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Old 12-16-2001, 04:57 AM   #1
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Location: Columbia, Md., USA
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sonny HB User
Post pattern dystrophy

I have Pattern Dystrophy of the Retinal Pigment Epithelium, which has caused total permanent central vision loss in one eye. Does anyone else have this, and where have you gone for treatment and information?

 
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Old 12-16-2001, 05:35 PM   #2
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Moe C HB User
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Sonny:

Sorry, can't help with info about Pattern Dystrophy, but I'd like to ask you some questions, if you don't mind.

I have some sort of retinal dystrophy (they haven't figured out just which layer yet) with a central scotoma in both eyes. I'm curious if other people with blind areas get a lot of activity in those areas -- e.g. oscillation, moving swirling blobs, lights, black spots, etc. Do you have any visual phenomena? I have a "flash-bulb" effect when I go from light to darkness. Will PD affect your peripheral vision?

I hope you're eating very well and taking supplements. There doesn't seem much else to do until gene therapy becomes a reality.

Moe

 
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Old 08-06-2005, 09:46 AM   #3
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smoolet HB User
Cool Re: pattern dystrophy

Hello I know your message is old but I to have pattern dystrophy and have to attend moorfield eye hospital every year, I still have most vision in both eyes but worry about the future, healthy living is the only answer and even the experts cant say exactly where its going all patients are different but the hospital at moorfields is excellent, June.

 
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