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Epstein Barr Virus (EBV) Message Board
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Old 09-03-2003, 07:43 PM   #1
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tenortime HB User
Post EBV results, what does it mean??

I have been sick for 5 weeks. Extreme fatigue, coordination problems, concentration problmes, muscle weakness, liek im high or drunk most of the time. I dont really have much pain, just my hands go to sleep and my fingers dont work. They have tested for alot of stuff and today, 3 weeks later the ENT called and said I have positive results for EBV. I have been miserable and very scarred for my healt and a nutcase trying to figure it out. SOund familiar?? Im trying to figure out what these results mean, the dr was not very helpful, he said i have a recent or chronicactive infection.
here are the results, any information is helpful.
EBV VCA IGM Negative
EBV Early Antigen Positive
EBV AB VCA IgG 91H (pos is <20)
EBV Nuclear antigenAB IgG 36H <20 AU

I have no idea what this means.

 
Old 09-04-2003, 07:34 AM   #2
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I didn't know, but was interested, so looked it up for you. As you know Epstein-Barr virus is what you have when you have mono. The results have to do with antigens and antibodies to test if you have mono and at what stage. I'm not sure, but I only understand the first one:

EBV VCA IGM Negative = Viral Capsid Antigen
This antigen appears during the early stage of infection. It usually disappears within weeks 4-6 (you say you are in week 5).

Here is the website with more info: [url="http://www.cdc.gov/ncidod/diseases/ebv.htm"]http://www.cdc.gov/ncidod/diseases/ebv.htm[/url]

It is very technical, so best just to ask your doctor to explain it to you. Just because you test positive for EBV doesn't mean you have mono. Once you've had it, you can test positive for it the rest of your life. I do.

 
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Old 09-05-2003, 03:20 PM   #3
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I understand how you feel, I am 36 and was diagnosed with Chronic Epstein Barr Syndrome when I was 12 years old, Of course most doctors I have seen don't know much about it or ignore it when I mention it but. Initially I had migranes, severe mood swings, spleen problems, chronic fatigue, just to name a few. Over the years it seems to go dormant for awhile then flair up again, especially under great stress. I always still test positive for it but it doesn't always bother me. They put me on all kinds of drugs, xanax, antidepressants, etc, nothing really seems to help though. They only treat the symptoms as they appear. I wish I could help you more, but after living with it for so many years, I quit taking all the drugs for years, until recently when I had a severe anxiety attack and they put me on Ativan. I was just hoping to let you know you are not alone with this problem.

DeAnn

 
Old 09-05-2003, 03:21 PM   #4
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I understand how you feel, I am 36 and was diagnosed with Chronic Epstein Barr Syndrome when I was 12 years old, Of course most doctors I have seen don't know much about it or ignore it when I mention it but. Initially I had migranes, severe mood swings, spleen problems, chronic fatigue, just to name a few. Over the years it seems to go dormant for awhile then flair up again, especially under great stress. I always still test positive for it but it doesn't always bother me. They put me on all kinds of drugs, xanax, antidepressants, etc, nothing really seems to help though. They only treat the symptoms as they appear. I wish I could help you more, but after living with it for so many years, I quit taking all the drugs for years, until recently when I had a severe anxiety attack and they put me on Ativan. I was just hoping to let you know you are not alone with this problem.

DeAnn

 
Old 09-06-2003, 06:52 AM   #5
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Hello. I am new to the discussion board. I am going through close to the same thing as some of you. I had mono a year ago. I thought I got over it however I have been extremely tired all the time and I have swollen lymph glands, and a itchy red rash on my leg that will not go away!! The rash is really weird, it doesn't spread, but it is bumpy and itchy sometimes. Anyway, I am going to see an infectious disease specialist because I received abnormal blood results at the first of August. My lymphocytes are low and my mono came back as inconclusive. Really weird! It seems my energy level is on a roller coaster ride! I have energy for a few hours and then zap, I am so tired I can't even walk up the stairs, it feels like my legs are so heavy. Anyway, I was also curious to hear more about deann_lg's symptoms of Chronic Epstein Barr Syndrome. What is that? Do you think I could have that too??

 
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