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Old 06-28-2007, 11:29 AM   #1
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uveitis: has anyone else experienced it?

I had been having problems with terrible headaches and problems seeing out of my left eye. I originally thought it was a migraine and then considered that my AMPPE might have returned. I had been diagnosed with that 5 years earlier. I made an appt with my retina specialist who told me that I had arthritis in my eye!!! I could not believe it! Arthritis, in an eye?? Well he told me that it is systemetic and might be indicating there is something else wrong with me. He ordered numerous blood tests to rule out rheumatoid arthritis, etc. I guess the question I am asking is if anyone else might have experienced something similar to this and might give me some insight.

Thanks for taking the time to read this post.

Terry

 
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Old 06-28-2007, 06:03 PM   #2
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Re: uveitis: has anyone else experienced it?

Arthritis and other auto-immune conditions are commonly related to eye inflammations (uveitis, iritis, etc.) In the case of rheumatoid arthritis, your body is having a systemic reaction against itself and its pretty common that that reaction shows up in the eye.

 
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Old 06-29-2007, 08:34 AM   #3
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Re: uveitis: has anyone else experienced it?

Terry, as you probably know, there is a wealth of info on the net about uveitis. Although it's often traced to a recognizable immune disorder, it is often...what's the word for no known cause?...idiopathic. If memory serves, there will be recurrences in about 40% of cases. So, you may, or may not, get it again.
My daughter had the anterior type--iritis--affecting both eyes when she was 31. It cleared up with steroid drops but returned within six months. Since that time (2-1/2 yrs) she has not had another bout. Her bloodwork was all ok for RA, etc.

So, let's hope your case is a one-off. And I hope you are being treated by a uveitis specialist.

 
Old 06-29-2007, 09:32 AM   #4
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Re: uveitis: has anyone else experienced it?

squatchimo,

Very true..I did read about that on the web. I have certainly been doing research on this and saw that it could be an indicator of ra. Thank you for your response.

Keela,

Thank you for that. I have read a lot on the web since I like to know what I am dealing with. I have other health issues going on right now as well so I can search pretty well. You are right, there is a lot of information out there. Thank you also for sharing your experience with me. It does make me feel a bit better to see that high of a percentage of it not recurring. I cannot really see out of my eye right now, I do not know if it is because of this or the scar he saw on there. I will be happy however when the horrible headaches go away. They are as bad as migraines and I have been getting them everyday.

Thank you again.

Terry

 
Old 06-29-2007, 10:00 AM   #5
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Re: uveitis: has anyone else experienced it?

Keela,

Oh, and I am sorry I do not know if he is a uveitis specialist but he is a retinal specialist. I guess I need to start calling around for one?

Terry

 
Old 06-29-2007, 04:54 PM   #6
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Re: uveitis: has anyone else experienced it?

Quote:
Originally Posted by TLValiant View Post
Keela,

Oh, and I am sorry I do not know if he is a uveitis specialist but he is a retinal specialist. I guess I need to start calling around for one?

Terry
A retinal specialist should be able to handle it, depending on the severity. Most uveitis and iritis cases are really fairly easy to control, its just that they have a tendency to recur.

 
Old 06-30-2007, 03:31 PM   #7
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Re: uveitis: has anyone else experienced it?

squatchimo,

Thanks. He did put me on cortisteroid drops to try and bring the inflammation down. I am hoping that helps. I am going to go get the bloodwork done next week.

Thank you again.

Terry

 
Old 07-01-2007, 08:38 AM   #8
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Re: uveitis: has anyone else experienced it?

Steroid drops will typically take care of it. If your bloodwork reveals some underlying systemic problem, your doctor can address it and hopefully prevent recurrance of the uveitis.

 
Old 07-07-2007, 08:55 PM   #9
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Re: uveitis: has anyone else experienced it?

I just joined this board, so I apologize for the time that has elapsed since you first posted your question. I just felt that I needed to emphasize to you the importance of following up on what's causing your uveitis. I woke up on December 26, 2006, with a painfully swollen and red eye. I had never experienced this before. Since that date, I've had recurring problems with this eye, and my vision has deteriorated from 20/20 to the point that just last week I was only able to read the large "E" on the eye chart in the eye doctor's office. Over the course of these past months, I've had blood tests and a variety of other tests. The blood tests proved negative for rheumatoid arthritis, but my eye doctor sent me to a rheumatologist anyway because of my elevated sed rate and crp. I've been diagnosed with psoriatic arthritis and am currently taking methotrexate to try to stop the damage this disease is causing my eye. I've only been taking the mtx for four weeks, so we'll see. I'm sorry this is so long, but my biggest concern for you is that you certainly have to stay on top of the problem in your eye or you could possibly risk your vision. I don't want to sound like an alarmist, but believe me, it's something you can't ignore. Hope this info is helpful to you.

 
Old 07-08-2007, 02:52 PM   #10
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Re: uveitis: has anyone else experienced it?

Thank you conya for your reply. I have to admit I am a bit worried since I can hardly see out of my eye right now. It does not seem like the drops are working. I have these bright flashes, as well as blurs in my eye. The doctor said it does not seem to be vision damaging but I beg to differ. I honestly feel there is something more going on and I hope the blood tests will show something. I go back to the see the doctor on Tuesday.

Thank you again!

Terry

 
Old 07-12-2007, 02:24 PM   #11
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Re: uveitis: has anyone else experienced it?

I apologize for not posting sooner but have been a bit busy...I got some good news and some bad news at the doctors office. My uveitis is starting to get better which is good, but the flashes have gotten worse and something else was found in my eye. I cannot remember what it was but he did give me some oral prednisone to assist. Also one of my blood tests came back positive, the ANA or anti nuclear antibody test. It came back 1:160 with a homogenous and speckled pattern. The doctor considered this a faint positive and is usually indicative of lupus. He did not seem concerned however and told me I should folllow up with my doctor if I thought I needed to. That upset me a bit of course. I go back in 2 weeks to see if the steroids help my eye. I did call my regular doctor's office and he wants to see me tomorrow. So I guess we shall see.

Thank you all again for your support and assistance.

Terry

 
Old 07-26-2007, 09:21 PM   #12
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Re: uveitis: has anyone else experienced it?

I hope this finds you doing better by now, Terry. I just returned from my two-month check-up at the rheumatologist to find that the methotrexate I'm taking is slowly working. Dr. increased my weekly dosage, tho, because my crp isn't coming down as quickly as she'd like it to. Have you been to a rheumatologist yet? I hope you're finding some answers.

 
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