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Epstein Barr Virus (EBV) Message Board
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Old 10-15-2007, 03:17 PM   #1
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Join Date: Sep 2007
Location: Dunedin,Fl USA
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indra23 HB User
ebv,des

i wonder if there is a pattern with the ebv, and all forms of lupus. i too have ebv. sometimes my titers are normal and sometimes high.i am also a des daughter,which has now proven to be multi generational, not exclusive to gender. my youngest son also has ebv. both sons have swollen, red achy joints, and even though they are grown i insist on full blood panels yearly.the oldest also has mild cp,his joint pain gre so bad he was put on celebrex with great relief,until they pulled it off the market. he will take advil now, and an ultacet maybe twice a year. i have had great month, and taken full advantage of it.i have taken up my meditation again with more focus then i have had in a long time. i know to have gratitude for this month. it has been three years since this has happened. i truly wish this for all of you, i know how precious it is. reading alot of your questions about bloodwork, i started with very high ra titers,it took 3 years for positive ana,and it comes and goes. sle seems like playing musical chairs. anyone else out there a des daughter/son? love always,indra

 
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