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Old 12-28-2006, 05:07 AM   #1
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HELLASRULES HB UserHELLASRULES HB User
Blurred Central Vision

Hi All
Haven't posted here in awhile, but needed to ask a question. Last week I had a tumor removed from my brain and the visual defect that I had originally which the docs all say is related to the brain swelling, is worse after the surgery.
But my question is this, since I've had so many retinal detachments etc in this eye (my GOOD right one) I'm nor sure the brain swelling is the cause of this blurring I see or it's something to do with the eye itself.
My symptoms started as a little sparkly multi-colored spot just left of my central vision. Now it's just very splotchy vision and the acuity has diminished a lot...to the point I cannot drive, read very much etc. I was thinking maybe it is macular degeneration or something like that. I have an appt with my eye doctor on the 5th and saw the eye doctor when this first started in Nov. but they couldn't see anything. But since it's worse now, I just don't know what to think.
The tumor was in my occipital lobe, so it's possible it's all related to that. But I freak about my eyes, and not being able to see has stranded me since I have no family around.
Any thought on this vision thing? What does macular degeneration looks like from the patients point of view...and would it progress in 1 1/2 months to this bad vision?? (From 20/25 to 20/70) Does it happen that fast?
The eye doctor in Nov couldn't do a dye test for MD because my pupil doesn't dialate anymore and they wouldn't be able to see anything.
Any thoughts on this would be great!
Thank You.
Hellas (aka Faith)

 
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Old 01-07-2007, 08:24 PM   #2
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Re: Blurred Central Vision

Hellas! I;m sorry no one answered you because you have helped me and others. How are you? What is going on with your eyes? I hope you haven't been diagnosed with MD. Let us know.

 
Old 01-08-2007, 09:53 AM   #3
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Re: Blurred Central Vision

I too am sorry to hear of your difficulties and sorry I cannot offer any constructive input.
I'm praying for you as I type.
Was the surgery otherwise successful?
A very quick Internet search indicates that lesions (which could include the cut of a surgeon's laser or knife) in the occipital lobe can cause "visual hallucinations and illusions" similar to what you describe.
Has your doctor told you what to expect (visually) at this point in your recovery and in the future?
Keep us posted.


P.S. I just noticed that you posted this over a week ago (when I had family visiting). So sorry I missed your poste. Glad Cher caught it.

Last edited by seriousperson; 01-08-2007 at 09:55 AM.

 
Old 01-08-2007, 09:34 PM   #4
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Re: Blurred Central Vision

I think your problem must be related to the surgery. Can you get to a good retinal specialist? I don't inderstand why your eye isn't dialating, Is that a result of the surgery? Maybe you just need time to heal becuse I remember when I had my bypass surgery, right before I had some really bad visual problems and then right after it had improved slightly but not much. I had been on a heart/lung machine and that can cause severe visual problems.It took awhile, but my vision did improve. Now that I have had cataract surgury, I have lost my close uo acuity and now have to use strong glasses plus a magnifying glass which I carry with me.
But don't despair! I was at my wits end and my vision has always gotten better after the surgeries, it just takes time.
Let us know how you are doing. I so understnad your fear at losing acuity. It is so scary and the outcome isn't always known. But stick with your doctor, he knows best. I couldn't drive for awhile before the cataract surgery, they told me I was legally blind. But I am driving again. Hold tight and things will get better. Oh and there is oftentimes swelling after surgery which will remedy itself too with time.

 
Old 01-08-2007, 10:35 PM   #5
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Re: Blurred Central Vision

Cher, good point on the swelling. Let's hope that is the cause of Hellas current visual problems and that it will improve with time.

 
Old 01-09-2007, 10:32 AM   #6
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Re: Blurred Central Vision

Hi Hellas. So sorry about your problems. Could the fact that your eye doesn't dilate anymore account for some of the poor vision?
I'm afraid I can't be of much help, but I do also get the sparkly, swirling spots in my vision. I think they are caused by neural activity, but whether it's in the brain or the retina is hard to distinguish. I have a sort of retinal dystrophy and I develop new blind spots from time to time. They start as this swirling pattern. Often they fade away and are not permanent. As far as MD goes, there are many types, so it's impossible to say. The two most common types--dry and wet--are in the former case, slow to develop, and in the latter caused by bleeding. I would doubt either of those types would advance so quickly.
At any rate, how did the appointment on the 5th go?

 
Old 01-11-2007, 08:34 AM   #7
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Got An Amsler Grid?

I'm sure you know about the Grid you can keep on the wall to test about MD. Ask for one at your eye doctor's if you don't have one. Or google and print out one.

You put on your glasses, close one eye, and stare at the dot in the middle. All the squares should be square, not wavy, as mine was temporarily about 3 wks after having a capsulotomy for secondary cataract, the clouding that happens with debris from cataract surgery. I forgot to take a look today, but expect it'll be almost okay. I was exhausted from Christmas shopping, don't know if this would have been a normal part of healing. Good luck.

