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HEARTSY LADY 11-03-2012 10:13 AM

Blind Spots In Peripheral Vision
 
I am now 35 years old and have suffered with various strange issues with my vision...more than I can possibly write in this blog. I will start however with the fact that a blind spot came up in my left eye when I was 17 years old. I had a strobe light on before this happened so I thought it would go away after I slept. I was wrong...It was still there when I woke up the next day. It has since gotten larger and there's quite a bit of vision loss in that area (I call it a butterfly as that's what the shape reminds me of in my lower peripheral in my left eye). Since this I have had migraines with auras which have left residual vision loss as well as more blind spots that come up (some become permanent while others go away over time). I have small bright spots that come up in my vision almost daily that usually fade away over time. I have strange vision when outside in the sun...honecomb rays as I call them (I see these odd rays on white background & in the sky etc). Over the past few weeks I have had several blind spots that have came up in my peripheral in my left eye and I believe they will remain as permanent blind spots. There are other odd things that go on as well but for the sake of not writing a book, these are the basics. I have went to Neurologists, Opthalmologists, NeuroOpthalmologist and had more tests than you can imagine and NO ANSWERS! It's very un-nerving and scary at the thought of what may happen next. I am very interested in hearing from others who may have similar stories. Thanks!

gmak 11-03-2012 10:34 AM

Re: Blind Spots In Peripheral Vision
 
During testing, did you have an mri or ct of your brain? I cant believe that those drs let you walk away losing vision!! Have you had an angiogram of your retina? Angiogram of brain? Horrible care. Find someone that has had a visual problem & go to who helped them. Find a research or teaching hospital, a medical school associated with the hospital. They usually have clinics. In a big medical center usually in a large city. Dont mess with suburb type drs. You need a renowned dr in a big city university hospital. So sorry this is happening! God bless you,gmak

HEARTSY LADY 11-03-2012 08:18 PM

Re: Blind Spots In Peripheral Vision
 
Thanks! I have had numerous MRIs & MRAs as well as many eye tests, and a CT Scan as well. I have never had any form of an angiogram done however. I have been to a major medical center in our state to see a specialist and still haven't gotten any answers. I tend to get pushed back and forth from dr to dr since no one has answers. I've lost all confidence in getting answers. I feel very hopeless in the matter and don't even know whether there's a dr out there who can give me any kind of answer.

ladybud 11-03-2012 08:41 PM

Re: Blind Spots In Peripheral Vision
 
I would seek consultation from a hematologist who can test your blood for clotting tendencies. Also an echocardiogram to check for heart valve problems that may be throwing off tiny clots that land in your retinal vessels. Anticardiolipin or antiphospholipid antibodies should be done as that is a common clotting predisposition that affects people along with migraines. It is a blood test. Tiny clots can cause bright spots and blind spots in visual fields. Have you had any of these things checked?

HEARTSY LADY 11-04-2012 01:45 PM

Re: Blind Spots In Peripheral Vision
 
Ladybug...I haven't been to a hematologist. The only tests I've had that you mentioned above is an echocardiogram years ago. I'm not sure what dr to consult on the next step I take with things. I feel like all roads lead to dead ends when it comes to trying to find answers!

ladybud 11-04-2012 02:37 PM

Re: Blind Spots In Peripheral Vision
 
I would see both hematologist and cardiologist for a repeat echo, as they can turn up different things, and tell them your problem with vision and that you want to be sure you are not forming clots in the blood or on the heart valves. They will get it and do the appropriate work-up. Be sure to mention the migraine history as well.

gmak 11-04-2012 05:14 PM

Re: Blind Spots In Peripheral Vision
 
[QUOTE=HEARTSY LADY;5083210]Thanks! I have had numerous MRIs & MRAs as well as many eye tests, and a CT Scan as well. I have never had any form of an angiogram done however. I have been to a major medical center in our state to see a specialist and still haven't gotten any answers. I tend to get pushed back and forth from dr to dr since no one has answers. I've lost all confidence in getting answers. I feel very hopeless in the matter and don't even know whether there's a dr out there who can give me any kind of answer.[/QUOTE]




Hi heartsy, :angel:
I wrote you a post last night & i lost it somehow! I wanted to tell you that i think ladybud's ideas are great. I thought that maybe with all the " bouncing around" that no particular optho or neuro is hearing the proverbial "squeaky wheel". So, choose the one dr that you think was the most persistent, see him/her then when referred out & all is normal or you get no answer GO back to the dr you saw first with an attitude of "Next?". And, do that everytime. Hemo, cardio are great & see them. But, dont lose hope & give up. There is something wrong & someone will find it. They think your ok or you would be back. Its not ok, so go back again & again & again. Keep us posted & if you need an ear, or anything let us know. God bless you, gmak

