Originally Posted by CoffyDrinker711
I haven't posted in a couple years, as my PS have been relatively stable. However, in the past couple months I've been having what I believe are seizures in my sleep.
It started when I would be near asleep and my eyes would start "quivering" (I don't know if it was a fast beat clonus) and it would stop on its own. This seems to have graduated to my eyes and hands and I wake up scared because I can feel it.
I'm only on 250mg depakote BID so I think it would help increase my meds. Unfortunately, I only have a GP and he's not a very good one. I have no insurance for a neurologist.
Any ideas about nocturnal or sleep seizures in adults?
Would it be possible to have someone sleep with you to observe what is happening? Or to set up a camera in your room when you are sleeping?
That would be the only way to know for sure.
When I used to have my tonic-clonic nocturnal seizures I would be unconscious. However, a couple of times I had an aura(simple partial seizure) which is basically a warning sign letting you know a bigger seizure is coming. All auras are simple partial seizures, but not all simple partial seizures are auras, if that makes sense.
My auras came just as I was drifting off to sleep but still fully conscious. My heart would start racing, sometimes I would see little white flashing lights, my toes would tingle and then I felt really funny, as if I was about to pass out. After that, I remember nothing, because I lose consciousness and go into a full tonic-clonic. My husband has witnessed all of my nocturnal seizures.
Sometimes I have had no warning signs. Once I had a seizure in the middle of my sleep
It is possible to twitch as you are falling alseep...this is normal, and not epilepsy. My husband has experienced this as well as my mom and other people I have talked to. You startle yourself when it happens...start to drift off to sleep, twitch, and wake yourself up, then eventually fall asleep.
Telltale signs of nocturnal tonic-clonics would be waking up with a bad headache, extreme
fatigue up to 24 hrs following a nocturnal tonic-clonic, aching muscles, bitten swollen tongue, bitten sore lips, scratches on your body (face and arms).
Hope this helps.