I am relatively new around here because I am relatively new to this health disorder. I really right now just need some answers and support. I know you guys are not MD's and can't help me the way my neurologist can, but I really need help.
I had my first seizure in January 2008 at the age of 23. Never a health problem or head injury in my life. I lost consciousness while driving. The neurologist I saw ordered a 24hr EEG and an MRI. I also had an EEG and CT scan at the hospital immediately following my accident. All of my tests came back normal and he really had no diagnosis. I know it's not impossible for someone to have no diagnosis, but have seizures, but how common? I am starting to think I need a second opinion. He put me on 200 mg/day Lamictal and I resumed a normal life.
I've had two seizures since then that I lost consciousness during, and one was the day after I went away for the night and forgot my pills, and the other was after I took my pills and wound up throwing them up 15 minutes after taking them. So the pattern with them is missed dose. I know this is common so I figure as long as I take the pills, I am fine.
Today I was talking on my cell phone and I got another call. The "beep beep" sound threw me into aura. It only lasted a few seconds and life went on. I've heard that sound before and it made me feel sort of funny before, but never put me into aura. Is the Lamictal the reason I only had aura and did not lose consciousness, or is that just the way it was with that trigger?
I am fairly confident that sounds are my trigger. There is a certain song that has done the same thing. But aside from avoiding the certain sound, is there anything else I can really do? Can a neurologist do anything else or is the Lamictal it? That's why I wondered if it is the Lamtical that prevented me from having anything major. With aura, I hear the sounds for about 3-5 seconds, I am totally conscious and alert and life goes on. I just didn't know if there was something else that could be done, or if I have to be in fear of my phone forever.
The thing I am struggling with the most is that I was perfectly healthy for 22 years, heard that same "beep beep" for 22 years with no effect, and then all of a sudden, it has an effect, but yet I have no diagnosis.
Also, I recently started taking some vitamins. CLA, B-Complex and Biotin. Do you know if any of those can have an interaction with Lamtical and make it less effective? I also recently quit smoking and am trying to quit drinking soda. Could either of those have an effect? I mean, I swear I've heard that "beep, beep" since my first seizure and also had NO effect. So I wondered if the fact that sometimes it has an effect, sometimes it doesn't could have anything to do with these other factors?
If you are on any of the stop smoking drugs, they can cause seizures in epileptics. Withdrawal from nicotine could place a stress on a persons system until you pass that stage and get to the point where you don't have the cravings. I'm a smoker as well.
IF your seizures are audio triggered (and they don't know this for sure) you can confirm it pretty easy with one song. Pink Floyd, from the album The Wall (the track that has the beeping/UK tones). See what effect it has on you. If you try it, just do it on a couch or laying in bed to be in a safe place.
I've heard of unexpected audio causing seizures (a person being spooked) but that can be understood somewhat. I don't recall reading much on audio triggered seizures. Photo-epileptic seizures are known of (caused by light).
Hi there ,
I was diagnosed with epilepsy at 20 and am taking lamactial & tegretol. Auras in themselves are seizures, but can be usually followed by bigger (grand mals etc) seizures, hours to days later. I get them too but smells are my triggers, smells that Ive smelt all my life & nothing has ever happened before. I think this is because your seizures are situated in your temporal lobe.. so triggers can be smell, sight and in your case sound. I dont think this has anything to do with the lamictal. You shouldn't but its ok to miss 1 dose,anything more then that and your asking for trouble.
If its really bothering you, keep a diary of when you get auras, what triggered them, approx how long and so on and seek a second opinion.
Good luck
Lauren
Quote:
Originally Posted by alma matters
Hi everyone,
I am relatively new around here because I am relatively new to this health disorder. I really right now just need some answers and support. I know you guys are not MD's and can't help me the way my neurologist can, but I really need help.
I had my first seizure in January 2008 at the age of 23. Never a health problem or head injury in my life. I lost consciousness while driving. The neurologist I saw ordered a 24hr EEG and an MRI. I also had an EEG and CT scan at the hospital immediately following my accident. All of my tests came back normal and he really had no diagnosis. I know it's not impossible for someone to have no diagnosis, but have seizures, but how common? I am starting to think I need a second opinion. He put me on 200 mg/day Lamictal and I resumed a normal life.
I've had two seizures since then that I lost consciousness during, and one was the day after I went away for the night and forgot my pills, and the other was after I took my pills and wound up throwing them up 15 minutes after taking them. So the pattern with them is missed dose. I know this is common so I figure as long as I take the pills, I am fine.
Today I was talking on my cell phone and I got another call. The "beep beep" sound threw me into aura. It only lasted a few seconds and life went on. I've heard that sound before and it made me feel sort of funny before, but never put me into aura. Is the Lamictal the reason I only had aura and did not lose consciousness, or is that just the way it was with that trigger?
I am fairly confident that sounds are my trigger. There is a certain song that has done the same thing. But aside from avoiding the certain sound, is there anything else I can really do? Can a neurologist do anything else or is the Lamictal it? That's why I wondered if it is the Lamtical that prevented me from having anything major. With aura, I hear the sounds for about 3-5 seconds, I am totally conscious and alert and life goes on. I just didn't know if there was something else that could be done, or if I have to be in fear of my phone forever.
The thing I am struggling with the most is that I was perfectly healthy for 22 years, heard that same "beep beep" for 22 years with no effect, and then all of a sudden, it has an effect, but yet I have no diagnosis.
Also, I recently started taking some vitamins. CLA, B-Complex and Biotin. Do you know if any of those can have an interaction with Lamtical and make it less effective? I also recently quit smoking and am trying to quit drinking soda. Could either of those have an effect? I mean, I swear I've heard that "beep, beep" since my first seizure and also had NO effect. So I wondered if the fact that sometimes it has an effect, sometimes it doesn't could have anything to do with these other factors?
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