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Old 10-10-2008, 12:37 AM   #1
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Bright spots in vision that turn into blind spots

Hi I'm new here and this is my 1st post.
I have a strange problem with my eyesight.
Since last year, I've been getting all sorts of wierd visual distubances that have baffled my doctors. I get these little spots in my eyes, one at a time in each eye and in different locations. They look like 'afterimages' like from a camera flash or a sun spot, only I didn't look at a light. The bright spot will last hours, days, and occasionally a couple of weeks. Sometimes they totally go away, but the ones that linger the longest turn into tiny blind or blank spots in my vision, which remain permanant and don't move.
I also get many temporary aura-like spots every day but I don't have migraines with them.
I've been to several opthomologists, a retina specialist, and neurologists. I've had many of the tests - OCTs, visual fields, ERG, MRI, angiogram. No signs of any problem were found, except the last opthomologist I saw told me he could see very tiny floater-like debris sitting on or stuck to my retina. The locations of the debris he saw were in the exact locations of my blind spots. He didn't think it was anything to worry over, but I think anything that's creating blind spots is worrisome....
I know there are other people with the same problems and I wonder if anyone else has ever had a doctor make a similar observation and what it could be?

 
Old 10-14-2008, 06:09 PM   #2
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Re: Bright spots in vision that turn into blind spots

go to an eye doctor and get an OCT immediately. ask about cytoid macular edema.. i suffer from this and it can be treated. if it is not, it inevitably will lead to blindness..

 
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Old 10-14-2008, 11:03 PM   #3
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Re: Bright spots in vision that turn into blind spots

Clr18287, thanks for your reply. Actually I've had about 4 OCT tests done over the year, the most recent was a month ago. Everything looked normal. The doctor I saw told me that OCTs only test a limited area around central vision, but problems in the peripheral vision may not be in the range of the scan.

What were your symptoms like? Were they similar to mine? How long did it take before you got a diagnosis?

 
Old 10-15-2008, 06:09 AM   #4
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Re: Bright spots in vision that turn into blind spots

Kabees: Are the spots all over your visual field, or just central, or just peripheral?

 
Old 10-16-2008, 02:21 AM   #5
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Re: Bright spots in vision that turn into blind spots

They're scattered randomly in my peripheral vision, but I have a spot in my right eye somewhat near my central vision.

 
Old 10-16-2008, 05:30 AM   #6
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Re: Bright spots in vision that turn into blind spots

If you are anywhere near Boston go see Dr. Foster at MERSI. He's one of the best eye doctors in the world that specializes in uveitis and other inflammatory conditions of the eye. [url]www.uveitis.org[/url]

I drove 4 hours to see him and believe me, it's worth it. If you aren't close their office can recommend some doctors that are in close contact with Dr. Foster.

Good luck
CR

 
Old 10-17-2008, 12:34 AM   #7
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Re: Bright spots in vision that turn into blind spots

Thanks for the info about the Doctor. Actually I live only a half hour from Boston so I will certainly keep your recommendation in mind.
I saw another doctor there at Tufts Medical Center and he was the only doctor who was able to see anything unusual in my eyes and he said he could see what looked like little bits of debris, like floaters, that were stuck to or sitting on top of my retina and they corresponded to the locations of my abnormal blind spots. He had never seen anything exactly like it before and wants me to come back to have another doctor have a look. He didn't think it was anything to worry about. It's just that I still have a lot of uncertainty over how many of these little blind spots I might get over time and if I could become seriously affected by them. I just wish I could know for certain what this is and what to expect from it. I worry constantly about it.

 
Old 12-11-2008, 07:52 PM   #8
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Re: Bright spots in vision that turn into blind spots

Hi,
I am very interested in any answers you may get about your blind spots. I have been searching for an answer for almost 4 years now. It started with a "strobe light" type of flashing in my left eye on Sunday afternoon and within 2 days had become a significant size blind spot. I had multiple test on my eyes, blood test, MRI (the drs thought maybe MS), etc. with no answer. A few months after the first one another flashing started and then turned into another blind spot. Anyway, here I am 4 years later, I finally got tired of all of the drs and just hoped I would not develop anymore since they seemed to quit, I was just left with a blind spot in each eye, well about a month and a half ago another blind spot showed up, this time with only a few little flashes of light. I haven't gone to see any dr about this one because I am tired of sitting and waiting only to be told nothing. I have even been to the eye foundation hospital and still no answer. The say my eyes are perfectly healthy as far as that goes but they can not tell me why I have the spots. I would at least like an answer if I will eventually be totally blind or not. Your description of your eye problems are the closest I have read to what mine are like that is why I am interested in any answer you get. Thanks

 
Old 12-12-2008, 12:13 AM   #9
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Re: Bright spots in vision that turn into blind spots

Hi bekah

Sorry to hear you are going through what seems to be the same mysterious problem. You're not alone, there are quite a few others that have posted here and elsewhere reporting the same symptoms and so far I have yet to see anyone say they got a diagnosis or found any treatment.

