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Old 08-26-2008, 04:46 PM   #1
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Pterygium *Update*

Hi, I am reposting my original post along with an update at the bottom. I would just update the original one, but I can't find it. Still learning how these boards and threads work. Thanks for understanding.


Original:
I am writing this in hopes of letting people know that there is hope and there is something you can do. I am 24 years old and live in Orlando, Florida. I am a teacher and this was my first year teaching 1st grade. July of 2007 was the first time I went to an eye doctor to get my eyes checked out because I noticed a bump on one of them. I was living in Michigan at the time and went to 2 doctors but neither of them knew what it was. It was very apparent that they were worried though because they called me multiple times once I moved to Orlando to make sure I was going to get my eye checked out. The third doctor I went to was in Orlando and immediately knew what it was; pterygium. He gave me some a bunch of drops and recommended me to a specialist.

So I went to the specialist who just kept me on drops. After months on the eye drops I lost hope because my eye just kept getting more red, more inflamed, and more noticeable I started to get depressed. I wanted something to be done to fix it. I didn’t want to be on eye drops forever and going to the doctors every 3 weeks to get a check up. So I did my research and found out that there was an option… surgery. So I asked the specialist and she told me no that I shouldn’t get it done, that I should continue the drops because the pterygium would just come back after surgery. I was crushed. She acted like it was even silly for me to ask. Yet here I am barely being able to make eye contact with people because I had become so self conscious. I don’t know how many of you deal with 5-6 year olds daily, but I will tell you they can be brutally honest. I had one girl tell me that she was nervous to look at me because my eyes scared her. I had other students ask me daily what was wrong with my eyes. I asked the specialist again and she said she performs the surgery but wouldn’t recommend it for me because I am so young so it will come back. She wanted to put me on an eye drop regimen that would calm it down. Well, I was already on predaforte and nothing was happening + I knew that I couldn’t be on drops for the rest of my life. Needless to say that was my last visit to her.

I did more research and found a top notch eye hospital in Florida, so I was once again filled with hope that something could be done. Within 5 minutes, doctor #5 told me I needed the surgery and that was that. Yay! I was excited at the time, so I booked the surgery for a couple weeks out. I went back online and started to read peoples post who have gone through the surgery. I wanted to know what it was going to be like. I read scary things about the recovery for people who got stitches and that it took like almost a year to recover and that it looked worse then before. Well, I am getting married in a year and I can’t have a “bum” eye for pictures and my wedding. I saw someone’s post about Dr. Arun Gulani in Jacksonville, Florida.

So I did the natural thing… I googled him. Pages and pages came up on him, either journal articles written with quotes from him, or journal articles written by him, or articles written on him. A lot of information was available and a lot of it had to do with his techniques for the pterygium removal surgery. So I googled doctor #5 and nothing came up except for his own website. So I emailed doctor #5 to see if he used glue or stitches. He emailed me back that he didn’t know until he was in surgery to see how things were going. Then I started thinking… even though this is a well respected hospital there is nothing that says they are good at “pterygium removal”. So I cancelled the surgery.
I made an appointment with Dr. Gulani for a few weeks out. I ended up seeing one other doctor in Orlando in the mean time because my eye was starting to hurt. This doctor made me cry in the office because he told me that I shouldn’t get the surgery and every doctor is going to tell me the same thing… “stay on the drops”. It was the worst visit I had ever had with a doctor.

My mom and I went to go see Dr. Gulani in April of 2008. I was so nervous because this was going to be doctor #7 and the previous 6 had all either made me cry or depressed. Thank god for Dr. Gulani or I would have lost hope. Not only did he listen to why I would want it, but he understood why. One of the best things about Dr. Gulani is that he gives you the time you need. You never feel like you are being rushed. The whole office makes you feel like you are the only patient in the place. He spent an hour the first time talking to me to make sure that my mom and I understood every different aspect of this surgery. And he would have spent more time if I needed it. His staff is wonderful and they are always very accommodating. I scheduled my surgery with him, and that was the first time since July of 2007 that I felt relieved, like something can be done.

Well, I am a month post op and everything is wonderful. My eye looks great! It has been so clear and white since the very next day after surgery. Looks wonderful!

Since I can’t drive to Jacksonville all the time I went back to doctor # 6 (who said nothing could be done and made me cry) to get check ups. Believe me, I didn’t want to, but he was the closest to home. He has done a complete 180 after seeing the results. The first time I saw him after the surgery he was very skeptical and by the last visit he was calling Dr. Gulani the “expert” and wouldn’t do anything without his approval. He was actually excited to see me after the first visit because he got to see the results and speak with Dr. Gulani. Also, I have talked to Dr. Gulani multiple times on the phone probably at least 5 checking up to see how I was doing. He even returned a phone call on a holiday! For the past month I have been waiting and waiting to get my other eye done. Well tomorrow is the big day… and I am so excited. I couldn’t have asked for more!

I highly recommend Dr. Gulani to anyone.


