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Epstein Barr Virus (EBV) Message Board
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Old 12-05-2008, 08:30 PM   #1
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Boslee2008 HB User
New here, need help with EBV test results

Hi guys, the doctor already told me that this appears to be a "past" infection, but I wanted to see if anyone here thinks any differently having been to doctors for this yourselves. My results are below. Have I been infected with EBV?

Also, if that is the case, is it true that I can't get it again? I actually have a friend who has full blown Mono right now and I am debating visiting with him only if it is impossible for me to catch what he has. I NEVER got "mono" from EBV before. I was just told, on a routine visit, that I had past exposure to EBV, and wondering if it contributed to the 10 months of unrelenting fatigue I experienced. So if I DID get it, I got lucky by not getting full blown mono. Here are the results. Any help would be greatly appreciated:

EBV CAPSID Ag.Ab/IgM 0.31 NORMAL
EBV CAPSID Ag.Ab/IgG 2.85 HI
EBNA Ab/IgG 2.78 HI
EBNA Ab/IgM 0.39 NORMAL
EBV EARLY Ag.Ab 0.42 NORMAL

< or = 0.90 NEGATIVE
0.91 - 1.09 EQUIVOCAL
> or = 1.10 POSITIVE


That's it. So, from that, I have no idea. I'm just listening to the doctor. Thanks again

Rich

Last edited by Boslee2008; 12-05-2008 at 08:32 PM.

 
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Old 12-13-2008, 12:46 AM   #2
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Re: New here, need help with EBV test results

Nobody? Nothing?

 
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Old 01-02-2009, 07:44 PM   #3
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ktross51 HB User
Re: New here, need help with EBV test results

Hi,
It looks as though you do have a past infection. It isn't active right now. I have chronic active EBV, diagnoised in 1991. I know that not all labs use the same test, but looking at your numbers, which are low, indicateds you had it in the past.
My numbers are in the thousands, depending on my symptoms. I use to go in for testing, but now I know my body so well I know it's the EBV rearing it's ugly head. I have a lot of other underlying illness's too, which don't help. Stress is the number one set off for me, and lack of enough sleep. My body reguires at least 9 hours per night with an afternoon nap. I am on ssdi because I can no longer work. Diet plays a huge role. Eat vegetables, protein, lot's of fiber. I am very sensitive to dairy, wheat, gluten, no suger of any kind. I hope this has helped in some way.
Take care,
Kate

 
Old 01-04-2009, 04:13 PM   #4
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Valtitude HB User
Re: New here, need help with EBV test results

I, too, have recurring EBV. For me, it's the trigger for Chronic Fatigue Syndrome (CFS). Here's what I know about EBV ...

I first got sick as a teenager, with a "mono-like virus" in 1975!! I was bedridden for eight weeks. My mother panicked and made me get out of bed to go to school and work. My lymph nodes were swollen for more than a year.

It took until the late 1990's before I was fully diagnosed and treatment (from various areas such as medicine, nutrition, spiritual wellness etc) began to have a positive effect.

The illness disabled me in 1993.

My doctor said if he'd been in charge of my case when I first got ill, he'd have counseled my mother to allow me to stay inactive until my lymph nodes went down - COMPLETELY!

There one particular lymph node under my chin that swells up when the EBV flares up. I call it my "EBV Indicator".

My EBV flare ups vary in intensity and happen around the clock and around the calendar. EBV is a herpes virus, therefore, it does flareup again for everyone who's ever had it.

In the U.S., 90 to 95 percent of the adult population (over age 21) has been exposed to EBV. Most people do not get ill from it - they think they've caught a cold. The same thing happens when the virus reactivates later on.

For those of us who got ill with EBV, the older you are when you first get sick, the sicker you'll get. For example, as a little kid, you might have symptoms of a bad cold. As a teenager, you have mononucleosis and have to take it easy for several months (or if you're like me a year wasn't long enough!) I know of a grad student, age twenty-four, who was hospitalized for two weeks she got so sick.

