It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 11-19-2009, 02:57 PM   #1
Newbie
(male)
 
Join Date: Nov 2009
Posts: 2
nickw252 HB User
Do I really have epilepsy - I've had 2 isolated seizures

I recently had my second grand mal seizure and have been diagnosed with epilepsy. I'm wondering if I really have epilepsy given the unusual circumstances of both seizures.

Seizure 1:

My first seizure happened in January of 2009. I had gone out drinking the night before but it was not binge drinking, just casual drinking while a live band was playing at a bar. I didn't stay out real late and there were no other unusual circumstances present.

The seizure occurred at about 6 or 7 AM while I was in bed asleep, and I was transported to a hospital where I stayed for 2 days. After speaking to a neurologist, he was not able to give me a lot of insight and I chose not to get on medication.

Seizure 2:

My second seizure occurred at the end of October of 2009. Again it happened at about 6 or 7 AM while I was in bed. The night before was a Sunday and I had not had a drop of alcohol, but 2 nights before (Saturday) I had been casually drinking alcohol most of the day while watching college football.

This time, again, I was hospitalized. While in the hospital, an MRI revealed an infection in my head behind my right ear - the same ear that I had had a eustation tube put in when I was younger. The doctors prescribed antibiotics for 5 days and I'm all done with them.

To the best of her knowledge, my girlfriend tells me that both times the seizures happened I was sleeping on that side.

I'm now taking Dilantin 200 MG controlled release every day.

Now I'm wondering whether I actually have epilepsy, or if the seizures could be caused by something else, like the infection in my ear.

Why I don't think it's Epilepsy:

It doesn't seem like the usual triggers for seizures have had any effect on me between Jan. of 09 and Oct. of 09.

With my job I sit at a computer screen usually for 6-8 hours per day - no problems, I've been to night clubs and bars with strobe lights/flashing lights and been drinking - no effect, June and July of 2009 were some of the most stressful times of my life (studying for and taking the bar exam) - no seizures, I drove a lot - often times at night with headlights in my eyes and mirrors - no seizures.

Because none of these usual triggers caused seizures, could it have been the ear infection that caused it? I really don't like being on Dilantin and am having minor side effects.

I haven't yet seen a specialist but will be going as long as my new insurance company doesn't deem it to be a pre-existing condition. Is there anything I should ask or mention?

Thanks for reading this long post

 
Sponsors Lightbulb
   
Old 11-19-2009, 04:04 PM   #2
Newbie
(male)
 
Join Date: Nov 2009
Posts: 2
nickw252 HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

Another thing I just thought to mention - I do not take any other prescription drugs other than Dilantin, and wasn't on any at the time of either seizure, and I am not a recreational drug user.

 
Old 11-20-2009, 06:11 AM   #3
Member
(female)
 
heyloe's Avatar
 
Join Date: Feb 2009
Location: Ontario, Canada
Posts: 78
heyloe HB Userheyloe HB Userheyloe HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

I found that having an acute inner ear infection can cause seizures (I knew it could from my own MRI I had this summer but wanted some backup before posting), but I would still talk to a Dr. who is willing to hear you out and you should also keep an open mind.

Good luck and I hope you get the answers you are hoping for.

heyloe

Last edited by moderator2; 11-20-2009 at 06:17 AM. Reason: please do not post websites except as described in the Posting Policy

 
Old 11-20-2009, 05:11 PM   #4
Senior Veteran
(male)
 
Join Date: Jan 2005
Location: St Cloud, MN
Posts: 1,233
Travis from MN HB UserTravis from MN HB UserTravis from MN HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

What they MIGHT do is give your treatment a couple of years (BE PATIENT) meaning 2 years or so, but LESS THAN 5 and SEE if you have any additional seizures over that time.

THIS IS GENERIC INFORMATION. I am only a patient. so IF (can't stress the word IF enough) you remain on the medication over that time, and IF you do not have any more seizures the doctor MIGHT try to reduce or remove the medication and see if a patient does really need it. THAT IS A VERY DANGEROUS EVENT. Patients should never adjust their medications on their own. That can trigger seizures.

If a person has 2 or more is usually when medications are started, however it is up to the doctor to make the call. It's better to be safe than sorry. Think if they wouldn't put you on medication and you would have a seizure in a high risk environment. You could crack your head or break some bones. At minimal a sprain.

