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Old 10-18-2007, 08:24 PM   #1
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EBV Antibodies.

Hi,

During the last week of August, I came down with a serious case of hives. My doctor sent me to an allergist. The allergist sent me to get a lot of blood work done. The blood work shows that I have antibodies for EBV. What exactly does this mean?

In the mean time, the allergist has done numerous scratch tests to find out why I am getting hives. Everything is coming up normal. My allergist finally said to me that it is possible that my hives are being caused by the EBV. No one that I have talked to has heard about hives being a symptom. Does anyone here know if they are a symptom of EBV?

P.S. I am also hypothyroid. That happens a lot in people with EBV also.

 
Old 10-19-2007, 10:01 AM   #2
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Re: EBV Antibodies.

from what i searched it came up with Epstein-Barr Virus
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Last edited by Twinklez81; 10-19-2007 at 10:03 AM.

 
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Old 10-19-2007, 04:47 PM   #3
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Re: EBV Antibodies.

Quote:
Originally Posted by Twinklez81 View Post
from what i searched it came up with Epstein-Barr Virus

I was asking what exactly does it mean to have antibodies for Epstein Barr? Does that mean that I once had mononucleosis? Also, are hives a possible symptom of Epstein Barr?

 
Old 10-19-2007, 09:59 PM   #4
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Re: EBV Antibodies.

it means that at one point in time you were at least exposed to it. You may not have necessary been infected with it (ie had symptoms of it) but at some point in your life your body mounted a defense against it. This doesnt mean that you have the virus now either. You would need to have the mono test, ie the spot test, to see if you currently have it. If you dont have any other symptoms of mono (extreme fatigue, fever, etc) then you likely do not have mono now.

 
Old 10-27-2007, 11:00 AM   #5
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Re: EBV Antibodies.

I went to the doctor again on Thursday. He tells me that he believes that the reason I am getting hives is because my body is reacting to the antibodies from the EBV.

 
Old 11-03-2007, 10:16 AM   #6
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Re: EBV Antibodies.

Hi! I have CFIDS, FMS and an unidentified thyroid problem I'm going back to an immunologist, but expect no answers what so ever. I did this a few years ago when I started breaking out in hives, no one knew why. I am always on allergy and asthma drugs, but I was only allergic to ragweed. Something strange was going on. I hadn't had that kind of rash and hives since I had active mono back in 2002. I figured there might have been a link, immunologist said something about me having an autoimmune disease...

After getting worse and worse, I finally got a diagnosis, although docs don't agree. I got frustrated and saw a CFIDS & FMS doc, who diagnosed me this summer. CFIDS patients typically have very high viral titers. I had high EBV, HHSV6 to name two. While it's not an active infection, the immune system is out of wack. I don't think any doc has an answer to what these high titers mean. One doc says I just have Chronic Epstein Bar. Some say there is nothing you can do. Some help find a treatment to make you feel better. There are antivirals that help EBV, but again, that is up for debate, as it doesn't work for everyone. I would recommend finding a CFIDS specialist in your area to get blood work done. They might be able to find a treatment that will help calm down your immune system.

Keep a log of when they happen, what time of day, what were you doing, what you ate beforehand. I tried to detox my insides (cleanses and detox teas) and skin (detox soap, unscented lotions) and switched over to green cleaners. I tried to remove potential triggers one at a time--detergents, etc. It kept my hive/rash flare ups from being "as bad," but I still get them. When I see that a flare is starting, I immediately go on benedryl.

Good luck! I know it is frustrating (and scary).

 
Old 11-04-2007, 12:06 AM   #7
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Smile Re: EBV Antibodies.

Quote:
Originally Posted by kyra33 View Post
Hi! I have CFIDS, FMS and an unidentified thyroid problem I'm going back to an immunologist, but expect no answers what so ever. I did this a few years ago when I started breaking out in hives, no one knew why. I am always on allergy and asthma drugs, but I was only allergic to ragweed. Something strange was going on. I hadn't had that kind of rash and hives since I had active mono back in 2002. I figured there might have been a link, immunologist said something about me having an autoimmune disease...

After getting worse and worse, I finally got a diagnosis, although docs don't agree. I got frustrated and saw a CFIDS & FMS doc, who diagnosed me this summer. CFIDS patients typically have very high viral titers. I had high EBV, HHSV6 to name two. While it's not an active infection, the immune system is out of wack. I don't think any doc has an answer to what these high titers mean. One doc says I just have Chronic Epstein Bar. Some say there is nothing you can do. Some help find a treatment to make you feel better. There are antivirals that help EBV, but again, that is up for debate, as it doesn't work for everyone. I would recommend finding a CFIDS specialist in your area to get blood work done. They might be able to find a treatment that will help calm down your immune system.

Keep a log of when they happen, what time of day, what were you doing, what you ate beforehand. I tried to detox my insides (cleanses and detox teas) and skin (detox soap, unscented lotions) and switched over to green cleaners. I tried to remove potential triggers one at a time--detergents, etc. It kept my hive/rash flare ups from being "as bad," but I still get them. When I see that a flare is starting, I immediately go on benedryl.

Good luck! I know it is frustrating (and scary).

Thanks Kyra. It is very frustrating and scarey. Last Tuesday I got an attack of hives so bad that I thought I was going to have to go to the hospital. Luckily, I had the antihistamines that the allergist gave me and I took one. It helped to calm the hives down so that I didn't have to leave work. So far, the rest of the week has been quiet for me. My allergist tells me that I may actually be allergic to the EBV antibodies in the blood. I am not satisfied with the allergist that I have and am in the process of looking for a new doctor. I will try to find a doctor that specializes in CFIDS.

