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Old 07-06-2009, 11:03 AM   #1
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Seizures or what?

I'm not sure how this forum thing works so hopefully someone gets this... I would like some feedback or find someone that has this same issue. I am having "episodes" that seem much like a petit mal seizure. I have had this episodes since 2004 when I started college. They became somewhat debilitating in 2007/08. My episodes consist of 5-30 seconds of confusion, no speaking, glassy eyes, loss of balance and coordination. I am aware that they are coming and aware that it is happening but can not avoid or stop it. I can hear someone speaking to me but I won't respond. I also have extremely vivid dreams and sometimes think I see things happening infront of me like a hillucination. I have been in two very minor car accidents because of these episodes. My boyfriend is aware when it is happening and does his best to take the attention off of me or if I happen to be doing something he might hug me because of my occasional loss of balance. In the past year I have been to two physicians, neurologist, pyscho-therapist, and psychiatrist... blood work, 2 eeg's and an mri which all came back normal. I am healthy, active and in great shape. The doctors have come up with stress, anxiety and OCD. I have tried paxil and while it reduced the occurances of my episodes it took a toll on my sex life. I am about to start luvox because my episodes increased once again...I am scheduled to see a seizure specialist. With normal test results doctors have said it could still be petit mal. So should I be taking a anti-convulsant??? I have no idea what to do or what to think about it. I am just trying to deal and function. Any suggestions?

 
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Old 07-06-2009, 02:46 PM   #2
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kelebabes HB User
Re: Seizures or what?

If it any consolation , I have the same problem as well, it started last august and has been persistant ever since, I thought it was epilepsy but the neurologists think other wise, they put me on Epilim and i haven't had incidents in 2months now.

 
Old 07-06-2009, 02:50 PM   #3
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Travis from MN HB UserTravis from MN HB UserTravis from MN HB User
Re: Seizures or what?

Quote:
Originally Posted by sickntired7 View Post
I'm not sure how this forum thing works so hopefully someone gets this... I would like some feedback or find someone that has this same issue. I am having "episodes" that seem much like a petit mal seizure.... I have had this episodes since 2004.....My episodes consist of 5-30 seconds of confusion, no speaking, glassy eyes, loss of balance and coordination.....I can hear someone speaking to me but I won't respond. I also have extremely vivid dreams and sometimes think I see things happening infront of me like a hillucination. .....I have been to two physicians, neurologist... blood work, 2 eeg's and an mri which all came back normal. I am healthy, active and in great shape....I am scheduled to see a seizure specialist. With normal test results doctors have said it could still be petit mal. So should I be taking a anti-convulsant??? I have no idea what to do or what to think about it. I am just trying to deal and function. Any suggestions?


I would call them "stare offs". It would fall into the listing of petit-mal, from how you are describing them. You did not mention loss of consciousness, so your seizures don't go that far.

Depending what the doctors say, they most likely will recommend a medication to control them (try to control them better). It's a see how it goes process.


You did not mention a frequency or "when" they occur. If they tend to occur more often during the cycle or at any random time during the month.

If STRESS is a causation of seizures or not? Or other items, such as caffeine, alcohol, lack of sleep, (you see possible causes I am listing?). Light sources can be a problem with some people, flashing lights, Florescent tubes; perfumes, specific foods.

Hope some of these items can help you in your case.

Best of luck when you see the NeXT Doctor.

--Travis

 
Old 07-06-2009, 07:53 PM   #4
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Re: Seizures or what?

They happen anytime day, night, anytime in the month, and doesn't matter what I am doing. I can not come up with a trigger or pattern. Lately, I have the largest ones in my sleep when I'm groggy if I get up to go to the bathroom which happens frequently I will feel confused almost...for example while walking back to bed the other night I was trying to get back in bed but it was like I couldn't make my body do it, so instead I missed the bed complete in an attempt to sit and fell on the floor. I knew I had an episode, knew I completely missed the bed and just got up and went back to sleep. So in all this I have stopped taking paxil and started Luvox for OCD. I'm starting to think I will just have to live with this for the rest of my life?

 
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