HEARTSY LADY 11-10-2012 05:14 PM

Re: Blind Spots In Peripheral Vision
 
Next step is retina specialist n then a new neuro-opthalmologist. Had another through eye exam where all tests were great other than the visual field which shows the original blind spot. The newer ones are farther out so they didn't show up. My opthalmologist says he's gonna do everything possible to atleast try to find answers so that's a plus even though he admits that we may never have answers. I have been to cardiologist as well as several neurologists etc and always get ping ponged around because no one has answers. I'm gonna do everything possible to try to find out what's going on as it is really scary having new spots come up and spread! Thanks to everyone for your advice and support!

gmak 11-11-2012 01:49 AM

Re: Blind Spots In Peripheral Vision
 
Dear heartsy, remember after you seeneuro-opthalmologist, if answer not found go back to the retina specialist! Dont give uo after one visit. Go back & back saying not better yet! But, i hope & pray that these drs will have the key! You sound hopeful & thats sooo great to hear. Keep updating. I care that you get this resolved and that you are seeing clearly. Thank you.

ladybud 11-11-2012 09:05 AM

Re: Blind Spots In Peripheral Vision
 
Just to reiterate, please get some some blood tests done for clotting tendencies, at least an antiphosholipid antibody (anticardiolipin antibody).

Bleue 11-11-2012 02:02 PM

Re: Blind Spots In Peripheral Vision
 
Heartsy lady, what is the state of your optic nerve? Has glaucoma been ruled out as a cause of your problem? If there is damage to the optic nerve that may be the cause. Sometimes poor circulation in the eye can cause the optic nerve to be sick and glaucoma to set in. The retina specialist should be able to tell you if the optic nerve looks healthy or not. Be sure to ask!

The fact that you get migraines can point to blood flow problems to the eye. There are also simple, non-invasive tests that measure the blood flow/oxygen level to the retina (angiogram not needed). One is done with a doppler sonogram; the other by a computer. But run-of-the-mill doctors won't have this equipment. You MUST go to the top drs as a previous poster mentioned, ones connected to a teaching & research university.

It's sad that you've been bounced back & forth from one to another doctor without any clarity as to cause. I hope you get some answers soon!!

Good luck!

gmak 11-11-2012 02:50 PM

Re: Blind Spots In Peripheral Vision
 
Hi heartsy, yes, positively listen to ladybud's advice! I, in no way, was trying to supercede her excellent, knowledable advice or caring reply. I really just wanted to encourage you to see it through to the end and if still no answers, go back & back again like i stated before. I hope & pray that this time will be different for you & it appears as though so far, that you are getting appts with highly specialized drs that know more than before & will keep trying. And, you will keep trying! Thinking of you, heartsy, during this time. We are praying & pulling for you! Thank you

HEARTSY LADY 11-20-2012 04:35 PM

Re: Blind Spots In Peripheral Vision
 
Just a quick note for all who have commented...I will be going to a retina specialist tomorrow. I will fill everyone in as to what tests they do then & what I find out. I have had tests on my retina in the past at Wake Forest Eye Center (Baptist Hospital here in NC) and they didn't find anything so we'll see how this goes...technology has advanced since then. I have had many tests on my eyes from ultrasounds and on and on and nothing's been found. I will check in to the blood test and other tests mentioned above. Thanks to everyone for their advice and support. Will update later in the week. Hope you all have a Wonderful, Blessed Thanksgiving!!!

gmak 11-20-2012 04:58 PM

Re: Blind Spots In Peripheral Vision
 
[QUOTE=HEARTSY LADY;5092257]Just a quick note for all who have commented...I will be going to a retina specialist tomorrow. I will fill everyone in as to what tests they do then & what I find out. I have had tests on my retina in the past at Wake Forest Eye Center (Baptist Hospital here in NC) and they didn't find anything so we'll see how this goes...technology has advanced since then. I have had many tests on my eyes from ultrasounds and on and on and nothing's been found. I will check in to the blood test and other tests mentioned above. Thanks to everyone for their advice and support. Will update later in the week. Hope you all have a Wonderful, Blessed Thanksgiving!!![/QUOTE]

Dear heartsy, Thank you for the blessings and the same to you, have a Wonderful, Blessed Thanksgiving as well. Still praying for you & tonight it will be for the answer, Someone knows & can see exactly what is wrong. Praying that he will be in charge of your care & testing tomorrow. Thank you for the update. Will be waiting to hear Thank you, heartsy!gmak :angel:

HEARTSY LADY 12-01-2012 08:21 PM

Re: Blind Spots In Peripheral Vision
 
So after going to the retina specialist & having various tests including an angiogram, everything having to do with mu eyes has been ruled out once again so still no answers & on an even more down side...more blind spots :-( I really don't know what's going on or where to go for answers. I've been ping ponged around so much & even the specialist I just went to suggested optho-neuro or my neurologist which have ping ponged me around already! So no answers and worsening of vision problems. I also have weird jumpy vision which is hard to explain and very unsettling! It's all so stressful :-(


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