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Old 02-20-2012, 03:10 PM   #1
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Join Date: Feb 2012
Location: Lebanon, PA
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Bowlerchick03 HB User
New-Help?

Hi everyone-
I'm Ashley. I am the fiance to a wonderful man named Bobby. He had a seizure as a baby and they attributed that to a fever. On 2/4 of the year he had a seizure while being asleep. He came home from work, he works 3rd shift. He had breakfast, I left him in the bedroom, and he was sound asleep. I was startled from my shower to a scream from him, and then realized he was having a seizure. This seizure probably lasted 5 minutes. He had to be sedated to go the hospital, and by the time we got there he knew where he was. They completed CT scan, MRI, EEG, and blood work. Everything came out normal and blood work was good. They placed him on 2,000 mg of Keppra, 1,000 in the am and 1,000 at night.
He has been feeling great. He is sleeping better and of course eating better. This morning at around the same time as the first seizure I woke to him having another one. This lasted less time then the first, and he was able to walk himself to the bed to go in the ambulance. He also was able to control his urine this time.
We went back to the ER, and they have found nothing again.

I am a mess. I don't know where to turn for answers, and I'm not sure what to do. I believe these are sleep seizures, but I don't know what to do with this information. I am soo scared. Can anyone help? Thank you!

 
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Old 02-22-2012, 07:41 AM   #2
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Join Date: Aug 2001
Location: W, CT
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Krista2882 HB UserKrista2882 HB User
Re: New-Help?

Hi Ashley,
I'm sorry you and your fiance are going through this. But what he really needs is to see a neurologist. Just getting a few tests done in the hospital and being given meds is not enough when someone is having multiple seizures. He needs to see a neurologist or and epileptologist so that his condition can be monitored, medications can be adjusted, and he can have more tests done. Did they say what they found on the EEG? Sometimes EEG's come out negative, but that doesn't mean there is no seizure activity- it might be too deep within the brain for it to register. If he has a doctor he is seeing regularly, the doctor can order more than one EEG if nothing was found, or they can even send him for a video EEG (they'll hook him up to an EEG machine and also will video monitor him in the hospital for 72 hours or more). The doctor will also want to see the MRI he had done and any blood tests. I guess what I'm trying to say is that your fiance needs continual care, not just once from doctors in an ER who are not specialists and who are usually kind of rushed to get through so many people.
Keep us updated on how he is doing.

 
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Old 02-22-2012, 09:12 AM   #3
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Join Date: Feb 2012
Location: Lebanon, PA
Posts: 3
Bowlerchick03 HB User
Re: New-Help?

Thanks Krista-
He is seeing a neurologist. We had another appointment last night, and they have increased his medication for prior to sleeping. He will now take 2,000 mg of Keppra prior to going to sleep. They told us all the CT, MRI, and EEGs were normal and that no findings were reported. He is having a sleep study conducted tonight and they are looking for sleep apnea. I just do not understand how someone can live there life and the next thing you know they are having seizures and now no answers to why this is happening. I really do believe that he is sleep deprived, and that he isn't sleeping well. I watched him sleep fro Monday night into Tuesday, and he did not sleep well. There was lots of jerking and movements in his sleep. He works 3rd shift, and get the correct amount of sleep does not happen often. His employer has offered him 2nd shift, but we cannot take that because he cannot drive until these seizures are under control.

 
Old 02-22-2012, 09:16 AM   #4
Newbie
(female)
 
Join Date: Feb 2012
Location: Lebanon, PA
Posts: 3
Bowlerchick03 HB User
Re: New-Help?

Thanks Krista-
He is seeing a neurologist. We had another appointment last night, and they have increased his medication for prior to sleeping. He will now take 2,000 mg of Keppra prior to going to sleep. They told us all the CT, MRI, and EEGs were normal and that no findings were reported. He is having a sleep study conducted tonight and they are looking for sleep apnea. I just do not understand how someone can live there life and the next thing you know they are having seizures and now no answers to why this is happening. I really do believe that he is sleep deprived, and that he isn't sleeping well. I watched him sleep fro Monday night into Tuesday, and he did not sleep well. There was lots of jerking and movements in his sleep. He works 3rd shift, and get the correct amount of sleep does not happen often. His employer has offered him 2nd shift, but we cannot take that because he cannot drive until these seizures are under control.

 
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