Sorry for not updating sooner.
Retina specialist says everything is fine from an eye standpoint. The opthalmologists suggest I go back to nero-opthalmolgist. Going back soon although it's sure to b a waste of time and money. Since my last appointment to opthalmologist, I've developed more vision loss in left eye (I now have 6 areas of blind spots at the present time). I also have distorted vision in both eyes (looks as though things are hazy and moving when looking at objects, pics etc). So things just keep getting worse and I'm not sure what step to take next!
Dear heartsy, im up in early a.m. ij pain & something crossed my mind that i wanted to tell you & idk why i havent thought of it before. Once when i was in the hospital with back surgery my roomate was in for visual disturbances & the drs said that she had MS. Usually double vision was a sign but she had blind spots. Later they found an aneurysm by her optic nerve not ms so i wanted you to make sure they do testing for both & other systemic diseases if they havnt already. Mayo is a great idea in my opinion. Still hoping & praying for a miracle from God.
real quick, just to try and help you find help....believe it or not....a Regular Optometrist can actually refer you to a good Specialist.....why not just simply go and have your eyes examined at sears or pennys, tell her your problems and she may have a good friends/doctor to refer you too ..... they are usually very helpful as they can often identify problems (they are wanna bees) and let you know .... then take more time to talk to you about it and send you somewhere that will help you. WHEN you tell the New Doctor that you have been REFERRED, YOU will receive Better Treatment. That is a fact, plain and simple. Good Luck (I forever thought that I was the ONLY ONE who had these problems, praise GOD for the message boards)
Hearts Lady, I was wondering, how is your vision "otherwise" meaning, do you wear glasses for nearsightedness, if so, how nearsighted are you? Strange things happen to we people who are extremely nearsighted.....I have had similar things happen to me, tho don't sound quite as severe as yours, I will elaborate more later in another letter after you lmk if you are nearsighted. Not that my experience will help either one of "us" at least we know we are not alone.
I have had numerous MRIs & MRAs and I don't show signs of MS. Going to the neuro-opthalmologist at Wake Forest (Baptist) in April to see what they say. The specialist there hasn't figured anything out in previous years!
I've been to regular opthalmologists and have been referred to specialists which I have seen in the past...Going for follow up soon. From a vision standpoint other than the visual field defects (blind spots) I have 20/20 vision and no nearsightedness or anything else from an eye standpoint. Me as well as my family dr thinks that in some way my crazy vision is related to all the migraines with auras I've had through the years. He's having me take a baby aspirin daily and follow up with my neurologist as well as nero-opthalmologist in Baptist. Still praying for some answers as these vision problems get overwhelming at times! Thanks for all the suggestions and concerns from all of you!
Last edited by HEARTSY LADY; 02-16-2013 at 06:01 PM.
I've been to regular opthalmologists and have been referred to specialists which I have seen in the past...Going for follow up soon. From a vision standpoint other than the visual field defects (blind spots) I have 20/20 vision and no nearsightedness or anything else from an eye standpoint. Me as well as my family dr thinks that in some way my crazy vision is related to all the migraines with auras I've had through the years. He's having me take a baby aspirin daily and follow up with my neurologist as well as nero-opthalmologist in Baptist. Still praying for some answers as these vision problems get overwhelming at times! Thanks for all the suggestions and concerns from all of you!
The baby aspirin is probably going to help, as it can keep platelets from clumping and causing tiny clots to form, especially if you have anti phospholipid syndrome. Did those antibody levels ever get checked? (lupus anticoagulant and cardiolipin antibodies)
