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Old 04-16-2012, 06:56 PM   #1
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Join Date: Apr 2012
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Jennyjas HB User
Lights are way too bright. Please read

I know I can't be the only person in the world that has this. If you or know somebody that has had symptom like mine please please please point me in the right direction. The doctors don't know and are blaming it on atypical migranes and I can't be seen by a johns hopkins specialist until August 31. Have you ever seen somebody welding metal? That's what almost all lights look like to me- an insanely bright spot which has an aura around it. When I look away it's as though I stared at the sun too long. I'm temporarily blinded and I see an image of the light I looked at for up to a minute afterward. It sends my body into a panic like attack which is dibilitating. Had 2 mri's, 3 EEG , tests tests and more tests. All say my eyes and brain are fine. They are missing something somewhere. Does anybody know of any other tests or put me in touch with anybody similar please. Thank you

 
Old 04-17-2012, 12:30 PM   #2
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Kendra01 HB UserKendra01 HB User
Re: Lights are way too bright. Please read

I really feel for you. I have suffered from super light sensitivity for awhile now. I have a great Opthamologist who diagnosed me with adhesions on my cornea many years ago. After a long time, I started having problems. See Salzmans' Nodules on the Eye forum. There are old and new threads on it. It can easily be missed by a doctor. My eye doctor told me this, when I was diagnosed once on a emergency visit at another doctor's office.

During my research on my condition, I ran across information under the term photophobia. Check it out. It can be caused by multiple things. It's a real condition that can have drastic impact on your life. The adhesions on the cornea reflect light and that is what causes the extreme sensitivity.

It's good you are going for help in finding out what the cause is for your condition. Please post here to let us know what happens.

I have to wear dark glasses outside unless it's super cloudy and I also wear sun glasses inside on ocassion.

Last edited by Kendra01; 04-17-2012 at 12:32 PM.

 
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Old 04-17-2012, 07:33 PM   #3
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Jennyjas HB User
Re: Lights are too bright!! Please read

Thank you so much for your response. So much. I was beginning to feel helpless. It already has been having a drastic impact and is very difficult to deal with. Your help is greatly appreciated. I checked out the photophobia and many things are similar with me. I put another post about atypical migraines or seizures and after some research I'm thinking they may be right with the diagnosis. Unfortunately the meds they have put me on haven't worked (depakote). I've been hoping to take a pill and it would go away- not the case. I wasnt buying the diagnosis. I never really had headaches but I can remember five headaches I've had in the past year that were mind crushing and unlike any others I've ever had before. Three of them occurred while I was sleeping and woke me up from deep sleep. Most of the time if you have a headache you just want to sleep it off but it was so bad I couldn't. Then afterward I'm drained, feel disoriented, and very forgetful. Thank you again for your reply.

 
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