for myself. Wow! Have you ever looked at the Milky Way with a pair of good binoculars on a dark clear night? That's what looking at the brain and it's workings is like. It's beautiful, vast, eloquent and amazing. It also is a pleasure to talk across to ones neurologist, and know if you should value them, or in some cases dump them. You could call me abit of a neuro-nerd, but I encourage any-one with epilepsy to indulge in the beauty of it all. Get a copy of your MRI and look at what's looking at you. There's a spooky sort of awe and amazement to it all that words just don't quite catch. Anyhow, I'm getting abit carried away as usual when I get onto this tangent. Get to know your epilepsy, both what is known about it and be intrigued by the mysteries as well. When you get caught up in the beuaty and complexity of it all, it's so much more easy to deal with, and so are the "professionals" who have read about epilepsy, but never lived it. Finally, if there is some young person out there who does get cuaght up in the beuaty of it all, DON'T let dullards tell you "you can't be a doctor!" YOU CAN!! and when I retire I hope my doctor will be someone who has LIVED epilepsy, not merely read about it in a text book.
Take care and best of health to you!

PSF

Keeping a journal is a most excellent idea. As I mentioned, it's true that lots of peeps have seizures w/no known etiology. And they never have another seizure ever again. BUT...sometimes they DO have more seizures and really aren't aware of what's going on, so a journal of what you're feeling at all times is important.

Although I love the place you're in with your positive attitude, cindicoym, sorry, turns out I have epilepsy and it's not a beautiful thing once you start taking two, three medications at a time and deal with the side effects. (At least, I have yet to find the joy in losing my job and driving privledges since my diagnosis, but I'll get there, I guess.) I've seen my MRI and didn't know what the heck I was looking at...the nasal cavities kind of grossed me out. But I digress.

I DO love a positive attitude, though! And the Milky Way. I just think that we shouldn't diagnose ourselves by reading what is out there on the internet. Neurologists and especially Epileptologists devoted many hours to studying the human brain, so I think when there is a question as to whether or not you are having a seizure...you should seek out a professional. Not the internet.

Just my opinion.
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