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Old 12-01-2012, 08:12 PM   #16
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Re: Blind Spots In Peripheral Vision

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Originally Posted by HEARTSY LADY View Post
So after going to the retina specialist & having various tests including an angiogram, everything having to do with mu eyes has been ruled out once again so still no answers & on an even more down side...more blind spots :-( I really don't know what's going on or where to go for answers. I've been ping ponged around so much & even the specialist I just went to suggested optho-neuro or my neurologist which have ping ponged me around already! So no answers and worsening of vision problems. I also have weird jumpy vision which is hard to explain and very unsettling! It's all so stressful :-(
Oh heartsy, no. Certainly, they did not release you like this! They could see by the testing that you have blind spots, yes? Oh, honey i know you are so disappointed. Im disappointed. The retina specialist is the one that suggested the neurologist? I know that you want to give up but, its worsening. What if theres a time element? Please can you go back to the dr who sent you to the retina specialist? He will be getting the reports from there, surely they all cant be normal! At least tell him that this is not solved & ask what he makes of the testing & make sure that he has a report on everything from everywhere that you have had done. Please go or at least
call & talk to the dr himself & say what do you make of this & tell him,
please? Im so sorry but consider seeing the first guy again, gmak you
me

Ps. Looked back @ this thread @ saw that your opthalmologist wanted you to see the retina specialist then a neuro opthalmologist, then back to
opthalmologist. Im confused, please forgive me, did you see the neuro
opthalmologist yet? Also you saw the cardiologist, but did anyone do the antiphospholipid antibody blood test that ladybud suggested? She is brilliant & when she says jump i say how high! She has helped me so much.

Last edited by gmak; 12-01-2012 at 08:33 PM.

 
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Old 02-05-2013, 12:55 PM   #17
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Re: Blind Spots In Peripheral Vision

Sorry for not updating sooner.
Retina specialist says everything is fine from an eye standpoint. The opthalmologists suggest I go back to nero-opthalmolgist. Going back soon although it's sure to b a waste of time and money. Since my last appointment to opthalmologist, I've developed more vision loss in left eye (I now have 6 areas of blind spots at the present time). I also have distorted vision in both eyes (looks as though things are hazy and moving when looking at objects, pics etc). So things just keep getting worse and I'm not sure what step to take next!

 
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Old 02-05-2013, 01:22 PM   #18
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Re: Blind Spots In Peripheral Vision

Quote:
Originally Posted by HEARTSY LADY View Post
Sorry for not updating sooner.
Retina specialist says everything is fine from an eye standpoint. The opthalmologists suggest I go back to nero-opthalmolgist. Going back soon although it's sure to b a waste of time and money. Since my last appointment to opthalmologist, I've developed more vision loss in left eye (I now have 6 areas of blind spots at the present time). I also have distorted vision in both eyes (looks as though things are hazy and moving when looking at objects, pics etc). So things just keep getting worse and I'm not sure what step to take next!
Dear heartsy, Hi! I have prayed for you & have wondered how you are. Have you been to Duke university eye center? Have these eye drs tested you for systemic disease like diabetes etc & with all the specialists upon specialists that you have been referred to has all this testing taken place at a large teaching hospital associated with a major medical school & is there more than one of the university teaching hospitals that has an eye clinic? Im so sorry that you have lost more vision, i dont understand yes they can tell you have lost vision but cannot locate the cause right? I really want to encourage you not to give up hope, what diagnosis have you received so far?

Last edited by gmak; 02-05-2013 at 01:39 PM.

 
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Old 02-06-2013, 02:06 AM   #19
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Re: Blind Spots In Peripheral Vision

So sorry to hear that your visual loss is continuing. Since these seem to be peripheral, are your glaucoma pressures normal? I would seriously consider going to the Mayo clinic in Rochester, MN. They get you in on a Mon or Tues and have it figured out by Fri. No bouncing around, everyone is focused on finding the diagnosis and coming up with a treatment plan in a 5 day period or less. I have been there and was truly impressed with the whole system and the efficiency and professionalism of the Drs and staff.

 
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Old 02-11-2013, 11:10 PM   #20
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Re: Blind Spots In Peripheral Vision

I have had similar spots fro many years now. There has been times when driving behind a car in front of me that if looking straight ahead, it looks as though it has no left wheel. I was getting bright shimmering flashes to a point that it was almost blinding.
It was finally determined that it was vascular and was a type of migrain coming on. I was issued a RX by the name of Fiorinal. When seeing the onset of the blind spots or shimmers, I could take a Fiorinal and it would go away.
Just two days ago, I woke up to find that I had a dark area in my right eye. At first I thought it was something on my eyeglass lens, it was not. Today i went to see my eye doctor. He is actually a surgeon and they teach other doctors from around the area new procedures. He examined my eyes for several minutes and told me he could not see anything. He then got up and said he wanted to try another thing.
He used a sort-of headlamp with some sort of magnifying lens and looked into my eyes again while instructing me to look in different directions. All of a sudden, I saw something red when he looked into my right eye. He moved the magnifier a bit more around my eye and I could actually see blood spatters similar to watching a crime scene on TV where someone had been shot leaving spatters on the wall.
He said "There it is, you were right". I apparently have blood spatters from something that darkened out my vision. He scheduled me to see a retinal specialist in a few days.
A little history:
I have cataracts but they are not ready to remove. I also see double, one on top of the other causing me to need a prism in my eye glasses. Now I find out that the muscles in my right eye are getting weaker letting my right eye rotate slightly. This is giving me fits. I can start reading something on the computer and at the left of the sentence it is OK, about mid way the sentence begins to separate, forming two lines that start in a "V" shape from the left.
I am having difficulty reading the large green road signs over the streets. I am on all kinds of blood thinners because of heart attacks, heart surgeries and strokes. You know, I have a feeling that my eyesight won't be around too much longer. I can't complain though because God has been good to me. I have had 3 open heart surgeries, 3 heart attacks, 2 strokes, 19 heart caths and have 11 stints. I am also on my 2nd Pacemaker/Defibrillator. I have been blessed with warnings that prevented me from dying and I still get around good and can wear a healthy person out.
My Wife is scared half to death... I keep telling her that what ever happens is beyond our control and I am OK with that. If the doctors can do something I will be very grateful to them but mostly to God.

