Originally Posted by emzywoo
Hello, I started having seizures earlier this year but they have been getting worse and 2 weeks ago I was taken to A&E and put into an induced coma for 3 days as it was the only way to get them to stop. I've suffered from Migraines for 2 years and take Sumatriptan and Diclofenac for them. I also went through a stage of having high blood pressure for 7 months but it returned to normal so it was never investigated further. When I was in hopsital I was seen by a doctor who said that my EEG was clear so didn't think it was epilepsy (Can you get a diagnosis from just that?). But what confuses me is that I was sent home with Levetiracetam and Carbamazepine - Which are used to treat epilepsy?! V. confused here Why have I been given this if they don't think it's epilepsy? Also - what could cause this? Really interrupting my life, particularly college work
- Repeated Grand Mal seizures (about 50 seconds and gaps of a few minutes) lasting about 40 minutes with loss of conciousness
- Lip smacking with staring and memory loss
CT scan clear
Lumbar Puncture clear
EEG (Not during seizure) clear
Sorry to hear you have been having so much trouble getting a proper diagnosis.
Just to let you know, I have been diagnosed with epilepsy after having 3 "clear" eeg's, one being sleep deprived, an MRI with dye injected into my brain and a CT scan...everything has come back normal.
My husband has seen me have my seizures so based on his description and my description of my partial seizures (though Dr's still weren't certain about those, but I have educated myself enough to know that is certainly what they are).
No known causes for my epilepsy, it is classified as "idiopathic" meaning arising from nowhere, although there is some history on my dad's side of the family and I had a mild concussion when I was a toddler, but still they will not say one way or the other, these have caused my epilepsy.
Based on what you have described, it sounds like you are having tonic-clonics, and complex partials and yes, you have been prescribed AED's.
I am on Levetiracetam also, and it has stopped my tonic-clonic seizures and for the most part, my partials.
As I've mentioned to others, keep a detailed seizure journal, set up a video camera if you have to, get 2nd, 3rd opinions. I'm on my 2nd neuro.
Many Dr's are hesitant to classify someone as having epilepsy, as there are many implications this can classification can bring on such as losing one's license, not sleeping alone, not showering or bathing alone, etc, etc.
In the interim, if you are certain about your seizures, I would try the medication and see if there is improvement and find another Dr and come armed with questions and your journal, video etc.