mmoody2008

It is so nice to hear someone else with the same concerns!! My doctor thought I was crazy and kept showing me the CT scan results saying everything was back to normal. It has been a really fustrating experience. All my doctor wanted to do was put me on ADD medications! I kept telling him that I just wanted to know that lingering problems could exist. I have never gotten that from him. anyway, it has been almost two years since my diagnosis. I went back to work 3 months after my return from the hospital and was fired less than 3 months later due mainly to company changes but also due to the fact I really struggled to learn my new position. I was having to stay late to keep up. Not enough to really show prior to my termination but after looking back. I could really see a difference in how I worked from before the birth of my son. It was so wierd. I knew the information, I learned the processes - but I just could not always "connect the dots" or due the tasks as fast. I also noticed that 1 month after the loss of my job, I could not recall any of my co-workers names (big red flag - except to my doctor). After about a month, I was able to recall the names and still can to this today. However, my mind was not working correctly during that job to where I could retain that information. I had 5 months of unemployment and stayed home with my son. This was great because it gave me a chance to bond with him. In reality I had not fully been present during the first few months of my son's life. During that time, I was not fatiqued but struggled to initate activities. Still not to an extent that anyone else truely noticed. When I returned to the workforce, I struggled but not as much. Over the past 6 months I have seen an improvement, almost back to normal. So there is light at the end of the tunnel. I still do not feel as motivated in general as I was before the birth of my son and the PRES. Hard to say which event this may be related to as my doctor says. I totally understand that caring for a child takes a lot of energy and focus. However, I really feel a change in my personality. Someone on one of these forums suggested this may be due to the experience of going through the trauma of the seizures versus a lasting effect. Sad to say, I have yet to find any information on these issues. Every article I have found has been on diagnosis, treatment and the same basic information I already knew. At least now I know there is one other person out there having similar concerns. Wish there was a chat room for people that have experienced PRES to share these issues. I think the condition is so rare that there is not much really known about the lasting effects.