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Old 12-03-2005, 10:45 PM   #1
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Question mishaped pupil

I would like to know if anyone suffers with this condition my pupils are irregular,Also dont react to light causing bad headaches.Dotors are confussed to what it is i am under a nuerologist they were thinking it was M.S and have been treating me for this for some time now.But now to dry eye and mouth and combanation of other problems think it is sjogrens.I wear sun glasses all the time in summer and winter.I have had a test to see how fast my brain reacts to my eyes and it shows delays.CAN ANYBODY WITH THIS PROBLEM HELP

Last edited by suziewong; 12-03-2005 at 10:46 PM.

 
Old 12-04-2005, 10:58 AM   #2
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Re: mishaped pupil

There may be these two possibilities for you irregular pupils :

1) Argyll Robertson Pupil : Small, irregular pupil that does not react to light but does react to accommodation.

Localization is to the midbrain and the cause is neurosyphilis. The pupil's better response to a near than to a light stimulus is because the lesion involves the more dorsally-located fibers that subserve the pupil response to light and spares the more ventrally-located fibers that subserve the pupil response to accommodation.

2) Coloboma of the iris is a congenital (present since birth) defect of the iris of the eye. It is visible as a hole, split, or cleft in the iris. Colobomas of the iris may appear as a black, round hole located in or adjacent to the iris (colored portion of the eye). It can appear as a black notch of varying depth at the edge of the pupil, giving the pupil an irregular shape. It can also appear as a split in the iris from the pupil to the edge of the iris.

This information could br shared with your Doctors as possible causes for your signs and symptoms.

Good luck.

Eyes.

Last edited by twoeyez; 12-04-2005 at 11:01 AM.

 
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Old 12-15-2005, 04:51 AM   #3
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Re: mishaped pupil

Hi thanks for your posting i have had tests for the ARGYLL PUPIL all normal they are both irregular and small.my dad had the same problems as me for years and they couldnt find anything wrong but like his dad before him went on to have a stroke he was paralised for 10 years before having another which ended on him in a coma for 10 days before dying he always said dont let the doctors dismiss this problem. i am unable to tolerate light i need sunglasses now even when i go out with my hubby in the car at night due to on coming head lights.i have had a visual feild test and shows outer vision problems also evoked potential test abnormal in both eyes.i have tried the net for answears without finding anything the doctors just keep putting me on steroids but they dont know why? They do know its my optic nerve.its so annoying as you would think doctors would know these days.I also have a combanation of other medical probs that i see nuerologist for and first thought M.S then sarcoidosis,now sjogrens.I also had at one time pressure in my head measured 34 when i beleive it should be 16, i was put on water tablets.my blood test shows antibodies for smooth muscle probs i dont know what this means? I am also waiting to see nueropsycologist due to memory probs.Doctors think what ever i have is affecting short term memory.AS i get lost on my own and forget to do things like putting salt in oven and forgetting how to turn tap off i thought it funny at first now frustrated.I can not cross road on my own due to fear as when i look down and then back up i can not see for a few seconds it makes me unable to go out alone.

Last edited by suziewong; 12-15-2005 at 05:11 AM.

 
Old 12-15-2005, 06:43 PM   #4
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Re: mishaped pupil

Your multiple neurological problems are way beyond me, but I'll just throw this out anyway. You say you had high cerebral-spinal fluid pressure. Was it retested? There's a condition called pseudotumor cerebri that is caused by high CSF pressure. It damages the optic nerve and causes headache, among other things. It's possible you don't have a single syndrome that is causing all the problems--maybe it's a combination of different conditions. I'm curious about your CSF pressure anyway.

