Hello! Has anyone else who has EBV experienced extreme hand and especially knuckle pain? My doctor says this is NOT typical, which makes me worried in case I have something else as well. The EBV has caused hepatitis, but I cant find any mention of knuckle pain from that, either.
Interesting you ask that, I also have EBV and they are also considering that I have lupus ( I have that knuckle/wrist pain as well). My knuckles actually swell up and turn purple (and my wrists just throb with pain).
Have they checked to see if you could possibly have something like lupus or fibromyalgia?
Yes i have had the lupus test, which was negative. My knuckles swelled up like yours, but this has recently got much better. I was wondering if it was to do with the fact that i had stopped using a keyboard after 17 years of typing at work, but maybe its just another symptom of EBV after all. Good luck with your lupus test.
also have EBV. diagnosed in 1991. almost immediately started having pain in my hands. mainly my knuckles. they are bumpy,swell and look purple at times. i have taken a diuretic since then for swelling. it helps but sometimes the pain is unbearable. saw a hand specialist and he said it is a form of arthritis. don't remember what he called it or if it is coincidental to the EBV.