A female family member has been diagnosed with petit mal epilepsy. Her seizures started a few years ago. She experiences an aura, then a few minutes later blacks out and is occassionally incontinent. 90% of them have happened at work, in front of the computer.
They happen very rarely, usually around the time of her peiod (she is menopausal so has irregular periods). Doctors have put her on HRT but this did nothing.
She has not driven in a long while and is desperate to get back on the roads. She knows exactly when these episodes are going to happen and therefore has time to pull over the car so is frustatrated that she cannot drive.
Is there anyone else who experiences something similar???? She is desperate for an answer!
Hi, actually I had the same petit mals for years, exept mine would happen 90% of the time while I was in rem sleep or the morning hours. I also had auras everytime I had a spell, and I also drove but thankfully never had a spell while driving. My seizures would happen 2 weeks prior to my periods, and since I was irregular, it was my way of knowing when my period was coming...lol Im speaking in past tense because I bad brain surgery April/2008 and been free since, Im still on my meds, but hope to tamper off next year hopefully. In regard to the HRT, my neuro and GYN felt I was better off with the surgery because I was irregular and wouldnt work the same. This depends on the person so ask her neurologist and her Gyn it might work for her.. hope this helps, Best of luck
I'm not sure how this forum thing works so hopefully someone gets this... I would like some feedback or find someone that has this same issue. I am having "episodes" that seem much like a petit mal seizure. I have had this episodes since 2004 when I started college. They became somewhat debilitating in 2007/08. My episodes consist of 5-30 seconds of confusion, no speaking, glassy eyes, loss of balance and coordination. I am aware that they are coming and aware that it is happening but can not avoid or stop it. I can hear someone speaking to me but I won't respond. I also have extremely vivid dreams and sometimes think I see things happening infront of me like a hillucination. I have been in two very minor car accidents because of these episodes. My boyfriend is aware when it is happening and does his best to take the attention off of me or if I happen to be doing something he might hug me because of my occasional loss of balance. In the past year I have been to two physicians, neurologist, pyscho-therapist, and psychiatrist... blood work, 2 eeg's and an mri which all came back normal. I am healthy, active and in great shape. The doctors have come up with stress, anxiety and OCD. I have tried paxil and while it reduced to occurances of my episodes it took a toll on my sex life. I am about to start luvox because my episodes increased once again...I am scheduled to see a seizure specialist. With normal test results doctors have said it could still be petit mal. So should I be taking a anti-convulsant??? I have no idea what to do or what to think about it. I am just trying to deal and function. Any suggestions?
Stress for many epileptics is what brings on a seizure, it can be the reason for your non compliant episodes. Not all seizures can be pin- pointed but they certainly aren't ruled out. When i was young i had episodes of a seizure that wasn't full blown that left me looking like a zombie for moments to hours. I came to feeling totally confused and disorientated. For me it was the start of a seizure that for some reason stopped at a certain level. I didn't bite my tongue, but i was extremely tired and i felt sick to my stomach. There were times when i threw up. So it can be stress. It's best to find mind relaxing activities such as listening to the sounds of the ocean, nature and the like.