Re: End stage GBM
Bella, I am so sorry you and husband are dealing with such serious issues and uncertainty of what to expect. As you know, predicting how long a person has is very difficult because there are so many factors involved. When the tumor(s) return, he will experience the same symptoms he had before-headache, possibly dizziness, irritability, possible confusion, nausea, vomiting, visual disturbance. He will know and you will too. With no more chemo, that would be a good time to get him established with Hospice, who specializes in helping people get through the last few months comfortably with a minimum of distressing procedures, etc. They are very helpful to family caregivers, and well versed in grieving process. When he has pain, he will be given pain meds generously to keep him comfortable. That will also make him sleepy. There are lots of good supportive people here who can help you, so post whenever you need and know you are not alone.