It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epstein Barr Virus (EBV) Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-23-2004, 07:43 PM   #1
Newbie
 
Join Date: Jun 2004
Posts: 3
Orphaned Moon HB User
Lyse disease/Epstein Barr virus...Help plz!

Greetings!

I am an 21 years old boy from Greece whos infected by Chronic Epstein Barr Virus!
Many people have told me that i might be into lyse disease cause many symptomps(such as fatigue,hair loss etc)are similar.
What should i do?What tests should i do?I have heard that some of them are unreliable.

 
Old 06-23-2004, 10:21 PM   #2
Inactive
(female)
 
Join Date: May 2004
Location: bountiful, UT - USA
Posts: 147
subway13 HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

I also have the epstien barr virus, I think it's the same as mononeucleosis, I'm not sure how Lyme disease is related but mono isn't too serious. There is lots of information out there if you want to research. Sorry I guess I'm not much help!

 
Sponsors Lightbulb
   
Old 06-25-2004, 11:31 AM   #3
Inactive
 
Join Date: Jan 2004
Location: Charlotte Hall, MD
Posts: 357
Komondor HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

Hi Orphaned Moon,
The many people that have mentioned Lyme to you are correct. EBV is a common misdiagnosis. You need to see an LLMD and have your blood tested by Igenex Lab in Palo Alto, California.

Where do you live?

 
Old 06-25-2004, 06:47 PM   #4
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

Orphaned Moon, you are right that no Lyme test is completely reliable. It is important to see a knowledgable doctor and use a reputable Lyme lab for testing such as IgeneX in the United States.

Lyme disease is in Europe. Are you currently living in Greece?

 
Old 06-26-2004, 04:34 PM   #5
Newbie
 
Join Date: Jun 2004
Posts: 3
Orphaned Moon HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

LLMD?
I Live In Greece-Athens but it is 2 difficult for me to travel in California!I may feel very sick but i am not sure if i am into Lyse Disease!I shall make a test here(unreliable though)& if doesnt show anything i really dont know what to do next!Unfortunately i dont have the money to travel there...if i was sure i am into this disease i would be able to find the money!
Peole into Chronic Epstein Barr tell me that there is no cure and i have to learn live with it when other people tell me that i might have lyse disease!
By the way i have all these symptoms for almost 5 years(5 hellish years indeed)and i am totally despaired:/

 
Old 06-27-2004, 12:11 PM   #6
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

Orphaned Moon, I am very sorry you have been sick for so long. I know it is frustrating. But do not give up. You are not alone. I did not mean for you to travel to California. Perhaps your doctor would be willing to send your blood to IgeneX lab for testing?

Would you like me to try and find out what lab is good for Lyme testing in Europe? The only Lyme doctor I know of in Europe is in Germany, but that does not mean there is none in Greece.

Do not give up okay?

 
Old 06-29-2004, 05:15 AM   #7
Newbie
 
Join Date: Jun 2004
Posts: 3
Orphaned Moon HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

Thanx Ticker
I would really appreciate that.
I wont give up the fight...but u know 5 years!!!

 
Old 06-30-2004, 02:00 PM   #8
Senior Veteran
(female)
 
Join Date: Jan 2002
Posts: 5,818
ticker HB Userticker HB Userticker HB Userticker HB Userticker HB User
Re: Lyse disease/Epstein Barr virus...Help plz!

Orphaned Moon, it is terrible to be sick for so long, I know. You are on your way to getting answers!

I am trying to get any information I can for you. I will post as soon as I find out anything. Stay strong!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Epstein Barr Panel Lab Results Help Please BoulderJD Epstein Barr Virus (EBV) 3 04-05-2010 09:42 AM
Epstein Barr Virus cady113 Epstein Barr Virus (EBV) 2 01-12-2009 02:19 PM
Just Diagnosed With Epstein Barr Virus Liz1900 Epstein Barr Virus (EBV) 16 12-06-2008 09:30 AM
New Hope For Chronic Fatigue/Epstein Barr Sufferers sjs40 Epstein Barr Virus (EBV) 3 07-11-2008 05:37 PM
epstein-barr showed up in my blood work momma0111 Chronic Fatigue 3 03-03-2008 06:36 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



ladybud (2), Kali M (1), ukiahvalleymom (1), NatashaW (1), piscesmo (1), sporque (1), fretz (1), sklilleoien (1), mranxiety (1), terrienne (1)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 07:24 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!