Torre

 
Old 12-15-2005, 11:19 PM   #5
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Re: mishaped pupil

Hi no i havent had it tested again since 2002,can this problem cause lightsensative and also when i watch tv the mouths of people seem destorted,i have alot of headaches.also pain down side of face.what i can not understand is my blood tests come back normal except some smooth muscle antibodies ? although other test on my cf came back showing oliigolionical bands at one time,also mri showed empty sella syndrome? i have looked this up and found that it said about being over weight well i might be a little bit i weigh 9stone 10lb and my height is 5ft 2inch,but i dont think to over weight. these have showed up in my eyes,leakage from discs,atrophy of iris,papilloedema,bilateral optic neuropathy,opaque over lower hemi-thorax these are what i have read on differant med records as i asked for the records of my nuero specialist which is a very good doctor in his feild, but still no answears, and can not understand records now any way.sorry another thing it says is optic nerve head drusen?colour albinisum these are the reasons the doctors keep giving me introvenace steroids. i must mention long before this started i have not been able to walk far due to very sever pains in my legs on walking this started afer having daughter 13 years now.i had her very prem due to water infection although i was on antibiotics due to infections and only having one kidney.thankyou so much for your help,

Last edited by suziewong; 12-16-2005 at 04:10 AM.

 
Old 12-16-2005, 04:22 AM   #6
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Re: mishaped pupil

With your test results showing so many sighs and symptoms in and around the eyes, a Neuro Ophthalmologist might want to be considered with your
Neuro Specialist.. (eyes,leakage from discs,atrophy of iris,papilloedema,bilateral optic neuropathy,optic nerve head drusen?colour albinisum,) Also, the pituitary gland is partially surrounded by a bony structure called the sella turcica. Normally, it is visible during a CT scan or MRI. In empty sella syndrome, the pituitary gland is not visible -- either because it has become flattened or has shrunk. The pituitary gland is in location just below the optic nerves at the optic chiasm.

I realize that some of this is somewhat technical,however,you seem to have a lot of information about your case,so this may still be of use.

Keep your "head up", and good luck.

Eyes

Last edited by twoeyez; 12-16-2005 at 04:24 AM.

 
Old 12-16-2005, 06:28 AM   #7
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Re: mishaped pupil

Thank you so much but do you know what causes it to become flattened or shrunk,i dont know if you are a doctor although you seem very able to answear so many eye probs i am persuming this is your feild,i am not sure we have a neuro opthemologist at my hospital i travel 40 miles to see nuerologist i live in uk and a place called preston is the nearest nuero hospital to me.Do you know if this can cause all my other symptoms or will they be seperate probs,i have seen a eye specialist at preston but think he is for all eye probs not neuro,i have also had tests were they injected me with some thing caused everything to go yellow even my urine for couple of days i dont know what that was for,i know i sat hours waiting for the drops in my eyes to do something to my pupil so doctor could see but they didnt work my eyes dont react with them either.i have also had biopsey of my eye which dont think showed anything.think that was to rule out sarcoidosis.i have just received a letter i need to see neuropsychology dept in feb due to memory loss.there is one thing i just thought of in 2002 i was meant to have a op under nuero doctor as they said something about having a flattened "tonsil" at the bottom of my brain they were going to lift my skull but when i woke they hadnt done it saying they decided to put probe in my skull which was still in when i woke measureing pressure also drain in lumber,then the nuero surgeon said that they dont think it will make a differance moveing my skull,thank you for any information you can give me.

 
Old 12-16-2005, 07:40 AM   #8
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Re: mishaped pupil

I am awear that National Hospital for Neurology and Neurosurgery, Queen Square, U.K., at Moorfields Eye Hospital, London, U.K. has a Neuro-Ophthalmology and Neurology department at the National Hospital. I'm sure your Neurology Specialist could consult with the Neuro-Ophthalmology department ot this Hospital in London. With all the signs and symptoms that your Neuro Dr. has gathered already about the eyes, I'm sure he/she is well trained in the areas of Neuro Ophthalmology. Try to have faith in all that your Neuro-Specialist is doing. Sometime it is like a puzzel, they have to make all the "parts" fit together. And it does seem to take time. I have always said that God is a great "time keeper".

"heads up"

Eyes

 
Old 12-16-2005, 08:34 AM   #9
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Re: mishaped pupil

THANKYOU,it is realy depressing when you have been having all these sympyoms for so many years with no answears,my doctors are good but i am worried because ny dad never got to know why he ended up paralised for 10 years and then died due to brain stem stroke.im just wondering now if pressure on the tonsil could have caused him also his dad the same to end up like that.my dad also had same eye probs you dont know how the cerebellum tonsil becomes flattened do you

Last edited by suziewong; 12-16-2005 at 08:42 AM.

