Please tell me more. I have been sick since 1983 with what was finally diagnosed as CFS in 1985. I got better, even though I never felt really good. In the last two years, I've relapsed big time. If you have time, please tell your story with symptoms, etc.
i got mono (EBV) in 1992. immediately after the acute phase, i started noticing some flu like symptoms were remaining. then, i noticed that i could not think as clearly and was forgetting things. i could no longer process information or learn like i used to. i also had a lot of neck pain and fatigue. i was convinced i had an infection but no one believed me. they said i was just depressed.
to make a long story short, i had to drop out of university and learn to live with the illness because no local doctor i saw was able to help me and few even believed in the disease.
eventually, about 3 1/2 years ago, my condition had deteriorated to the point where i could not get out of bed and could barely remember the year. my life had become unbearable and i seriously consdered suicide many many times.
at that time, my wonderful mother agreed to use her savings and send me to the US to seek treatment (i live in toronto, canada). i saw 2 doctors in NYC, one of whom told me there was no hope for me to recover because too much time had passed. i had a nervous breakdown.
then, i went to see dr. a. martin lerner in beverly hills, michigan. he had the disease himself for 8 years before he found out what to do. he has found (as i am sure many CFS patients have always suspected), that the epstein barr virus (and possibly other pathogens) remain active in some people and need to be treated with antivirals and/or antibiotics.
if you have been sick a long time like me, it can take years to get well - but you CAN get well IF you stick with the treatment and have A LOT of patience.
Last edited by moderator2; 03-21-2009 at 08:54 AM.
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Hi Sue, I myself see a doctor also that treats with Antivirals. I knew I had these herpe critters in my head. I remember going to doctors over and over and they tell people EBV, and any other herpe are not that big of a deal...That it is something we all have and people need to learn to live with them. ugh!!!!
I have been on antivirals, thyroid meds and other supplements now for a few years and dependning on each indiviual and their body, (DNA) is how quickly one responds.
When a person goes to a doctor and all they want to say is live with it...Then pack up your things and head to a different one.
I have tried telling people about what I have learned and I feel to many people think there is no hope. So I stop talking about it.
The doctor/researcher/scientist I see looks outside the box for different protocols. I thank God that I finally found a doctor that is like this.
It isn't all about just one thing your body has contracted, when we become ill with a viral or bacterial problem our bodies break down and then open to many more.
Thank you for bringing this up. I am thrilled for you that you are seeing the doctor you are seening. I have read about him. He sounds awesome!