Originally Posted by Candlecrazyinwv
I am 34
We are involved with hospice but they are trained to not give us details. She said they are not allowed because all patients are different. Sometimes when I go to Hospice to pick up new meds for mom I will ask some questions and sometimes they will tell me. They currently come once a week for a check up visit. She looked right at mom last week and said "You must really be a fighter because at this stage I would have already gave up" Mom sometimes says she tells god to please take her that she cannot take anymore pain. She never got a second opinion and doesnt see a DR. only hospice. She so tiny but her stomach is swelled like shes 9 mths preg. Hospice said they cant drain her stomach until its taking all of her breathe. Shes now getting really tired when she talks to much. Its just so hard for me and my kids (ages12&14) to see. Its not fair for sure!
Dear candle, No, sweetie I dont think its fair either! Its hard for her, you & your kids but im certain your mom has been so happy to be with your family. I remember when my kids were that age, too old for you to keep the suffering from them but not old enough to understand the emotions that this brings up in them.I truly am sorry. My grandfather died like this & when he died it was a comfort in a way but it wasnt my mom. My only uncle is terminal with pancreatic cancer right now, decided no treatment but he is not as far along as your mom. I pray that God is strength in weakness to you & I am here if you need an ear. Im so sorry. In my understanding hospice will keep the patient pain free as possible as long as the patient asks for the pain medicine.