Hello, Thank you for checking out my post.
I started researching chronic active epstein barr virus infection (CAEBV) after having several repeated mono-like symptoms (high fever/sore throat, extreme fatigue, etc) since last summer. My doctor seems unconcerned after diagnosing me with 'mono' but after reading many of your posts I understand I am going to be affected by this for a long time.
Anyhow, from Asian medical papers (I'm Asian), I learned that for severe cases, they treat patients with chemotherapies and bone marrow (or stem cell) transplant over there. (Success rate is about 30%.) They are also experimenting with harvesting patient's own healthy T-cells and injecting them back after culturing them. So it is treated much like leukemia. I haven't found any mention of such treatment here in US (except for translated medical papers), and I was curious if anyone has ever heard of treating CAEBV this way. I think people on this forum are more knowledgeable. Has anyone read or heard of this being done in US? For those who have been diagnosed with CAEBV, what has been your treatment that worked?
Thank you in advance for any comments you may have.
P.S. I am switching to another doctor and intend to get tested for other viruses after gaining knowledge on this forum
- thank you.