Hey I am 21 years old and have been diagnosed with amppe. Everything started about 12 months ago when I noticed vision disturbances where I got stars and sparkles in my vision and also blurriness. I went to my optometrist who found scarring on the back of my eyes and then referred me to an eye specialist. A couple weeks after starting tests for my eyes I had a stroke.
After trying to do more tests into why I had a stroke as well as my vision problems they found no explanation, so I went on to live my life like normal and only went back for my necessary check ups.
I then began to notice further vision problems, where I had more sparkles and stars in my vision and it also went blurrier. I have been back to see a new eye specialist and neurologist that have now come to the conclusion that I have this amppe.
My first question would be, I would like to hear from people with similar stories, and my second question would be does anyone know how far this amppe can go or if i am likely to lose my vision completely?
Please let me know your stories and let me know your thoughts. I am really worried.