Hi,
I've previously tried Pilocarpine for trying to reduce photophobia symptoms. I have a permanently dilated pupil which has been a result of multiple surgeries for retinal detachment.
Pilocarpine made my pupil look much better cosmetically but did not help very much with my light sensitivity.
I did not have any side effects from taking this drop but I am aware that there are potential side effects, so as it did not help me very much and weighing everything up, myself and my surgeon decided not to continue with it.
My surgeon carried out a procedure called a pupilplasty (iris stitching) to make my pupil permanently 4mm diameter. This helped a little with light sensitivity but was not a complete cure.
I wish you luck, please talk through the advantages and disadvantages with your doctor and make sure you are comfortable before you use it.
Best wishes
Laura
Hi Laura! I remember you! b/c of our discussion a few months ago, I talked to some docs about the pupiloplasty, but it seems like docs don't want to do that, even though they will, if they are not already operating in the eye since it is such an invasive procedure. If I recall, they did that in addition to something you were already having done. So I'm leaning towards not going the invasive route and considering the drops for now. Curious if anyone had had long term experience with them. Laura, thanks for all your feedback always!