--Travis

 
Old 11-22-2009, 06:06 AM   #5
PtC PtC is offline
Junior Member
(female)
 
Join Date: Nov 2009
Location: Daytona, Florida, US
Posts: 44
PtC HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

Quote:
Originally Posted by nickw252 View Post
I recently had my second grand mal seizure and have been diagnosed with epilepsy. I'm wondering if I really have epilepsy given the unusual circumstances of both seizures.

Seizure 1:

My first seizure happened in January of 2009. I had gone out drinking the night before but it was not binge drinking, just casual drinking while a live band was playing at a bar. I didn't stay out real late and there were no other unusual circumstances present.

The seizure occurred at about 6 or 7 AM while I was in bed asleep, and I was transported to a hospital where I stayed for 2 days. After speaking to a neurologist, he was not able to give me a lot of insight and I chose not to get on medication.

Seizure 2:

My second seizure occurred at the end of October of 2009. Again it happened at about 6 or 7 AM while I was in bed. The night before was a Sunday and I had not had a drop of alcohol, but 2 nights before (Saturday) I had been casually drinking alcohol most of the day while watching college football.

This time, again, I was hospitalized. While in the hospital, an MRI revealed an infection in my head behind my right ear - the same ear that I had had a eustation tube put in when I was younger. The doctors prescribed antibiotics for 5 days and I'm all done with them.

To the best of her knowledge, my girlfriend tells me that both times the seizures happened I was sleeping on that side.

I'm now taking Dilantin 200 MG controlled release every day.

Now I'm wondering whether I actually have epilepsy, or if the seizures could be caused by something else, like the infection in my ear.

Why I don't think it's Epilepsy:

It doesn't seem like the usual triggers for seizures have had any effect on me between Jan. of 09 and Oct. of 09.

With my job I sit at a computer screen usually for 6-8 hours per day - no problems, I've been to night clubs and bars with strobe lights/flashing lights and been drinking - no effect, June and July of 2009 were some of the most stressful times of my life (studying for and taking the bar exam) - no seizures, I drove a lot - often times at night with headlights in my eyes and mirrors - no seizures.

Because none of these usual triggers caused seizures, could it have been the ear infection that caused it? I really don't like being on Dilantin and am having minor side effects.

I haven't yet seen a specialist but will be going as long as my new insurance company doesn't deem it to be a pre-existing condition. Is there anything I should ask or mention?

Thanks for reading this long post

 
Old 12-17-2009, 06:25 AM   #6
PtC PtC is offline
Junior Member
(female)
 
Join Date: Nov 2009
Location: Daytona, Florida, US
Posts: 44
PtC HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

Quote:
Originally Posted by nickw252 View Post
I recently had my second grand mal seizure and have been diagnosed with epilepsy. I'm wondering if I really have epilepsy given the unusual circumstances of both seizures.

Seizure 1:

My first seizure happened in January of 2009. I had gone out drinking the night before but it was not binge drinking, just casual drinking while a live band was playing at a bar. I didn't stay out real late and there were no other unusual circumstances present.

The seizure occurred at about 6 or 7 AM while I was in bed asleep, and I was transported to a hospital where I stayed for 2 days. After speaking to a neurologist, he was not able to give me a lot of insight and I chose not to get on medication.

Seizure 2:

My second seizure occurred at the end of October of 2009. Again it happened at about 6 or 7 AM while I was in bed. The night before was a Sunday and I had not had a drop of alcohol, but 2 nights before (Saturday) I had been casually drinking alcohol most of the day while watching college football.

This time, again, I was hospitalized. While in the hospital, an MRI revealed an infection in my head behind my right ear - the same ear that I had had a eustation tube put in when I was younger. The doctors prescribed antibiotics for 5 days and I'm all done with them.

To the best of her knowledge, my girlfriend tells me that both times the seizures happened I was sleeping on that side.

I'm now taking Dilantin 200 MG controlled release every day.

Now I'm wondering whether I actually have epilepsy, or if the seizures could be caused by something else, like the infection in my ear.

Why I don't think it's Epilepsy:

It doesn't seem like the usual triggers for seizures have had any effect on me between Jan. of 09 and Oct. of 09.