I also get lots of temporary shimmery spots all the time, every day. They seem to be similar to migraine auras. Do you ever get these too or have ever had migraines? I was 28 when I first noticed this blind spot thing, I'm curious how old you were when yours started?

I'm going back to the doctor I saw in Boston a few months ago to have him look some more at my eyes and ask a few more questions. If anything new comes up I'll let you know.

 
Old 12-12-2008, 05:08 AM   #10
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Re: Bright spots in vision that turn into blind spots

Bekah, did you have a fluorescein angiogram?

 
Old 12-12-2008, 09:52 AM   #11
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Re: Bright spots in vision that turn into blind spots

My first spot was when I was 31. I just turned 35. In the course of trying to find out what was wrong a neurologist told me that I have migraines. I have never had really bad headaches just cluster headaches but never associated with the blind spots, the neuro put me on preventative meds for the migraines and just kind of forgot about the eye problems. I don't feel I need the meds for the mirgraines because I don't have many at all. I just feel so frustrated about this, I have always been pretty healthy, except one condition I was diagnosed with during pregnancy, Antiphospholipid sydrome, I have often wondered if this was the cause of the spots but all the drs assure me that it is not. I had many pregnancy problems because of this sydrome which can cause blood clots. I take an aspirin a day but other than that I have no other problems, just the eyes.

 
Old 12-12-2008, 09:56 AM   #12
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Re: Bright spots in vision that turn into blind spots

No, I have actually never heard of this.

 
Old 12-12-2008, 10:04 AM   #13
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Re: Bright spots in vision that turn into blind spots

Quote:
Originally Posted by KeelaC View Post
Bekah, did you have a fluorescein angiogram?
I had just posted that I had not had a fluorescein angiogram, I have had so many tests that I was not sure what this one was so I just looked it up and I have actually had 2 of these done.

 
Old 12-13-2008, 05:08 AM   #14
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Re: Bright spots in vision that turn into blind spots

I also get these silvery spots accompanied by the blind spots!!!! I thought it was persistent migraine aura or visual snow.. I don't get the headache, and it lasts for more than 15-20 minutes so I'm not sure.

No doctor has been able to tell me what they are. For those of your curious for your own knowledge.. I have MS, and uveitis and optic neuritis (the optic neuritis is not in the eye i have the shimmy spots though). They may be the causes for me, but I've had these conditions all my life and these shimmery spots are a totally new occurence. It also started with strobing flashes in my peripheral vision.. If anyone is reading this can you answer the following?

Do these shimmery spots fluctuate during the day? Like, totally subside then come on more during the afternoon hours and evening OR after exercises?

Can you see them more when you squint against a computer screen?

Do you have dark spots in your peripheral vision when squinting?

Do you work at a desk job?

Let me know

Let's figure this out, I'm losing my mind.

Last edited by moderator2; 12-13-2008 at 05:58 AM. Reason: posted contact info

 
Old 12-13-2008, 08:42 AM   #15
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Re: Bright spots in vision that turn into blind spots

When the strobe light like flashing occurs it is continuous for 2-3 days and then becomes a blind spot. These spots have never gone away nor changed in anyway since I first had them, the first one almost 4 years ago. I do, however, experience quick flashes of light sometimes, these come and go, they are sort of like I look directly into a bright light and then look away and have the little flashes from looking at the light, but of course I have not done that. In the time since the original blind spot occurred, I have had 2 more significant blind spots appear, the 2nd was just like the first with the strobe light first for a couple of days and then the blind spot, the 3rd was just a few flashes off and on for a few days and then the blind spot. The 1st spot is in the peripheral vision of my left eye, the 2nd in the peripheral vision of my right eye but this new one is just slightly off from the center of my vision in my right eye. I have learned to adjust to the first 2 but the 3rd is harder since it is very near my center of vision. I also have little small spots throughout the center of my vision which started after the 1st spot. I hear all the time that they must be floaters, but they have remained in exactly the same spot and never changed in 3 1/2 years so I don't believe this fits the definition of floaters. I had a retina specialist at the eye foundation tell me about 3 years ago that it was something to do with my retina and the spots would all be gone in 6-8 months, well as I said 3 1/2 years later they are still there.

As I said in previous post, they did tell me that it could be MS but I have had 3 Head MRI's in the 4 years and there is nothing to indicate MS.

To answer some of the questions, I don't work, I am a stay at home mom. As I had said previously, I don't have any medical conditions that could answer the question as to why this is happening. I actually decided that after 1 1/2 years of sitting in waiting rooms, paying co-pays, etc. that I was done with trying to get an answer from the doctors. My first 2 spots had not changed nor had any new ones come up so I thought that maybe it was just a freak thing that I would learn to live with but then a little over a month ago the new spot showed up. I am very concerned now because over the course of the 4 years I have lost a good bit of my vision so I wonder what will happen in the next 5-10 years, will I go completely blind? Anyway, I know this is a long post but this is so frustrating to me and I just hope that someone that reads this can say, here is your problem and here is what will happen or how you can stop it from happening.

 
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