Ed

 
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Old 02-12-2013, 01:44 AM   #21
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Re: Blind Spots In Peripheral Vision

Quote:
Originally Posted by HEARTSY LADY View Post
Sorry for not updating sooner.
Retina specialist says everything is fine from an eye standpoint. The opthalmologists suggest I go back to nero-opthalmolgist. Going back soon although it's sure to b a waste of time and money. Since my last appointment to opthalmologist, I've developed more vision loss in left eye (I now have 6 areas of blind spots at the present time). I also have distorted vision in both eyes (looks as though things are hazy and moving when looking at objects, pics etc). So things just keep getting worse and I'm not sure what step to take next!
Dear heartsy, im up in early a.m. ij pain & something crossed my mind that i wanted to tell you & idk why i havent thought of it before. Once when i was in the hospital with back surgery my roomate was in for visual disturbances & the drs said that she had MS. Usually double vision was a sign but she had blind spots. Later they found an aneurysm by her optic nerve not ms so i wanted you to make sure they do testing for both & other systemic diseases if they havnt already. Mayo is a great idea in my opinion. Still hoping & praying for a miracle from God.

 
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Old 02-12-2013, 07:19 AM   #22
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Re: Blind Spots In Peripheral Vision

real quick, just to try and help you find help....believe it or not....a Regular Optometrist can actually refer you to a good Specialist.....why not just simply go and have your eyes examined at sears or pennys, tell her your problems and she may have a good friends/doctor to refer you too ..... they are usually very helpful as they can often identify problems (they are wanna bees) and let you know .... then take more time to talk to you about it and send you somewhere that will help you. WHEN you tell the New Doctor that you have been REFERRED, YOU will receive Better Treatment. That is a fact, plain and simple. Good Luck (I forever thought that I was the ONLY ONE who had these problems, praise GOD for the message boards)

 
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Old 02-16-2013, 03:35 PM   #23
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Re: Blind Spots In Peripheral Vision

Hearts Lady, I was wondering, how is your vision "otherwise" meaning, do you wear glasses for nearsightedness, if so, how nearsighted are you? Strange things happen to we people who are extremely nearsighted.....I have had similar things happen to me, tho don't sound quite as severe as yours, I will elaborate more later in another letter after you lmk if you are nearsighted. Not that my experience will help either one of "us" at least we know we are not alone.

 
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Old 02-16-2013, 05:55 PM   #24
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Re: Blind Spots In Peripheral Vision

I have had numerous MRIs & MRAs and I don't show signs of MS. Going to the neuro-opthalmologist at Wake Forest (Baptist) in April to see what they say. The specialist there hasn't figured anything out in previous years!

 
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Old 02-16-2013, 06:00 PM   #25
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Re: Blind Spots In Peripheral Vision

I've been to regular opthalmologists and have been referred to specialists which I have seen in the past...Going for follow up soon. From a vision standpoint other than the visual field defects (blind spots) I have 20/20 vision and no nearsightedness or anything else from an eye standpoint. Me as well as my family dr thinks that in some way my crazy vision is related to all the migraines with auras I've had through the years. He's having me take a baby aspirin daily and follow up with my neurologist as well as nero-opthalmologist in Baptist. Still praying for some answers as these vision problems get overwhelming at times! Thanks for all the suggestions and concerns from all of you!

Last edited by HEARTSY LADY; 02-16-2013 at 06:01 PM.

 
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Old 02-16-2013, 08:30 PM   #26
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Re: Blind Spots In Peripheral Vision

Quote:
Originally Posted by HEARTSY LADY View Post
I've been to regular opthalmologists and have been referred to specialists which I have seen in the past...Going for follow up soon. From a vision standpoint other than the visual field defects (blind spots) I have 20/20 vision and no nearsightedness or anything else from an eye standpoint. Me as well as my family dr thinks that in some way my crazy vision is related to all the migraines with auras I've had through the years. He's having me take a baby aspirin daily and follow up with my neurologist as well as nero-opthalmologist in Baptist. Still praying for some answers as these vision problems get overwhelming at times! Thanks for all the suggestions and concerns from all of you!
Glad to hear from you dear one & im praying too!

 
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Old 02-17-2013, 08:06 AM   #27
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Re: Blind Spots In Peripheral Vision

The baby aspirin is probably going to help, as it can keep platelets from clumping and causing tiny clots to form, especially if you have anti phospholipid syndrome. Did those antibody levels ever get checked? (lupus anticoagulant and cardiolipin antibodies)

 
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Old 11-22-2013, 09:37 AM   #28
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Re: Blind Spots In Peripheral Vision

Hearts Lady, how are you doing with your eyes these days? any progress?

 
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