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Old 12-01-2008, 09:18 PM   #1
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vision jumpiness--anyone else out there with this?

I have had vision jumpiness since 1980 (after having a bad case of the flu) with very little help from Doctors or Medications. My world is always moving--sometimes its so bad that I'm homebound. When I walk everything moves towards me--if I ride in a car it feels like the car is sitting still and the road is moving towards me--sometimes in my peripheral vision (even though I'm looking straight ahead) things look like they are moving--if I do walk a distance and get my heart rate up then stop and look at the road, it keeps moving--when I'm real bad I can't go outside if the wind is blowing because everything is moving in my vision already--I have a problem with nausea because of the movement I see--I also have had constant ringing in my ears since 1980 (Tinnitus). I don't know what that flu did in my brain to cause these problems but it is very frustrating. I've been to at least 50 Drs. since 1980 and tryed many medications. Sometimes I can ignore both the vision jumpiness and ringing in my ears--but it's always there. If anyone has had these problems and has gotten help, please write me. Thank You. God Bless You and Yours Today and EveryDay

 
Old 12-02-2008, 04:54 AM   #2
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Re: vision jumpiness--anyone else out there with this?

You've seen doctors who couldn't help, so I doubt I will be of any use; but, it sounds to me like inner ear problems. Have you seen a specialist who deals with inner ear, vestibular, balance problems?

 
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Old 12-02-2008, 08:29 AM   #3
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Re: vision jumpiness--anyone else out there with this?

Quote:
Originally Posted by KeelaC View Post
You've seen doctors who couldn't help, so I doubt I will be of any use; but, it sounds to me like inner ear problems. Have you seen a specialist who deals with inner ear, vestibular, balance problems?
Hi KeelaC,
I appreciate your concern. I have seen 3 different ear specialist and had all those tests run. Nothing ever shows up for them to give me an answer. I do have a new Primary Care Dr. who is awesome and she thinks because of having so many things wrong with me that I have an auto-immune disease. We're still doing tests. I just thought that someone could give me a short cut that may have the same problems. Doctors seem to be baffled at what this could be. I'm just ready for an answer!!! Thanks,precious49
God Bless You and Yours Today and EveryDay

 
Old 12-03-2008, 02:49 AM   #4
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Re: vision jumpiness--anyone else out there with this?

I agree with KeelaC. This does sound like an inner ear problem but, the fact that it has gone on for so long might make it more difficult to fix.
The inner ear is a complex structure that has a very clever way of telling our brains which way up we are. There are tiny crystals in the canals of the inner ear that float around and send signals back to the brain. If those crystals get stuck, the brain gets confused.
There are physiotherapists who specialise in the treatment of balance problems. In a similar process to that used by osteopaths, they use sudden manoevres to release the crystals and restore normal function.
Your family doctor should be able to refer you to such a specialist.

 
Old 12-04-2008, 07:11 AM   #5
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Re: vision jumpiness--anyone else out there with this?

Hi brianmf, Thanks for your info--I saved your post in my favorites to refer to--I agree that part of this has to do with my inner ear. It's just so frustrating that Dr.s really can't seem to help with the problem. I've never heard of a physiotherapist but I will certainly check that out. You've been very helpful !!! I hope you have a great day today. Thanks, precious49 God Bless You and Yours Today and Everyday : )

 
Old 12-04-2008, 10:01 AM   #6
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Re: vision jumpiness--anyone else out there with this?

I think you call them physical therapists in the US. In any case, it needs to be someone specialising in orientation problems and not all therapists have that training. No doubt your doctor or local hospital will be able to point you in the right direction.
The medical name for the condition I described is BPPV (Benign Paroxysmal Positional Vertigo). If you do a search for it on the Internet, you will find that, in addition to general vertigo (dizziness) and nausea, jerky vision is also a known symptom.

Last edited by TopGeek; 12-05-2008 at 03:28 PM. Reason: detail

 
Old 12-05-2008, 10:37 AM   #7
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Re: vision jumpiness--anyone else out there with this?

The Epley maneuver is the treatment Brian was referring to. It might be difficult finding someone who knows how to do it.

 
Old 12-05-2008, 03:36 PM   #8
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Re: vision jumpiness--anyone else out there with this?