**Update** My second eye surgery was a success!! The day after surgery I finished a book that I had started the day before surgery. My fiancé could not believe that I was not only up and well but actually reading. He said that would be like a person who had their leg operated on going for a joy run the next day.  I had to keep reminding myself that I had a surgery and I needed to rest and be careful. I was so bored though because I felt so good. My eyes looked great too! It has been a little over one month since my last surgery and I couldn’t be happier with the success of the surgeries. I want to encourage you to keep emailing me any questions or concerns you have. I am more then happy to help in anyway. Dr. Gulani is a fantastic Doctor! He will make you wish that all of your doctors cared about what they do as much as he does.

Last edited by moderator2; 03-14-2009 at 12:08 PM. Reason: please do not post your email address in the public forums - instead, use the private messaging system

 
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Old 02-20-2011, 02:12 PM   #2
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Re: Pterygium *Update*

Hello,
I know you wrote awhile ago but was wondering if after your pterygium surgery what they gave you for pain relief. THis surgery went well-better than my first one, but I was in shear agony for the next 6-8 hours. They gave my Percoset which made me sick as a dog and made my hallucinate. The pain was still there and I almost prayed for death. My eye looks good and I'm praying I'll never go through this again. Any comments?

Thanks so much for your time,

 
Old 02-23-2011, 01:45 PM   #3
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Re: Pterygium *Update*

Quote:
Originally Posted by hoping56 View Post
Hello,
I know you wrote awhile ago but was wondering if after your pterygium surgery what they gave you for pain relief. THis surgery went well-better than my first one, but I was in shear agony for the next 6-8 hours. They gave my Percoset which made me sick as a dog and made my hallucinate. The pain was still there and I almost prayed for death. My eye looks good and I'm praying I'll never go through this again. Any comments?

Thanks so much for your time,
Hi, I'm a new poster here. I've suffered with a pterygium for about 1-1/2 years. Its very sore most of the time and my local doctor tells me I don't want to have surgery until it impairs my vision because its very painful. I don't want to wait that long, I'd rather have it done while its on the small side (better candidate for surgery I would imagine). I only use eye drops right now...the only treatment I've been recommended to use. It lasts a few minutes, then its back to a sore eye again. And yes, its not nice to look at!

So I'm wondering where and how the surgery of this poster was done, I'm curious with it being so painful.

I'm glad I have somewhere to post, and hopefully we can resurrect this topic and get some current information on the latest technology and how the surgeries have held up over the years.

I'm from Ontario, Canada, and this condition is pretty rare here, so no expert doctors in the area. Anyone know of any?

 
Old 02-24-2011, 07:19 AM   #4
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Re: Pterygium *Update*

Hello!
It's nice to hear I'm not the only northerner to have this condition. I've been asked so many times if I'm out in the sun a lot since this usually afflicts those close to the Equator and surfers. Anyway, I am now in my 9th day of recovery and am doing much better than the first surgery 2 years ago. Maybe partly because I kind of knew what to expect. However, the new surgeon I have is quite reputable and so I wouldn't doubt it's because he was just that much better. I'm from Wisconsin and had my surgery done in MIlwaukee. I can honestly say the surgery itself was a pleasant experience compared to the last one, however by the time I got home (outpatient) the pain was worse and worse. I'm not good with strong meds and got very nauseous and suffered for the next 6 or so hours with nothing to help me. I am going for a checkup tomorrow and I know that my other eye has to be looked at again ( I'm already afraid to know the outcome) but if I ever have to go through this again I will demand to be kept overnight or at least until my pain is under control. Other than that I've continued to heal pretty quickly. Oh, yes there is also this constant feeling of something in your eye for about 3 days or so which is quite annoying but manageable. With me they used the graft and that's what that feeling is all about. I took myself off of work for almost 2 weeks because I need to close my eyes during the day to rest them. I'm glad I did that. So if you're a person who is sensitive like me then don't listen to the doc when they say you'll be back to work in 5 days. Know thyself! I hope this helps. I'll fill you in on my progress if you'd like. Take care, it sounds like you have a doc that at least is being honest with you. My first one acted surprised when I told him I was in a lot of pain. OY!

 
Old 02-24-2011, 07:33 AM   #5
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Re: Pterygium *Update*

Great to here from you. I'm like a sponge right now...trying to soak in all the information I can.

We're your surgeries done with sutures or with the fibrin glue?

What sort of problems are you having with your first eye...is it a recurrence?

If I have the surgery, I'll definitely look into pain management prior to the surgery. Though is seems that Dr. Gulani's patients have no pain(?)

Can anyone clue me in as to what a Ping is?

