juju-bee

i'm so glad i read this. i have an 18 year old son that is so very ill. i too, have much respect for parents of terminally ill children.

he was first diagnosed with bronchitis and possible pneumonia. when his throat swell shut i rushed him to e.r. they gave him an iv of fluids and prednisone. this is when his blood test came back with mono.

he had another steroid injection on monday, and is currently taking prenisone orally (which is very difficult to get done). his kidney and white count are elevated. the doctor did a throat culture to rule out possible strep. she also prescribed a strong antibiotic incase it is positive.

we are on day 12. his fever broke 3 days agao. he is up thru the night complaining of head/neck/body aches and sore thoat. he is so very ill. it is very frightening because he is not getting better. it must take a lot of time. we see the doctor again tomorrow.

i am so worried and exhausted. i cannot amagine caring for a small child with this. you both must be exhausted and worried sick. my heart goes out to both of you. i hope your children are well soon.

thank you for your post, it helped me gain a little knowledge to this very, very debilitating illness.

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chronic back, shoulder, neck, arm pain and numbness. fatigue, dizziness, fainting, low blood pressure, hypothyroid, hypoglycemia, tenderness thru out body. polycystic ovarian disease.
l2/02:mri central disc protrusion at L2-3 (4mm) & L3-4 (4-5mm) with right paracentral disc prtorusion at L4-5 (5mm) & l5-s1 (4mm) causing mild central canal stenosis, osteoarthrosis is also noted at L-4-5 and L5-S1. There is mild neural foraminal stenosis at these levels.
4/03 diagnosed with fibromyalgia/chronic fatigue;
5/03 c1c2-c3 3mm disc protrusion.
8/03 quit work after 32 years; piddling around the house; love to garden, but kills me for days following