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Old 05-19-2013, 07:24 PM   #1
Join Date: May 2013
Location: Brisbane, Qld. Australia
Posts: 2
kaydeeapy HB User
End stage GBM

My husband was diagnosed with GBM brain tumour in May 2012. He had surgery, radiation and chemo and then 6 months - 5 on 28 day cycle of chemo. 2 months after completing his last chemo he contracted fungal pneumonia with meningitis. He is now on 10 weeks flucytosine double strength followed by 10 months single strength and showing improvement.
Last MRI did not show any new tumours, but specialist is saying that it is now only a matter of time before they are back. Because of the funal infection he cannot have any more chemo and is too weak to have surgery.
Can anyone tell me how quickly he will become bedridden and what other effects will the return of the tumour have? How long will he have and how much pain will he be in? He is concerned with losing his mind and body functions. No one seems to be able to tell us what happens now.

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Old 05-19-2013, 09:29 PM   #2
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Join Date: Jun 2012
Location: Colorado
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Re: End stage GBM

Bella, I am so sorry you and husband are dealing with such serious issues and uncertainty of what to expect. As you know, predicting how long a person has is very difficult because there are so many factors involved. When the tumor(s) return, he will experience the same symptoms he had before-headache, possibly dizziness, irritability, possible confusion, nausea, vomiting, visual disturbance. He will know and you will too. With no more chemo, that would be a good time to get him established with Hospice, who specializes in helping people get through the last few months comfortably with a minimum of distressing procedures, etc. They are very helpful to family caregivers, and well versed in grieving process. When he has pain, he will be given pain meds generously to keep him comfortable. That will also make him sleepy. There are lots of good supportive people here who can help you, so post whenever you need and know you are not alone.

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