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Old 03-15-2011, 08:56 AM   #1
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limeridge123 HB Userlimeridge123 HB User
Life

Hi there I have had brain surgery which I thought would make my life better. My seizures use to be like 6-7 a day. I now maybe get them 3-4 a week which is better. I was told I would be able to go back to work and enjoy my life to the fullest. NOT did not happen at all. I can't work anymore my memory is so bad it's not funny. I have to jot down everything and I mean every little thing. Which makes my life not fun at all. I use my computer all the time read. The good thing is I do have a girlfriend and we get along somedays and others not. All because of my moods that change like the weather. I hate my meds I take tegertal and clobazam. Mind you clobazam made things worse for my moods. I have been on just about every new pill out there they told me.

I use to be a baker at a college which I loved got to always meet new students and have fun with my life. I was high up in the company and was there for over 15 years. Now I can't go back to work ever they told me. I try to get inot a lot of volunteer work and enjoy life. I did join a choir at a church about 4 years ago. Yes it makes me happy but not the life I expext.


Now I don't know about some of you with word finding. I could be talking with others and just like that I go blank. It's like ok what were we talking about here. Or I'm on a sentense and what was i going to say here.

What do some of you people go threw and how do you deal with your seizures. How do you deal with the memory that holds some of us back. Please reply thanks..

 
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Old 03-15-2011, 02:38 PM   #2
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cardshark HB Usercardshark HB User
Re: Life

Hi and wlecome to the boards! Sorry to hear that your surgery wasn't a total success as you hoped and you are having issues. Trust me there are a number of us that have the memory and word recollection issues, myself included. I'm in a little different spot than you because I am getting ready for surgery versus having had it already. Trust me, I know what it is like to feel like you have no life! I barely made it through high school and had to drop out of college becuase of memory/recollection issues and the worst part was it isn't necessarilly that I didn't know the info. I just couldn't come up with it on the spot. It is very frustrating! My brain doesn't work as it is and they want to take part of it out and I'm supposed to believe it will work better after that; the concept seems kind of screwed up to me. Reality is there is no magical way that will work for everyone when it comes to dealing with the struggles that come with epilepsy/AED's/surgery. We each have to find what works best for ourselves. I play games, I talk to other people in similar situations on here, I volunteer as much as possible, spend time with friends and family, etc. Most importantly, I rely heavily on God and take life one second at a time because one day at a time is way too much for me most days.
Hang in there and know you are not alone and there are a number of us here that care!
cardshark

Last edited by cardshark; 03-15-2011 at 02:44 PM.

 
Old 03-16-2011, 07:49 AM   #3
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Join Date: Mar 2011
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limeridge123 HB Userlimeridge123 HB User
Re: Life

Hi there yes I know what you are talking about there. Yes some people with the brain surgery everthing all works out great. I wish the best for you. I'm glad you volunteer which is great. I find it keeps your mind going and being in with people. I wish you all the best and hope all goes well.

 
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