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Old 06-10-2003, 04:38 PM   #1
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happyeyes HB User
Post ocular rosecea

I'm new to the boards and am really glad to have found this site. I'm newly diagnosed with ocular rosecea. I am terrified as to what this may mean for me in the future. My doctor has me on Blephamide and I don't know if I'm more afraid of the Blephamide causing glaucoma or the rosecea robbing my eyesight if it goes untreated. Have any of you used Blephamide for extended periods? Is there anyone out there that has had ocular rosecea for any period of time? What can I expect? Again, I'm terribly frightened about this diagnosis.

 
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Old 06-10-2003, 08:30 PM   #2
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I don't really know much about ocular rosacea. But since blephamide is part steroid and you are rightfully nervous about using it, make sure that your eye dr checks your eye pressure often. That way if it does increase your pressure, you catch it early and can come right off of it.

 
Old 06-11-2003, 07:00 AM   #3
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Thanks for your reply, Purple. I'm calling my dr's office right now to get an appointment to have my pressure checked. It helps to know that I'm not "off base" about this drug.

 
Old 06-11-2003, 07:25 AM   #4
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Hi happy, can you tell me what your symptoms are with this?? Thanks!

 
Old 06-11-2003, 04:48 PM   #5
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Hi, Yellow. At its worst, before I sought treatment or even realized what I had, it was like a severe inflamation of the eyelids, worse on the interior upper lid. In fact, even a red bump formed up under the eye lid. It is still there but since using the steriod drops, it's much better. My eyes get red and feel weak and a stye formed on my lower lid. It has not gone away (3 months) even with the eyelid hygiene routine (twice a day clean with baby shampoo with q-tip). But the very worst (scary) symptom is that when I wake up in the mornings, I can hardly get my eyes open. In fact, it scares me so much, I wake up every couple of hours during the night, just to make sure I can still open my eyes. As I understand it, no known cause, no known cure but if left untreated, in extreme cases can damage the cornea and cause blindness. So I'm torn between balancing risks. Not to mention, I'm now starting to show signs of rosecea on my face, but so far, that's very mild. Sorry to be so long winded.

 
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