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Old 11-20-2007, 07:03 AM   #1
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Kenalog Injections For Cystoid Macular Edema

Has anyone had Kenalog Steroid Injections in your eye for
Cystoid Macular Edema swelling and if so how did it work for you and how long after did your vision improve and also do the injections ever have to be repeated?

Thanks...Sharon

 
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Old 11-30-2007, 10:21 AM   #2
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Re: Kenalog Injections For Cystoid Macular Edema

Hey, Dancin', I've been looking for you, to ask all about epithelial membrane. I've had a Kennalog injection in each eye and the protection has lasted a long time, over a year. No pain. They used the numbing drops about three times before she did it. In one eye I felt the squirt, not painful, and nothing in the other eye. I could only tell by how she was talking that she was done.

Did you have a Peel for your membrane and are you healed yet?

At the place you said you originally were going they are awfully sensitive about your going for a second opinion if they're delaying treatment so long it worries you. You just shouldn't tell them, but a very very nice man I had to consult to overcome a tech's misdiagnosis naturally wanted to use a big laser and wasn't as painless as the woman specialist I usually see. I'm afraid they may even have violated my patient privacy by scaring the opthalmologist near me where I went in to order new distance glasses.
When I'd walked into a tree branch and got a scratch, he wrote on my chart, "Significant Retinopathy". I had to with apologies leave the nice man retina specialist and ask my regular to finish the job. The tech had tried to tell me a blood vessel rupture was just a floater, and she's gone now for some reason, but even after I figured out she probably put floater on my chart and wrote a letter last year about my concerns, it was still about a year before I got these 4 sessions where the laser tells them before they reach 1000 burns, each session. Did get some miraculous improvement in my better eye, from 20/50 to 20/40 with glasses!

Techs can goof things up at dental offices too, and everywhere. Sometimes they think patients know nothing or they could fix their own eyes, I guess.

And my retina doctor is teaching a seminar somewhere, Kresge I think, early Wed. mornings when I usually have my appointment, so she didn't have time to talk much this time, just delayed my new angioraphy (?) dye test to allow a couple more months of healing. The man Dr. and a man tech both told me about the membrane, but I don't know if it's "basement", and if another Yag would take care of it. She probably wants to do a vitrectomy for scar removal and like that, but I know I couldn't sleep on my stomach, not for a minute, much less 6 wks., if it involves a gas bubble and face-down healing. I'm probably borrowing trouble, but like to be prepared, don't like surprises at my age.

Let me know how you're doing. I've thought about you often. Will be looking for Hellas too.

Last edited by Eagle; 11-30-2007 at 10:23 AM.

 
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Old 12-01-2007, 02:55 PM   #3
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Re: Kenalog Injections For Cystoid Macular Edema

Hi Eagle

I had a vitrectomy October 2006 for an epiretinal membrane (macular pucker) where they peeled back the membrane. I did not have a bubble and did not have to lie in a head down position at all. My vision in the right eye actually has not improved that much.

Dr. A said it was one of the thickest membranes he had ever seen and a few months ago he said some of the membrane still remains and he was considering repeating the surgery to get the rest of the membrane. Now the last time I saw him which was a couple weeks ago he has changed his mind about the surgery and suggested I have the Kenalog injection which is suppose to have good results in getting the swelling down in your eye which I also have from the cystoid macular edema.

The drops I had been talking for a long time did not help much with the swelling. Hopefully the steroid injection will help with the swelling. If It does I should notice an improvement in my vision. I go for that on January 3rd. Did the injections improve your vision? Also do you ever have to have the injection repeated or does it last forever?

Last edited by Dancinboots; 12-01-2007 at 02:56 PM.

 
Old 12-01-2007, 04:12 PM   #4
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No Gas Bubble/Face-Down Healing? Thanks!

Quote:
Originally Posted by Dancinboots View Post
Hi Eagle

I had a vitrectomy October 2006 for an epiretinal membrane (macular pucker) where they peeled back the membrane. I did not have a bubble and did not have to lie in a head down position at all. My vision in the right eye actually has not improved that much.

Dr. A said it was one of the thickest membranes he had ever seen and a few months ago he said some of the membrane still remains and he was considering repeating the surgery to get the rest of the membrane. Now the last time I saw him which was a couple weeks ago he has changed his mind about the surgery and suggested I have the Kenalog injection which is suppose to have good results in getting the swelling down in your eye which I also have from the cystoid macular edema.

The drops I had been talking for a long time did not help much with the swelling. Hopefully the steroid injection will help with the swelling. If It does I should notice an improvement in my vision. I go for that on January 3rd. Did the injections improve your vision? Also do you ever have to have the injection repeated or does it last forever?
Taking your last paragraph questions first, I think they can repeat Kennalog if needed, but I haven't, and it may have been more like two yrs now than "over a year".

Is your right eye your worst one, and the one with the thick membrane?
Same with me although mine may not be very thick. I'll probably have a hard time finding out anything about it. I've been wondering if they could do a Yag procedure, like capsulotomy after cateract surgery, looked it up on the internet and sometimes they can, something about a "basement" epithelial membrane. I haven't been able to find what that means. Is that what you have?

Actually, if it's no longer covering your pupil, are they just worried about it causing traction and maybe detachment, reason they want to get it all? In your shoes I really think I'd want another opinion. You'd have to think about do you want to keep it secret or ask/tell.

Did you have a saline solution after your vitrectomy, reason you didn't have to do face down?

I phoned the office to ask, and was told there's no simple answer in my case because she'd be doing the vitrectomy for more than one purpose.
You didn't have scar tissue to be removed, right? Think that would make a difference?

Do they always give you plenty of the numbing drops? At least three times? If you needed four you could probably ask for them. Then the Kennalog is great for macular edema, or it was for me. People are sometimes a little different. It sure works for me. So glad we can help each other like this.

At one office a tech had got it into her head that you only give numbing drops once, and the treatment was so painful I had to ask him to stop. Men I think sometimes think they've got to use the biggest lasers there are. I heard about one doing some damage, they were able to repair at UM, told her he'd used too big a laser. This guy I tried had cut his power down two or three times. Suggested I could go to a hospital. I knew the woman doctor could do it painlessly, or 98% painless.

I don't go back until the end of Jan. so can't ask if my vision got better after Kennalog. I THINK it was just for swelling, which I guess clouds your vision somewhat. So does letting your b.p. get too high or your blood glucose. At my appointment with her this past week, my right, worst eye vision was 20/100 with glasses, but a couple days later back to 20/80. I'd eaten something salty, usually don't.

Let us know how your Kennalog comes out, and thanks again for the news I may not have a gas bubble.

 
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