It is indeed the Epley manoeuvre. It happens that my wife is being treated for disorientation at present. It is not really the sort of thing to try without medical guidance but, if it isn't possible to find an expert, a bit of research on the Internet will give you the basics.

 
Old 12-06-2008, 03:53 AM   #9
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Re: vision jumpiness--anyone else out there with this?

Quote:
Originally Posted by brianmf View Post
It is indeed the Epley manoeuvre. It happens that my wife is being treated for disorientation at present. It is not really the sort of thing to try without medical guidance but, if it isn't possible to find an expert, a bit of research on the Internet will give you the basics.
Hi brianmf,
I'm so thankful to God for you and this site. Actually, my Chiropractor has mentioned to me that he knows a Dr. that does this and that if what he's trying to do doesn't take care of the jumpiness then he will send me to that Dr. My Chiropractor does a procedure on my ear lobes that helps a little. He grabs it with his fingers and pulls pretty hard and it pops. He said they don't know why it pops because there is no bone there. I'm so sorry to hear that your wife is having problems. About 20 yrs. ago, my husband developed what they actually called "rocks in his ears" and had the spinning vertigo. I don't know how you feel about the Lord Jesus Christ--but I know for a fact that God allowed my husband to have this so that he would have a better understanding of how I feel. He only had it once and the Dr. took care of it right away. And my precious husband of 41 yrs (we married when we were 18 & 19) has been so helpful during my episodes. The last one lasted 2yrs.& 6mths. and he had to work, do the shopping, & do all the house stuff for the most part. I just praise God for him!!! He and my Mom (she had migranes with spinning vertigo), and God helped me thru some really bad times. I just pray that your wife gets the help she needs and gets better real soon. I'll put both of you on my prayer list. Thank you so much for your help. God Bless You and Yours Today and EveryDay precious49

 
Old 12-06-2008, 04:07 AM   #10
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Re: vision jumpiness--anyone else out there with this?

Quote:
Originally Posted by KeelaC View Post
The Epley maneuver is the treatment Brian was referring to. It might be difficult finding someone who knows how to do it.
Hi KeelaC,
Thank you for your info. I wrote brianmf to thank him also. I think we need to all get together and write a book : ) It seems that we take in all the info that's offered and get better results than the Drs. I think they just get so focused on their field that they don't put it altogether. I've had probably 5 out of the approx. 50 that I've seen since 1980 that at least have really tried to help. I know the answer is there and with God's help someday we'll find it. I don't know your story. Why you're on this sight? If you choose to, I'd love to hear it. I just praise the Lord for this site and for you. I told brianmf that my Chiropractor had mentioned a Dr. that does the Epley maneuver. He's trying a procedure on my now that involves my ear lobes and it seems to help a little. Thanks again for being so helpful. God Bless You and Yours Today and EveryDay precious 49

 
Old 12-06-2008, 04:17 AM   #11
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Re: vision jumpiness--anyone else out there with this?

Hi KeelaC and brianmf,
I'm so new to this that I forgot that you both can see what I write. Dugh : ) !!! Thank you both so very much. Have a great day and God Bless Both of You Today and EveryDay and you're both going on my prayer list. precious49

 
Old 12-06-2008, 08:59 AM   #12
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Re: vision jumpiness--anyone else out there with this?

If you do get the Epley manoeuvre, it may take several attempts before it works, so don't get discouraged (assuming that it will help at all).

 
Old 12-07-2008, 04:49 AM   #13
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Re: vision jumpiness--anyone else out there with this?

Quote:
Originally Posted by KeelaC View Post
If you do get the Epley manoeuvre, it may take several attempts before it works, so don't get discouraged (assuming that it will help at all).
Good Morning KeelaC,
Thanks again for your info--I will never give up and I pray that I will never let this get me so down as it did for the last 2yrs.& 6mths. It feels so good to feel alive again. Although, the jumpy vision has continued since 1980--it's amazing how if I put my mind to it, I can ignore it most of the time. With God's help, I will overcome this and I pray that I will be helpful to someone else just like you've been to me. When I 1st got this, I didn't know anyone with the same problem and for yrs., I thought I was the only one and then I went to my Neuro-Ophthalmologist and found out that there are alot of people with vertigo & tinnitus. I'll be so thankful when one of them is able to help all of us. Have a great day. God Bless You and Yours Today and EveryDay and Thank You
precious 49

 
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