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Old 05-30-2006, 11:59 PM   #1
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Question Recurrent Corneal Erosion

I have had this problem for about a month. My cat scratched my left eye. I am going to a corneal specialist. They have already done a debridement on my eye last week and today they are going to do the stromal puncture. I am curious to hear from others with this condition. I have been reading the posts and it seems like no one has had a procedure done. I find that my doctors believe it is necessary to try and control the problem as soon as possible. I really would like to hear from anyone with this problem and also anyone who has had the puncture procedure done. It is really torture to deal with the pain. I find myself almost living in fear of it happening. Thank you very much for any support you can give!
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Old 05-31-2006, 08:22 PM   #2
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Question Re: Recurrent Corneal Erosion

I went to the doctor today and he decided to wait and see before doing the ASP. If it cracks again then we will do it. Anyway, I posted earlier and would really like to hear from someone with rce. Also, I keep reading to warm the Muro ointment, but it burns when I put it in my eye so I keep it in the refrigerator and it has been much more comfortable to use.
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Degenerative Spondylosis, DDD, Arthritis, Spinal Stenosis, Bone Marrow Edema, etc...

 
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Old 06-01-2006, 07:25 PM   #3
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Re: Recurrent Corneal Erosion

Bumping up
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Feb.2003-ACD w/o fusion at C5-6.
Oct.2003-C4-5 disc bulging, C3-4 disc protrusion.
Degenerative Spondylosis, DDD, Arthritis, Spinal Stenosis, Bone Marrow Edema, etc...

 
Old 06-02-2006, 10:57 AM   #4
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Re: Recurrent Corneal Erosion

Hi SRoman, I suffered with RCE for 3 years before finally giving in and having stromal puncture done last Fall. Actually they did it 3 separate times over the course of 2 months. The doc wanted to keep a bandage lens in for 3 months after the procedure in order for the eye to heal but I still had erosions with the lens in place and unfortunately I got a blister under the cornea due to the eye being starved for oxygen with the lens in there. He took the lens out and I continued to get erosions but less frequent than before the procedures (it was happening several times/week and sometimes several times/night). It has now been several weeks and I'm hoping that things have finally settled down. I used Muro, both drops and ointment, for over 3 years and finally decided that it seemed to be making matters worse, so I started using Tears Naturale drops during the day and upon awakening at night before opening my eyes and I use Genteal Gel before bed and also each time I awaken. This seems to be working much better for me. The gel tends to crust on my lashes which helps to keep the lid shut at night.

 
Old 06-02-2006, 08:07 PM   #5
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Re: Recurrent Corneal Erosion

Thank you so much for responding. I got the impression that the stromal puncture usually cures this problem. From what I am reading here I am wondering if there is a possible cure.
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Feb.2003-ACD w/o fusion at C5-6.
Oct.2003-C4-5 disc bulging, C3-4 disc protrusion.
Degenerative Spondylosis, DDD, Arthritis, Spinal Stenosis, Bone Marrow Edema, etc...

 
Old 06-03-2006, 06:14 AM   #6
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Re: Recurrent Corneal Erosion

Quote:
Originally Posted by sroman127
Thank you so much for responding. I got the impression that the stromal puncture usually cures this problem. From what I am reading here I am wondering if there is a possible cure.
Hi Sroman -

There used to be a long thread about RCE on here with all kinds of hints and treatment methods, and stromal puncture was discussed heavily there - generally people don't like the stromal puncture.

Anyone who has had this knows what you mean about living in fear, but don't worry about not finding a solution - there are interventional techniques that will certainly work, and noninterventional things that might. For some with mild cases, non-interventional techniqes that you can read about here will work - they mainly involve techniques with drops, Muro, sleeping position, Doxycycline, etc. They won't work in the more severe cases, but can help. I think you already found the shorter thread (called "RCE"). For the time being, try those techniques while finding a good corneal specialist.

I had RCE for about four years, the last two of which were really bad (episodes at least 3-4 times a week, taking off most of the top corneal layer). I tried every noninterventional thing out there. Then I tried anterior stromal puncture (ASP) twice, which did not work. It has about 50% rate, but I think it really only works for mild cases as well. PTK laser surgery stopped it dead in its tracks for me, and I haven't had one erosion since. A good PTK surgeon would have probably 95% success with it, and 100% on a second try. A corneal specialist who does not do laser surgeries may not suggest it and only do ASP. Again, try non-interventional things until you find a good doc that you are very comfortable with.

A lot of what path you choose depends on your injury and severity, and how comfortable you are with interventional techniques. How deep was the scratch? How often are the erosions? Are they in the morning (most common) or anytime during the day? Was there infection? Are they getting better? Do you have a corneal dystrophy?