 
Old 02-24-2011, 03:10 PM   #6
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Re: Pterygium *Update*

HI there,

Well, my surgery was done with a graft that they glue in place once they remove the pterygium. I'm very surprised when I hear that this Dr Guliani you are speaking of has his patients eye white so soon after surgery. Mine is still quite red but gets less so every day. The up side is that my vision in that eye is so much better immediately as was the first one I had done. The right eye that was done 2 years (at least as of few months ago) has not shown too much regrowth, but there is scar tissue which is also reddish and can get irritating and dry if I don't keep up on the drops. I am going to my doc tomorrow for my week check up and will find out if my other eye is ok for now. I'm hoping so much that I can get a miracle and won't have to redo either again. And as far as the patients you mention not having pain, well, I have always been very sensitive but if this is true and they have no pain, sign me up with this Doctor cuz he's doing something right. Would you please do me a favor and check into that for me? I would like to know what his protocol is for post op and ask what he uses for his patients that do have pain. I"m curious to know if it's a true Pterygium or a Ping which to my understanding is more of a bump or small growth that's removed. I don't know if they grow back once removed or not.
Take care and hope you get more answers.

 
Old 02-24-2011, 05:09 PM   #7
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Re: Pterygium *Update*

Hi, I've just read about this Dr. Gulani. He's in Florida and I'm in Ontario, Canada, so its a long way for me to go. It all seems very commercial and over advertised to me though, I'm a little suspicious.

Last edited by moderator2; 02-24-2011 at 08:24 PM. Reason: please do not post commercial websites

 
Old 03-04-2011, 08:26 PM   #8
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Re: Pterygium *Update*

i had surgery but I live in Belize and it has been a month but my eyes are still red and this is my second surgery. I am really devasted because i am tired of having red eyes. I need to know why my eyes are still red

 
Old 03-05-2011, 04:28 PM   #9
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Smile Re: Pterygium *Update*

Quote:
Originally Posted by jamboree View Post
i had surgery but I live in Belize and it has been a month but my eyes are still red and this is my second surgery. I am really devasted because i am tired of having red eyes. I need to know why my eyes are still red
Can you tell us how your surgery was done?
Was it painful? Is your pterygium gone? Was your surgery repeated because your pterygium came back? We need details please!

 
Old 04-07-2011, 06:42 PM   #10
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Re: Pterygium *Update*

Eyes are very sensitive and are slow to heal. Whichever doctor you choose, try to talk to as many expatients as possible. These doctors claim to have treated hundreds of people, I wish just a dozen of them would help us by letting us know their experiences. It seems to be very difficult to find good advice on this topic. Please let me know of any other sources of information that you have found helpful. Right now, the only doctor that I find to be credible is Professor Hirst, but he's in Australia. Please let me know if you know of a good doctor on the west coast of the US. Thanks.

Last edited by moderator2; 04-07-2011 at 06:48 PM.

 
Old 04-07-2011, 06:57 PM   #11
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Re: Pterygium *Update*

Quote:
Originally Posted by sonishere View Post
Eyes are very sensitive and are slow to heal. Whichever doctor you choose, try to talk to as many expatients as possible. These doctors claim to have treated hundreds of people, I wish just a dozen of them would help us by letting us know their experiences. It seems to be very difficult to find good advice on this topic. Please let me know of any other sources of information that you have found helpful. Right now, the only doctor that I find to be credible is Professor Hirst, but he's in Australia. Please let me know if you know of a good doctor on the west coast of the US. Thanks.
I would be happy with a credible doctor in North America right now. I would travel to get this done (though probably not to Australia). It is very frustrating, I agree, very little information available on this problem. I can see mine getting bigger, and I don't want to wait. I think its better to have the surgery while its still on the small side. I would think it would be easier. Anyway, I'll post here if I get anymore info, hoping you and everyone else will do the same.

 
Old 05-09-2011, 02:26 PM   #12
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Smile Re: Pterygium *Update*

Hi "pingsrgone",

Are you still out there? Thank you for your post. I am curious to see how you have progressed since your surgery? If you are still a member of this message board could you kindly give another update as to how your eyes are doing post surgery? How long has it been since your surgeries?

Thanks,
red eye

 
Old 05-31-2011, 01:37 PM   #13
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Re: Pterygium *Update*

Just had surgery a week ago and eye is still red but no film anymore, and the space where they put the graph is kind of yellow actually, so I went from red to yellow eyes. anyway, tomorrow I have my follow up appt with Dr Shah and he will tell me how I am doing. I will keep you posted. I am still very sensitive to the light and eye gets irritated after a while, specially with light.

 
Old 05-31-2011, 03:52 PM   #14
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Re: Pterygium *Update*

Quote:
Originally Posted by bettyfla View Post
Just had surgery a week ago and eye is still red but no film anymore, and the space where they put the graph is kind of yellow actually, so I went from red to yellow eyes. anyway, tomorrow I have my follow up appt with Dr Shah and he will tell me how I am doing. I will keep you posted. I am still very sensitive to the light and eye gets irritated after a while, specially with light.
Thanks for posting. Its so good to hear from someone that has had the surgery. Was it very painful? How far had it progresssed when you decided to do the surgery? Please continue to update us, we appreciate it!

 
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