With my job I sit at a computer screen usually for 6-8 hours per day - no problems, I've been to night clubs and bars with strobe lights/flashing lights and been drinking - no effect, June and July of 2009 were some of the most stressful times of my life (studying for and taking the bar exam) - no seizures, I drove a lot - often times at night with headlights in my eyes and mirrors - no seizures.

Because none of these usual triggers caused seizures, could it have been the ear infection that caused it? I really don't like being on Dilantin and am having minor side effects.

I haven't yet seen a specialist but will be going as long as my new insurance company doesn't deem it to be a pre-existing condition. Is there anything I should ask or mention?

Thanks for reading this long post
Oh dear, that is so close to my story--you are probably right--I was told by the DMV that the doctors are worried about losing their own licenses, so no matter how it is, the fact is you are totally alone with this info. Do not believe the T.v about telling you doctor about side effects--they get you started then this....

 
Old 12-18-2009, 01:50 PM   #7
Junior Member
(female)
 
Join Date: May 2009
Location: UK
Posts: 30
Andrea01 HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

Hi

You should ask if you can have an EEG and a MRI scan done......in May of this year i had been out over the weekend first night didnt get in until 3.00am second night was probably about 2am...that sunday i had a seizure...i was very confused and didnt know who i was etc and didnt know what the day or year was etc etc i was taken to hospital and that nite had another seizure where i was shaking etc but dont remeber having that one i was told by a nurse that i had one during the nite. I was told becasue of my history it was probably epilepsy and was told to take keppra and under no circumstances to stop taking them....i used to have epilepsy but not had one for 14 years prior.....i had an mri scan and an EEG and the nuro has come to the conclusion that i have temprol lobe epilepsy probaby triggered by the late nites and not the alcohol. Strobe lights, computer screens dont affect me at all I'm still on the meds and not had another seizure since and i still go clubbing, drink alcohol (the nureo said its fine) use my computer have my piccie taken etc etc and i have been absolutely fine. One downside is i have had to give my driving liscense back but should be able to get it back in june 2010 providing i dont have another seizure. I would carry on taking the meds becasue if you havent had any since then they are probably working..Do you drive i assume you will have had to give your liscense back if you do and if you stop taking them then have another seizure then you will have to wait even longer before getting your liscense back.
Take Care
Andrea x

Last edited by Andrea01; 12-18-2009 at 01:54 PM. Reason: wanted to add more text.

 
Old 01-29-2010, 08:58 PM   #8
Newbie
(female)
 
Join Date: Jan 2010
Location: Michigan
Posts: 7
monkee5 HB User
Re: Do I really have epilepsy - I've had 2 isolated seizures

Hi there, not really new to seizures but very confused and hoping to get some insight? I had a grand mal about 20 years ago, had an EEG and saw a Neurologist and short story I dont remember alot from so long ago but never had another until almost a week ago today. I am reading there are so many causes triggers ect. and way back i guess i didnt think much of this but this grand mal scared the shi^ out of me and two of my sisters. The only thing i can somewhat make sight of this is both times more so back them i was under alot of stress. The dr. at my er follow up said she didnt think it was a call for meds for seizures or another Neuro but did prescribe me an antibotic for possible respitory inf. and meds to treat migrained basically but is an anti seizure med as well. Now I drive alot per say and i am mainly worried about the DMV getting a report and taking my licence? Should I be concerned for one and for two would I have heard something by now? I have really limited my driving to likeonce since this, go figure I'm already on disability for my arthritis ect. for my back but I have kids appt.s ect. I have a recheck on the 3rd with my regular dr. I would have normally saw I am just wondering if i should push though to have a current EEG and or be referred to a Neuro for current eval.??? Moving forward I have been diagnosed before with migraines and I did have a Cat scan the night of the seizures but i new that was going to be okay because i had one within a year ago due to head pressure and now it actually does hurt if you touch the left side of my head wich all my issues seems to be this side as well, sometimes i feel as if I cant even think anymore and it's as if my mind is shutting down, I have yet to tell my regular dr. this and i forget alot and scrable things ect. It's getting kinda scary!
Thanks, monkey

 
Old 03-21-2010, 09:23 PM   #9
Newbie
(male)
 