 
Old 12-16-2005, 01:48 PM   #10
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Re: mishaped pupil

You had said that in 2002 you had nuero-surgery on "a flattened tonsil at the bottom of your brain". I can only tell you some general infomation about the parts of the brain involved : cerebellar tonsils - portion of the cerebellum located at the bottom, so named because of their shape;cerebellum - part of the brain located at the bottom of the skull, near the opening to the spinal area; important for muscle control, movement, and balance. Cerebrospinal fluid (CSF) - clear liquid in the brain and spinal cord, acts as a shock absorber. Chiari malformation - condition where the cerebellar tonsils are displaced out of the skull area into the spinal area, causing compression of brain tissue and disruption of CSF flow.

Undergoing Chiari surgery is tough. The goal of decompression surgery is too create more room around a malformation in order to alleviate any direct compression of tissue and to allow cerebrospinal fluid to flow unimpeded from the brain into the spinal area. This is accomplished by removing a piece of the skull, removing part of the top one or two vertebrae, sewing a patch into the covering of the brain, and for some surgeries, removing part of the malformation itself, the cerebellar tonsils.

Suziewong,I'm sure you have always had a big consern for your father and his father. However, you are the important person,NOW. Please know your Drs are doing their best to find all the "pieces "to your puzzel. I just hope by explaining some parts of the brain,you will be somewhat more self assured.

"Heads Up"

Eyes

 
Old 12-16-2005, 01:49 PM   #11
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Re: mishaped pupil

SuzieW: Gads, your list of problems goes on and on, doesn't it? I wonder if a geneticist could help. I suppose s/he needs to know what to look for though. I see a genetic ophthalmologist at a big hospital in a big city, but they are rare as hens' teeth.
The test with the yellow dye was probably a fluorescein angiogram. Did they photograph the back of your eye using a very bright light? If so, that was it.

Torre

Last edited by Torre; 12-16-2005 at 01:50 PM.

 
Old 12-16-2005, 11:28 PM   #12
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Re: mishaped pupil

HI thanx for some information on the brain issue,as for the yellow die yes they did take pictures that is what i can remember,i think that is why the drops were neede before hand but my pupils wouldnt respond,were i live in the uk there isnt many specialists that is why if need something more investigating then local hospital can do i am sent away,I have seen a genecist before and my family(daughters,and son} are under a study at the moment but not for this problem for rear kidney problems in family my eldest daughter was a potters baby which made her incompatable with life,i was born with three kidneys but two was diseased,my eldest daughter also as kidney problems,my sister who is not wanting to do study also had three kidneys,2 working 1 not.All my blood tests for this are helping studies in london hospital,i live the other end of england.I do wish my dad was still here maybe they could have noticed something that was related.I do trust my doctors and he is a proffessor in nuerology but it as been along time of not knowing.And i seem to be on tablets for ever but not knowing why and all the steroids they keep giving me can not be doing any good to my remaining kidney.All i get from the GP when i go is i think its to do with whats going on with your autoimmune disease but what one?? differant symptoms keep coming.the rest of my symptoms are on (sjogrens negative blood posting.)thanks for all information

 
Old 12-17-2005, 06:47 AM   #13
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Re: mishaped pupil

Curiouser and curiouser.

T.

 
Old 12-17-2005, 11:52 PM   #14
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Question Re: mishaped pupil

hi thats prob why the doctors find me so interesting at one point there was about 15 students wanting to look at my eyes said they havent seen anything like it.but still no answears,just steroids to stop me loseing my sight,i dont mind being a help to the students as long as i have answears.one i wish to know is how the tonsil on the brain becomes flattened,i am wondering if this could happen due to abuse ? i was in a very abusive relationship at one time and having my head banged on the wall was one thing which happened but i never had concusion,i was also abused as a child by my mum.dont know if this could cause the flattened tonsil or are you born with it but then again my symptoms would have started long before 26 wouldnt they? i am 39 now so 13 years is along time.

Last edited by suziewong; 12-17-2005 at 11:53 PM.

 
Old 12-18-2005, 07:24 AM   #15
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Re: mishaped pupil

Those are questions for your neurologist.
You do seem to have some rate genetic disorder, but whether that accounts for all the problems, who knows?

Good luck to you.

T.

 
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