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Old 01-10-2002, 06:22 PM   #1
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Question Coping with a macular hemorrhage?

I was recently diagnosed with a macular hemorrhage. I have a dark cloud in my eye and am having trouble focusing. Does anyone have any tips on coping with this? All the info I can find is on macular degeneration and it's not all that helpful on how to live with altered vision. I'm scheduled for a new therapy soon, hoping for the best, trying to prepare for the worst. Appreciate any info/advice. Thanks!

 
Old 01-11-2002, 03:54 PM   #2
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dlanlud:

What is your prognosis? How long have you had the hemorrhage? Sometimes the blood from a retinal hemorrhage will be reabsorbed with no lasting problem. Even when it is not, laser surgery can remove the clot. If you have leaking blood vessels, Visudyne treatment might be able to help. So, I'm not clear as to whether this is a permanent problem.

I'm not sure what kind of visual aids would be of use when the loss of central vision is in one eye only. Wouldn't you just rely on your good eye? I'm not being smart - I have no central vision in either eye. Maybe you can provide some more info.

Moe


 
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Old 01-11-2002, 06:47 PM   #3
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Moe - it's been just over 3 weeks since I noticed my eyes weren't working right. Visudyne therapy is scheduled in 4 days. The Dr. seemed pretty positive until they injected dye & did a series of photographs - the percentages of "restored vision" he'd mentioned went way down when he saw that the hemorrhage was right in the center of my vision. I'd love for the therapy to just put everything back to rights, but am starting to think that isn't very realistic (the more I learn). I know I am relying on my good eye more. I've noticed a sensitivity to light, problems with glare, depth perception is off - it's like some new unpleasant surprise is in store every day. From my perspective, it's like I just can't quite manage to bring everything into focus - like my glasses need changed. I was just wondering what people have done to make things more comfortable for themselves - how they cope. How do you? Do you read using your peripheral vision or ??? I really appreciate hearing from you. -d

 
Old 01-11-2002, 08:48 PM   #4
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I've had 3 laser surgerys for a series of macular hemmorhages, only in one eye. It also was in the center of my right eye. At first my vision was all messed up. I'm a doctor who does research, so I use a microscope alot. With it being my right eye, I've had to switch a few things. Like the microscope, cameras, guns, anything with aim, binoculars. Really, after a bit, it's suprising how your other eye takes over. It's been 10 years now and I can't really remember how it was to see out of two. I still have peripheral vision. I don't need any special aids and it's never happened to the other eye. I don't think about it much anymore. The only annoying thing is if bright lights shine in my eye as with oncoming traffic, the light stays bright where the scar tissue is for a longer period of time.

 
Old 01-13-2002, 07:14 PM   #5
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D:

There you go - an answer right from the horse's mouth from somebody with the exact problem.

Let's hope the affected area does clear up in time. If not, you will get used to using the good eye predominantly. The brain just needs time to adjust. Your depth perception will improve also. Sensitivity to light is a major problem for me, but I've gotten used to that somewhat. It's caused by the cones which are clustered in the centre of the eye and see in bright light not working. That leaves the rods to deal with light they aren't designed for. It's like turning on a light after your eyes have become accustomed to the dark. All the rods see is glare. I have to turn the brightness way down on the computer screen. I use a magnification programme (in Windows accessibility) to enlarge words enough to read them. I focus above the line I am reading. You'd be amazed at how much we read by the "look" and context of a word. I can read fine until I come to an unfamiliar word (usually a name), then I'm totally stumped.

I don't think magnification would benefit you, though, because you can focus with your good eye.

Anyway, hope the procedure goes well and you surprise the doc with a stunning recovery.

Moe

[This message has been edited by Moe C (edited 01-14-2002).]

 
Old 01-17-2002, 08:56 AM   #6
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I had my 1st Visudyne procedure on Tuesday afternoon. The Dr. said any improvement would be gradual, so I'm waiting (and staying optimistic). It helps to know that if you all can adjust, so can I. I am feeling much more positive that while this is serious, it's not going to keep me from earning a living or doing the things I enjoy. Thanks very much for all the info.

 
Old 01-31-2002, 02:05 PM   #7
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To dlanlud: Do the drs. know what caused your macular hemorrhage? I had one about 3.5 years ago in my left eye. I have extremely high myopia (-13 or 14) and because the retina is so stretched, the eye essentially cracked and bled. I am 39 yrs old now; the sight has not been restored in that eye. I have peripheral vision but the centre is blocked by a moon-shaped black spot. My other eye is still good, but I have many floaters as well. The drs. believe this happened after I had my 2nd child,from the pressure of labour, etc.

However, before this all sounds like awful news, I have a full time job working with computers and do things like cross-stitch and other crafts. You do adapt to the bad eye, however it can be very trying at times. I hope and pray every day that my good eye remains so.

If you have risk factors for hemorrhage, this is some advice I received from my retinal specialist:
do light exercise, no high impact such as aerobics or jogging
monitor blood pressure
be careful you don't fall.

I wish you the very best and if you want to talk more please post here.

 
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Old 02-07-2002, 04:56 PM   #8
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boyzmom - The Dr. said people with severe myopia (me, too) tend to have these hemorrhages (for the reasons you describe). He also mentioned that the fungus histoplasmosis, found here in the Midwest, is thought to play a role. About a week and a half after the Visudyne treatment, I noticed a marked improvement in my vision. My trouble spot was clear and only slightly distorted - I could almost read through it. The past few says, though, the distortion is getting worse again. It's tiring to struggle to keep things in focus. I do a lot of data analysis and technical writing for my job and found I needed to turn both the brightness and contrast of my computer monitor way down. Glad to hear you can still do crafts - I enjoy handicrafts, too! Thank you for the tips. I've noticed that a hat with a dark bill or a wide brim is helpful in reducing the glare in brightly-lit rooms. I also had several overhead lights disconnected in my cubicle. Right now, that's all the tips for coping that I can offer. I would be happy to continue hearing from you. -d

 
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