Older people can get very ill with EBV, although I can't figure out how they manage to avoid exposure earlier in life. Persons with AIDS can die from EBV.

Like the other person who wrote in on this topic, my doctor (who is a member of the Centers for Disease research group for CFS) used to check my EBV numbers. He even checked the DNA of the virus in my system! MY EBNA titers (the less than <, greater than > numbers) would stay at ZERO for long, extended periods of time - much longer than normal. My numbers haven't been looked at for years ... we pretty well know what's going on with me.

Your numbers seem infinitesimal to what mine were - which is a very good thing! If/ when your EBV flares up again, you'll probably think you've caught a cold ... you're lucky!!

If you have that unrelenting fatigue happen again, as you did for ten months, GET TO THE DOCTOR WHILE YOU'RE SICK!

I played a very dumb game with myself about seeing doctors ... I'd tell myself I was too sick to get out of bed and into the doctor's office. So, I'd wait until I felt better (not well - just better). DUMB, dumb, dumb! Once the doctor's saw how sick - "sick" was for me, they began to take this illness of mine very seriously! Don't do what I did. Drag yourself out of bed and go see your doctor when you are sick!

I don't worry about catching EBV from anyone else ... I have concerns about being around a friend of mine who has AIDS, when my virus is flared up. I've known him for twenty-five years - so it's just me worrying, probably for nothing. My friend was exposed to me, and my EBV, years before he got sick with AIDS.

Hope this helps somewhat. Hopefully you were pretty ill once and that will be the full extent of it! Don't worry about it, or over-think it, either!

Take your friend a bowl of chicken soup and a box of Emergen-C, then go have fun doing whatever you love to do!

Be well and happy! Good luck!

 
Old 01-06-2009, 08:45 AM   #5
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ladybugmandy HB User
Re: New here, need help with EBV test results

boslee,

you may indeed have CFS as i do. i have had it for 16 yrs following an EBV infection.

my antibodies are even lower than yours but the specialist i see (dr. a. martin lerner in MI) treats with valtrex (if you have EBV alone) and/or valcyte (if you have CMV and/or HHV6).

i have not had sustained improvement yet but am hoping as i am very very ill.

best of luck
sue

 
Old 01-12-2009, 03:38 PM   #6
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ANGELINMICHIGAN HB UserANGELINMICHIGAN HB User
Re: New here, need help with EBV test results

Hi, I live in Michigan and somebody else told me about this same doctor (unless it was you, it was on a different board maybe under Epstein Barr). I read up on this doctor and I might try to get an appt. I am so confused about what I have and have been told for years that I have Epstein Barr, CMV, Chronic Fatigue Syndrome, Myofascial Pain, TMJ and yes the oh so wonder "Fibromyalgia". I am in Chronic Pain and have been for approx. 9 years. I have done everything and been everywhere to try and figure out what to do for all of this pain. Do you think I would be a good candidate for Dr. Lerner? By the way, do you know if he takes insurance or do you have to pay as you go. Thanks Lyn in Michigan

 
Old 01-29-2009, 06:16 AM   #7
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ANGELINMICHIGAN HB UserANGELINMICHIGAN HB User
Re: New here, need help with EBV test results

Ladybug Haven't seen you on here in a while, how are you feeling.

Lyn

 
Old 02-06-2009, 05:51 AM   #8
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precious49 HB User
Re: New here, need help with EBV test results

Hello all,
I'm new to this board. My Dr. that I have now has done tests for Chronic Fatigue Syndrome as I fit almost all of the symtoms. I've had this problem since 1980 and just now have a Dr. that believes it's real. I've researched for all those years and I'm the one that asked her to test me. I've had those tests with other Drs. and none of them came up with anything. I'm waiting on her research because my test was so strange. This has caused me to loose a good job and many years of frustration. I hope that I can get some good info from those of you that have this diagnosis. Thank You. precious49 God Bless You and Yours Today and EveryDay

 
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