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Old 02-03-2004, 08:56 PM   #1
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lillorlor HB User
Post macular scar

I am 20 at the moment and I lost most of my eyesight when I was 19. I was visiting the eye doctor for a routine eye exam when I covered my right eye and I just saw a big black blur where I was supposed to see some letters. They asked me what I saw and I said nothing. I couldnt really believe what I was seeing, and everyone was questioning what the problem was. My doctor then looked more closely and discovered something. I had no knowledge about anything at this time so I had no clue what was goin on, but I was very upset. I called my mother on my cell and told her something was wrong and that she needed to come in. Meanwhile everyone was home for lunch so they all heard the news from my mom and were also upset. They sent me right away to a retina specialist and gave me a test called fluorescein angiography where they injected vegetable dye into my vein and took some photographs of my eye. They then told me that I had a central macular scar in my left eye that is not treatable. I was devastated! So now it has only been a year since that horrible day, but it seems like a lifetime. My peripheral vision is good but my depth perception isn't that great. I am told to look at an amsler grid daily with my good eye. Its pretty hard dealing with the fact that I have something wrong with me when just a year ago I was fine. I always thought that nothing bad could ever happen to me, but I was wrong. I have been so depressed, and lost a relationship because of it. I know eventually I will begin to deal with it but it has been pretty hard knowing that my problem cant be fixed and that I just have to live with it for the rest of my life. All I can do is go on with my life and hope that this doesn't happen to my good and only eye.

 
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Old 02-04-2004, 06:42 AM   #2
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Torre HB User
Re: macular scar

Hi: Do the doctors give any cause of the scarring? Had there been bleeding in that area? The chances of your good eye's being affected depend on what caused the scarring in the first place.

I have central scotomas in both eyes. As long as you have central vision in one eye, you'll be all right. People who are completely blind in one eye can usually get a driver's licence. So, I guess I'm saying "chin up" because it could be a lot worse.

Do not think that this condition will be for life. You are young. There is no telling what medical procedures will be developed in your lifetime for retinal repair or transplant.

Good luck.
Torre

 
Old 02-04-2004, 12:17 PM   #3
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lillorlor HB User
Re: macular scar

Thank you for replying Torre. No the doctors havent given me any good reason why. They said it could of been caused by a virus that i might of had or just because of my nearsightedness. When my problem was discovered there was just a scar, no bleeding, so it was too late to know what might have caused the scar. I was thinking of getting a CT scan and a blood test. But it is all just so stessfull and upsetting still, and i dont know if i could deal with aother problem. What is central scotomas? I would like to know more of your story if u dont mind. Best wishes to you

 
Old 02-04-2004, 12:40 PM   #4
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mikael26288 HB User
Re: macular scar

It sounds a lot like what I have in both my eyes. A virus called Histoplamosis, it is caused by bird or bat droppings, and you can have it for a decade or more and not know it, before it does any damage. When I lost my central vision in my left eye, before it happened again in my right, it used to drive me crazy, but after a while I couldn't tell I had no central vision in my left eye, unless I closed my right eye. You might want to look Histoplamosis up on the internet and see if it sounds like what you have. I have had it since 1982 and again in 1988, I have not let it get the best of me. Keep looking at your grid every day, if you notice a change of vision, beat feet to your eye doctor, they can use laser to stop the bleeding in your eyes. Which is the way histo damages your eye sight.
Mikael

 
Old 02-04-2004, 08:41 PM   #5
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Torre HB User
Re: macular scar

Lillorior:

Scotoma is a fancy way of saying blind spot.
I have 'em in both eyes, but I don't have scarring. Doctors don't really know what's wrong with me.
Vision problems are scary and it's easy to get depressed, but it doesn't do any good. In the "there's always somebody worse off than you" category, I'd be thrilled to have your one good eye.

As Mike said, check your Amsler grid. And try not to dwell on the negative.

T.

 
Old 02-05-2004, 05:19 PM   #6
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Torre HB User
Re: macular scar

This is for Mike.

A small correction about histoplasmosis. It's caused by a fungus rather than a virus. When I was researching every eye condition under the sun to see what I had, I was interested in that one because I used to keep hens and clean out the coop. Apparently, 80 to 90% of people in certain areas of the US have been exposed to the fungus, but symptoms are usually mild or non-existent. You were just one of the lucky ones, eh?

Anyway, I wanted to ask you if the laser procedure used is the new Visudyne treatment or still the old photocoagulation laser treatment?

Torre

Last edited by Torre; 02-06-2004 at 11:30 AM.

 
Old 02-06-2004, 05:44 AM   #7
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mikael26288 HB User
Re: macular scar

Torre, you are right, fungus not virus. I had forgotten that. I had the old photocoagulation laser done on my right eye. I was in the military stationed in Germany when I noticed the sight change, they had to medivac me to Walter Reed Hospital in Washington DC. That was November 1988. It left me with a blurred spot right below my central vision. 1982 christmas eve all my central vision went at one time, in my left eye. March 2003 the histo spot changed shape a faction of a inch, ruining what good vision I had left, in my right eye. The other times were wet (bleeding) changes, but in March it was a dry change. By the time I noticed the change, there was nothing they could do for me. I really used the Amsler Grid, a lot. My computer back ground on my desk top, was an amsler grid, I had one in my wallet, one on the bathroom mirror, also one on my refrigerator and next to my TV. lol But lucky me, I now have cateracts in both my eyes also. lol

 
Old 02-06-2004, 11:11 AM   #8
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Torre HB User
Re: macular scar

Hi Mike:

Ain't life grand?

I've got cataracts too, but they're not bad enough to have removed. Aren't streetlights and car headlights a blobby mess? Don't know how much of that is the cataracts and how much is the lack of central vision.

T.

 
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