Join Date: Mar 2010
Posts: 4
sandpoet HB User
Thumbs up Re: Do I really have epilepsy - I've had 2 isolated seizures

Dear Nick-

I had 2 petite mals in 1999 and also did not want the drugs and went seizure free until 2008 and I had seizures after 2 heart surgeries and a brain bleed, also corrected by surgery. I then began to have grand mals without meds. I had symptoms of the brain bleed brfore these surgeries. Severe migraines, double vision, etc. I believe the brain damege ocurred in 1999 and laid dormant until I had endocarditis and it went to any susceptable organ. I had a bi-cuspid heart valve, like Arnold swarzenneger. I was also a serious weightlifter and had a high stress job(CEO of large company). My father and two siblings died within 6 months, I divorced, I lost my job. I believe stress contributed.

Don't ignore the meds, as you may cause harm to yourself or others. Try them, but catalog you symptoms and your doc may change meds until you find the one with minimum side effects. I went from Dilantin to Trileptal, Keppra, now lamotrigine. So far the Lamotrigine has been the best, with minimal side effects. the only noticeable is side effect is sexual functioning, but not interest,arousal or performance, merely prolonged orgasms.

Stay strong and positive. With treatment, you can lead a good life, although not like you did before epilepsy.

Cheers,

Dave
Quote:
Originally Posted by nickw252 View Post
I recently had my second grand mal seizure and have been diagnosed with epilepsy. I'm wondering if I really have epilepsy given the unusual circumstances of both seizures.

Seizure 1:

My first seizure happened in January of 2009. I had gone out drinking the night before but it was not binge drinking, just casual drinking while a live band was playing at a bar. I didn't stay out real late and there were no other unusual circumstances present.

The seizure occurred at about 6 or 7 AM while I was in bed asleep, and I was transported to a hospital where I stayed for 2 days. After speaking to a neurologist, he was not able to give me a lot of insight and I chose not to get on medication.

Seizure 2:

My second seizure occurred at the end of October of 2009. Again it happened at about 6 or 7 AM while I was in bed. The night before was a Sunday and I had not had a drop of alcohol, but 2 nights before (Saturday) I had been casually drinking alcohol most of the day while watching college football.

This time, again, I was hospitalized. While in the hospital, an MRI revealed an infection in my head behind my right ear - the same ear that I had had a eustation tube put in when I was younger. The doctors prescribed antibiotics for 5 days and I'm all done with them.

To the best of her knowledge, my girlfriend tells me that both times the seizures happened I was sleeping on that side.

I'm now taking Dilantin 200 MG controlled release every day.

Now I'm wondering whether I actually have epilepsy, or if the seizures could be caused by something else, like the infection in my ear.

Why I don't think it's Epilepsy:

It doesn't seem like the usual triggers for seizures have had any effect on me between Jan. of 09 and Oct. of 09.

With my job I sit at a computer screen usually for 6-8 hours per day - no problems, I've been to night clubs and bars with strobe lights/flashing lights and been drinking - no effect, June and July of 2009 were some of the most stressful times of my life (studying for and taking the bar exam) - no seizures, I drove a lot - often times at night with headlights in my eyes and mirrors - no seizures.

Because none of these usual triggers caused seizures, could it have been the ear infection that caused it? I really don't like being on Dilantin and am having minor side effects.

I haven't yet seen a specialist but will be going as long as my new insurance company doesn't deem it to be a pre-existing condition. Is there anything I should ask or mention?

Thanks for reading this long post

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
i'am new to epilepsy joanne1294 Epilepsy 2 08-05-2009 06:37 PM
Epilepsy and the College Student aek8890 Epilepsy 8 08-09-2006 10:53 AM
abscence epilepsy _xhannahx_ Epilepsy 12 05-17-2006 08:56 AM
Temporal Lobe Epilepsy 367cat Epilepsy 12 05-07-2006 02:09 PM
8 month old has Epilepsy Nate's_Momma Epilepsy 19 11-12-2005 10:32 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



030free (19), 92261 (11), Positive Cynic (9), Travis from MN (7), Nicole K (6), heyloe (5), cardshark (4), neurowreck (3), webartethan (2), Looking4aAnswer (2)

Site Wide Totals

teteri66 (1180), MSJayhawk (1013), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (763), ladybud (755), midwest1 (670), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 07:21 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!