Last edited by Hoopa7p; 11-04-2007 at 12:07 AM.

 
Old 11-06-2007, 08:25 PM   #8
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Re: EBV Antibodies.

Hi Hoopa....

When I start to get hives I take benedryl. You really have to be careful that your thoart doesn't close up on you...I had lots of problems with hives..but not as much since I have been treated for 8 years now for Lyme. And since I had HIGH off the board titers for EBV and CMV the doc that I see now put me on antivirals. You might give that a try.

Some reading you may want to do is Dr. Martin Lerner. Or docotor Shoemaker. From what I understand that even if you have (herpes) EBV and CMV in your system with no flare ups it can still cause a lot of problems...

Might be worth a try...

Good luck to you...


 
Old 11-07-2007, 08:26 PM   #9
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Re: EBV Antibodies.

Quote:
Originally Posted by jojo View Post
Hi Hoopa....

When I start to get hives I take benedryl. You really have to be careful that your thoart doesn't close up on you...I had lots of problems with hives..but not as much since I have been treated for 8 years now for Lyme. And since I had HIGH off the board titers for EBV and CMV the doc that I see now put me on antivirals. You might give that a try.

Some reading you may want to do is Dr. Martin Lerner. Or docotor Shoemaker. From what I understand that even if you have (herpes) EBV and CMV in your system with no flare ups it can still cause a lot of problems...

Might be worth a try...

Good luck to you...


Thanks, JoJo. I am going to look for a new allergist. The one I have now has not even suggested antiviral medication. When I get an outbreak of the hives I take the antihistamine that the doctor perscribed but it works slowly.

 
Old 11-21-2007, 07:53 PM   #10
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Re: EBV Antibodies.

Hy,

ever since my infection started I had such "hives" (call it a rash or whatever) on my back. Where have you got it ?

 
Old 11-21-2007, 09:04 PM   #11
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Re: EBV Antibodies.

Quote:
Originally Posted by Oliver25 View Post
Hy,

ever since my infection started I had such "hives" (call it a rash or whatever) on my back. Where have you got it ?


A lot on my forearms and my back. Some appear on my stomach and my thighs. They are very large welts. They are itchy at first but they tend to get sore with a lot of heat coming off them. They also make me very fatigued. I have been to two different allergists who can not seem to find out what is causing these hives. I was not happy with the second allergist. It was a female and I thought the female would be a little more understanding since I am also a female. She spoke to me for almost 1/2 hour, asking me many questions. I got the impression that she thought that these hives were the very small ones you get when you eat too much of a particular food. She did not expect to see the tennis ball sized welt on my forearm when I lifted my shirt sleeve. Even after seeing that, she did not recommend any type of medications. She never requested a blood test and the best thing she could say to me was to take Claritin every day and to take the perscribed antihistamine (the one the first allergist gave me) as needed. Both say the EBV antibodies are a possibility, as well as a hormone disorder but neither have recommended any antiviral medications nor have they referred me to an endocrinologist or a doctor that specializes in autoimmune disorders. I am at my wits end with doctors who can't diagnose or even know how to refer out anymore. Are you having the same trouble?

Last edited by Hoopa7p; 11-21-2007 at 09:12 PM.

 
Old 11-21-2007, 10:11 PM   #12
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Re: EBV Antibodies.

Well I am in Austria .. and believe me, it's even worse here.

My rash reaches from shoulder to shoulder all over my back and there are some scattered spots on my arms. I have some fungal infections in my crooks, but this rash is negative on tests and also it doesnt react to fungicides. Yet that rash started along with my symptoms and a neutropenia that is also closely correlated to the symptoms.
Strangely, the rash allways gets better when I have a flu. But a flu can also normalize the white blood cells and diminish my symptoms. That is not so unusal for CFS. A possible explanation could be the activation of the immune system caused by influenza interfering with Herpes Virus'es ability to impair the immune system.

To give you an example of our austrian doctors fitness:
I went to a practitioner with big red spots in the crooks. He told me that this was probably auto-immune and prescribed me cortisone. I asked if it couldnt be a fungus, but he denied decisevely.
Months later I went another gp, the same story. But on my request he sent me to dermatologist. Guess what? Same story!
Later on I just tried an antifungal ointment - and it went away (at least for a few months). Then I had it tested, et voila: "malassezia furfur"

These people are morons! And as far as CFS is concerned, most doctors havent even heard of it, and the rest is sure to know that its a mental disorder..

 
Old 11-21-2007, 11:06 PM   #13
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Re: EBV Antibodies.

You would think that the doctors would know how to diagnose and treat Epstein Barr and CFS, especially since 90% of the population of the United States have the antibodies for EBV when they reach adulthood. My next step is to find an Endocrinologist on my own since I am also hypothyroid. I understand that one problem can lead to the other.

 
Old 11-22-2007, 04:53 AM   #14
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Re: EBV Antibodies.

Hello,

You might want to read up on Dr. Martin Lerner, and Dr. Shoemaker....

Dr. Lerner does take patients

My doctor is also a researcher on Epstein Barr and other virus's, bacteria (s), ect....He is in Sacramento Calif.

There are a handful of doctors that know how to treat these nightmare of body invaders....

Have a great day!

Hugs


 
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