Good luck,
ebmd

 
Old 02-15-2007, 02:18 AM   #7
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eyepain no more HB User
Re: Recurrent Corneal Erosion

Hello
I am new to the board, but not new to the pain of cornea erosion. I have had this problem for more than 6 months and I was told yesterday that I will have to have out patient surgery? Do you know of anyone that might have had this done? I am in so much pain now that my eye was closed shut from all the tearing...

 
Old 02-16-2007, 04:26 PM   #8
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dizzyt HB User
Cool Re: Recurrent Corneal Erosion

I have RCE, but it is due to another medical condition, keratoconjunctivitis, that can not be cured. I've had it for 25years. The pain of this condition is some the worst I've ever had. I'd give anything to be able to have what I call "the majic numbing drops" that the eye doctor puts in

I hope you get relief, and hopefully a cure

 
Old 02-17-2007, 04:16 AM   #9
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ebmd HB User
Re: Recurrent Corneal Erosion

Quote:
Originally Posted by eyepain no more View Post
Hello
I am new to the board, but not new to the pain of cornea erosion. I have had this problem for more than 6 months and I was told yesterday that I will have to have out patient surgery? Do you know of anyone that might have had this done? I am in so much pain now that my eye was closed shut from all the tearing...
What kind of outpatient surgery?

I had both anterior stromal puncture (twice - and it didn't work) and PTK laser surgery (which worked like a charm). Both are outpatient, although with PTK you'll probably have to miss work for a few days. With the puncture, they poke a needle in the site of the erosions to make the surface a little rougher. With PTK, they do the opposite: Smooth the cornea down. PTK has a very high success rate (>90%) while the puncture is at best about 50%.

I had RCE for about 4 years, with the last year of it complete misery - I was having ~75% of my epithelium eroding away every single day. I'd get events any time of the day - while driving, eating dinner, sleeping, etc.
The day I had PTK was the last time I ever had an erosion, and that was 5 years ago.

Good luck,
ebmd

 
Old 03-07-2007, 02:31 PM   #10
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chuckcap HB User
Re: Recurrent Corneal Erosion

I had RCE since August 2006 off and on. My new doc want to try the puncture proceedure. I am wondering if I could request the PtK surgery and by pass the puncture. I don't want to deal with this issue for months and years...

Last edited by chuckcap; 03-07-2007 at 02:31 PM.

 
Old 03-07-2007, 03:42 PM   #11
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Re: Recurrent Corneal Erosion

Chuck,
when I first had my injury my doctor explained the possiblity of recurrent erosion and use of a laser (which I understand now is PTK) should they keep recurring. So far things have been going alright, if they should get worse I will definitely talk to him about that option. You are the patient, you do have a say about your treatment. After all I've heard from other folks, I wouldn't want to do anything less myself.

On a side note...funny thing, during a follow up visit--one of the assistants was a bit chatty and started talking about what treatment may have to be done. None of which was what the doctor told me directly. Good thing I do my homework, I could've been freaked out by the description the assistant gave!

Evie

 
Old 05-09-2007, 04:15 AM   #12
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salle47 HB User
Re: Recurrent Corneal Erosion

To all these threads: A question Am I right in thinking Corneal Erosion is Corneal Ulcer?
I posted a thread about my Corneal Ulcer, with no replies, so perhaps it is different or the discussion has been exausted. Anyway if it is the same, It is helpful reading these threads.

 
Old 05-09-2007, 08:43 AM   #13
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Re: Recurrent Corneal Erosion

They are two different things. The ucler is an infection. The erosion generally is an injury of the cornea by an object i.e. getting poked in the eye by something. The "recurrent erosion" is when you have suffered an abrasion and the cornea surface is weak and subsequent "scraping" of cells of the cornea occurs.

I'm going to guess that you can get RCE as a result of an ulcer as the cornea has been compromised. If you search the this board you will find posts referring to "corneal ulcer".

Hope that helps.

 
Old 05-14-2007, 01:12 PM   #14
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chuckcap HB User
Re: Recurrent Corneal Erosion

I am set up for my puncture proceedure tomorrow. My doc is confident it will likely solve and fix the problem. I am not looking forward to the pain.

 
Old 05-17-2007, 02:07 PM   #15
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Re: Recurrent Corneal Erosion

I just discovered this site and am extremely glad I did. I was just diagosed with rce a week ago and it has been unbearable. My doctor gave me Nevanac for the first few days to help with the pain, now I am using Refresh Tears 4+ times a day and Muro at night. I swear the pain is worse now than it was last week when I went to the doctor. My eye is also getting incredibly red in the white areas of the affected eye. Any suggestions on what could be causing this? It is getting progressively worse, along with my sensitivity to light. I have noticed that my night vision also seems to be worse. Is this common? I must admit that it is kind of disheartening to see how many people have struggled with this for years and years (I read the old thread), without finding much relief. However it is also good to hear the success stories. Thanks to everyone for sharing!

 
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