Re: My Sister has Chronic EBV
Hi, i just joined this site about 15 minutes ago to find information for myself - my numbers are almost exactly what hers are. My doctor said, "just rest and we'll test you again in a year." Which is BS, i've had this since Nov. '07 and can't handle just sitting around waiting to get better anymore. He also tells me that my numbers don't mean much but i just have to gauge how i feel (diagnosed with Chronic Infectious Mononucleosis and CFS)... Some doctors don't even believe it can be chronic... It's all very confusing
But i don't know any back information on him yet (like i said, just starting to look). Good luck to your sister. The hope i have is in the words my doctor said "Yes, it's chronic. But i've never met a 90-year-old with mono either."
We have to be in charge of our health and do what we can. Be healthy, educate ourselves and stay positive. i am a believer that negativity and fear/anxiety/stress can eventually manifest in physical ways and that this is what happened to me. i've already been doing self-work on the mental/spiritual/inner-thoughts aspect and now it's time to also branch out to finding a doctor who will be more proactive than, "rest, take some vitamin C and i'll see you in a year"
This is long, sorry. Anyway, here are some supplements that have really helped me:
_ Coconut oil (PURE, organic, unrefined, extra virgin...)
_ DMG (this stuff is awesome. i use FoodScience 125mg Pure DMG - you disolve it under your tongue)
_ Mushroom complex of Maitake, Reishi and Shiitake
_ TONS of vitamin C - like 10,000 - 12,000mg a day (BUT it tears up your stomach so take it with food and slowly build it up, i can only do about 4,000mg of C-Plus Citrus Bioflavinoid Caps right now)
Make sure to cross-check anything she takes naturally with any prescription drugs because even natural herbs/etc. can interfere with some meds (kind of like how St. John's Wort can interfere with the pill)
Last edited by moderator2; 03-10-2009 at 10:32 AM.
Reason: please do not post doctor's websites, as per the rules