 
Old 01-23-2007, 06:40 PM   #8
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Re: Got An Amsler Grid?

hellas im sorry to here about your vison i have nothing to ad only that you and ellen grace are in my thoughs and prays. i can not write much because i am so tired from rehab today.
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Old 01-23-2007, 06:44 PM   #9
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Re: Blurred Central Vision

Quote:
Originally Posted by HELLASRULES View Post
Hi All
Haven't posted here in awhile, but needed to ask a question. Last week I had a tumor removed from my brain and the visual defect that I had originally which the docs all say is related to the brain swelling, is worse after the surgery.
But my question is this, since I've had so many retinal detachments etc in this eye (my GOOD right one) I'm nor sure the brain swelling is the cause of this blurring I see or it's something to do with the eye itself.
My symptoms started as a little sparkly multi-colored spot just left of my central vision. Now it's just very splotchy vision and the acuity has diminished a lot...to the point I cannot drive, read very much etc. I was thinking maybe it is macular degeneration or something like that. I have an appt with my eye doctor on the 5th and saw the eye doctor when this first started in Nov. but they couldn't see anything. But since it's worse now, I just don't know what to think.
The tumor was in my occipital lobe, so it's possible it's all related to that. But I freak about my eyes, and not being able to see has stranded me since I have no family around.
Any thought on this vision thing? What does macular degeneration looks like from the patients point of view...and would it progress in 1 1/2 months to this bad vision?? (From 20/25 to 20/70) Does it happen that fast?
The eye doctor in Nov couldn't do a dye test for MD because my pupil doesn't dialate anymore and they wouldn't be able to see anything.
Any thoughts on this would be great!
Thank You.
Hellas (aka Faith)
__________________
breathless

 
Old 01-23-2007, 07:10 PM   #10
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Re: Blurred Central Vision

hi hellas i,m sorry to hear about your vison. i keep you and ellengrace in my prays. do you still have someone with you ? i can,t write much i feed really tired tonight i had rehab. and it just wipe me out. i don,t know much about M/D i will ask lots of questions when i have my next app. i do have dry M/d and my vison is get bad it been 18 months and i know iwill have new glasses.i kind of no how it feels not to drive. i have been taking buses and cab to go to the store. thats a chore so i can only get a few items . i can only handle two . good nite and my god bless you .
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Old 01-24-2007, 08:52 AM   #11
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Re: Blurred Central Vision

Pidypat: Did you ever think of looking into computer-ordered groceries and delivery? I think it's fairly common now and would have to be cheaper than a cab.

 
Old 01-24-2007, 11:36 AM   #12
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Computer-Ordered Delivered Groceries

Quote:
Originally Posted by KeelaC View Post
Pidypat: Did you ever think of looking into computer-ordered groceries and delivery? I think it's fairly common now and would have to be cheaper than a cab.
That sounds like a good idea.

Maybe they nicked your optic nerve or a blood vessel or something when removing the brain tumor, Hellas? You've notified the tumor surgery people? Maybe they've had the problem before and know just what to do, but the eye people wouldn't know anything about the brain. I don't think I'd wait even one more day.

I saw sparkly halo's just one night, on the way home from my first capsulotomy, light poles looking like sparkly trees, so I didn't think to ask at my checkup what had caused that, it was so brief.

If the surgery people don't help, I'd ask around about the best-known specialists and get their opinion. If anyone complains about you going somewhere else, which I don't think they would, you could say you couldn't get a prompt appointment and also wanted a "second opinion". Sounds like an emergency.

Good luck. Saying prayers for you. Keep us posted when you can.

Last edited by Eagle; 01-24-2007 at 06:09 PM.

 
Old 01-24-2007, 06:48 PM   #13
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What Part of the Country Are You In, Hellas?

I googled "Eye Damage from Brain Tumor Surgery" and found one example in the resulting links, of someone's cranial nerve being harmed, but the actual artical is so long I never did find that in it or what they did about it. We might be able to help you more if we find out approximately where you are. You don't have anyone living with you but is there someone who'd read things for you and make notes?

Guess you know, If you're running XP, you'll probably want to type Settings into Keyword, and click large or extra large fonts instead of small, and there's Narrator, which I never have used, but Narrator and Magnifier may mess up your settings in some ways and you get disoriented. Likewise with iZoom, for me, people at the Issist forum couldn't get it to turn off. From Start you can Uninstall.

The bottom of my screen was all blacked out so I just had to click approximately where there should be an X. Browser tool bar too. I managed to get them to turn off after 5 min. of nonuse, but all the icons on my orange desktop are highlighted in blue as if they've just been clicked. An error msg gets you to a Microsoft How to Fix, but I didn't get it, right after my last capsulotomy, hate tech things anyway.

 
Old 01-24-2007, 06:54 PM   #14
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Surgery Damage to Some Nerve?

Quote:
Originally Posted by KeelaC View Post
Hi Hellas. So sorry about your problems. Could the fact that your eye doesn't dilate anymore account for some of the poor vision? Q from Eagle: Did they tell you why it no longer dilates and is this just since the tumor surgery?

I'm afraid I can't be of much help, but I do also get the sparkly, swirling spots in my vision. I think they are caused by neural activity, but whether it's in the brain or the retina is hard to distinguish.

I have a sort of retinal dystrophy and I develop new blind spots from time to time. They start as this swirling pattern. Often they fade away and are not permanent. As far as MD goes, there are many types, so it's impossible to say. The two most common types--dry and wet--are in the former case, slow to develop, and in the latter caused by bleeding. I would doubt either of those types would advance so quickly.

At any rate, how did the appointment on the 5th go?

Last edited by Eagle; 01-24-2007 at 06:55 PM.

 
Old 01-25-2007, 07:58 AM   #15
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Re: Blurred Central Vision

I'm concerned that Hellas hasn't been back to this thread.

 
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