I have been diagnosed with Epilepsy for 11yrs now and I realized that many people reject people like me. My sister's best friend's mom said she would help us out whenever we needed it, my sister is also epileptic, and she looked Epilepsy up, called us, and said she couldn't do it. She was afraid she was going to catch it. You can't catch Epilepsy, it's genetic! I was so ****** off I almost yelled at her to go die, but realized nothing good would come out of it. So we stopped connecting with them. My sister lost a friend, all because of her mom's rejection.
So what I'm asking is if anything like this happened to anyone else and what you felt like saying or doing to that person. And also why do people reject us when were all the same, we just have a non-catch able disease. Thank you for listening to my story.
The following 2 users give hugs of support to: SummerSun Krista2882 (10-05-2011), no worry (10-04-2011)
Ignorance , is what causes those comments, uneducated . Is there some where in your area that the have support group for epilepsy? I would enquire when at the doctors or local hospital, surely there is some help in your area. Maybe if there is not, you could start one. There is probably a lot of people like you suffering ignorance of others. Maybe you could be the one to start educating the ignorant. Good luck,
Some people are just rude, ignorant and uneducated. I say rude because all it takes for someone to understand what epilepsy is, is to go to a computer, type the word 'epilepsy' into any search engine and you can easily educate yourself.
Finding a support group will really benefit you and your sister and if you can find one in your area, you can even attend sessions, meet people, volunteer,etc. The epilepsy organization in my city has picnics, festivals, conferences, classes, etc for people with epilepsy and their family members.
If you just need to 'vent', there are LOTS of support groups on FB.
Once somebody who knew another person with epilepsy decided he should be my friend when I said I also have the condition. After a while I decided it isn't right to be someone's friend because he has the same problem I do. So I quit talking to him because I did not like the fact epilepsy was why he knew me in the first place.
Hello SummerSun nice to meet you i actually have same problem with people thinking its contagious and though i do think ignorance plays a large part as estelle454 has stated i think other people are easily afraid of us because were different and people don't like things that are different, ive lost count of how many women have left me when they found out i had epilepsy they weren't bad people, the fact is they don't know and just don't want to know what Epilepsy is and so they don't want to be associated with anyone who has it. Its cruel but so is life in general we can only try to march on towards the future though i know its not always that easy.
I've probably actually been pretty lucky in this respect. I've never met someone who was scared they'd catch epilepsy from me, but when I was younger I was dumped by a loser who couldn't handle seeing me have a seizure. I view that as a lucky escape. I am now married to a wonderful and caring guy, and I feel sorry for the poor girl who ended up with him. I don't know about you lot, but I can totally do without ignorant losers in my life!
All the best,