Temporal lobe Surgery - Epilepsy Message Board

teinehamo08 · 11-21-2008, 10:30 AM

I'm a seventeen year old female with temporal lobe seizures, who is thinking about getting surgery to prevent seizures. I was wondering if there was anyone who has had the surgery done and what your experience was after the surgery. thanks

VA_girl · 11-21-2008, 07:12 PM

I had brain surgery to remove a tumor & I was having right temprol lobe seizures, so my situation is different. But I did have a co-worker have brain surgery for seizures, and as far as I know, it had worked for her. Brain surgery is the RISKIEST kind of surgery, you can suffer hemrage, stroke, brain damage or dealth if something goes wrong. I had a stroke during mine, took me years to recoup (again mine was diff) but the brain is the most sensitive organ. RESEARCH other peoples outcomes, search all over the web & get as much research about your medical facility & surgeon as you can.

030free · 11-23-2008, 01:25 PM

I was diagnosed with seizures 15 yrs ago, and I underwent Right Anterior Temporal Lobectomy April/2008 (age 26), and so far I been seizure free. Its not a easy decision to make, It wasnt for me, but it was the best decision I could have made in my life. To begin, they will need a series of test done to figure out what type of seizures you have and where they originated. To decide wether you are or not a candidate they must make sure that surgery is not going to effect your motor skills, speech, or memory. My surgery was a success Thank God, Im still on meds, but Neuro is thinking of taking me off next April so I can finally Become pregnant... The surgery itself was not bad, but post surgery recovery annoyed me since I had to wait months 2 get back on my feet. Anyways I hope you are a candidate and that surgery could help you, since nowdays its a very common procedure. If u have other concerns write, but remember to write all major questions down, to ask your neuro..
Laura

teinehamo08 · 11-26-2008, 11:11 AM

Thank you both for your response. I will have a video EEG done soon and will find out more about the pros and cons and whether or not I'm a good candidate. Hopefully it will be an option for me. I have seizures on a frequent basis (2-4 a month) and it makes it impossible to drive and keep a job. I want to go to college and live a normal life as much as possible.

Thanks again, I'll keep you posted with any updates.

Sherri5186 · 12-05-2008, 06:00 PM

I had a left anterior lobectomy.I am 45 and starting having seizures
at age 4.I can tell you since surgery I haven't any problems as
far as speech,my memory is not any worse than it was before due
to all the seizures I had in my life.But,unfortunately my seizures have
not all went away,I still have seizures,but, no where the amount I did
prior.Before surgery I had them every two weeks,due to hormones,
I have catamenial epilepsy.The month right before surgery I had 32
seizures that month,now I might have one every 6 or 8 weeks.I have
also noticed since surgery I have a little blurred vision,and I had to
get much stronger reading glasses, and if I read too long I will get a
very bad headache that may last a few hours,since then they started
me on migraine pills,but,it only controls a little.Sorry for the bad news,
but,don't let this discourage you,my family keeps reminding me how bad
everything was before surgery.If you have questions,I'll be more than
glad to help the best I can.