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Originally Posted by Soleil11 I haven't been on in awhile and noticed a post you left and then deleted. I have had many things of life to deal with. I am feeling better, think my last post I had been feeling ill for awhile like a relapse to be sure. The terrible muscle aching is lessened now. I also had a respiratory virus w/cough and lost my voice for 2 weeks. But, I am feeling better except for some minor aches/pains and of course the MS symptoms to some degree.
I really feel the MSM has been helping and the juicing, it's when I slack off on raw juices and garlic, too. They help.
Wanted to comment on the pregabalin... I did connect with the hospital that was doing the trials and we decided I could not commit to their regimen. They appreciated my honesty. I had to go there ,3xtimes a week and it I live too far away. I r'cd all info on Pregabalin and researched it and I have decided I do not want to take this growth hormone for myself. Maybe that is what you posted me about?? Thank you as always for info and caring about all of us . Anything new you have happened across? Soleil....and how are you doing on the naltexone still.... |
I am happy to see you posting again. Pregabalin isn't a growth hormone?? HGH is. Pregabalin binds to calcium channels modulating the calcium influx, acts like an anxiolytic and anti-convulsant drug. To me, it seems to be another form of Neurontin and takes only three 150 mg tablets (450 mg) a day instead of up to 1,200 mg per day of Neurontin. Maybe my brain fog is too great to comprehend all this, but I just re-read the studies and this is what it seems to tell me.
Another drug for fibromyalgia is what is now known as NSRI's (a dual acting reuptake norepinephrine and seritonin inhibitor.) This one is called Malnacipran. I read that the studies show about 50% improvement in most symptoms of fibromyalgia. Again, this study claims improved sleep and less pain perception. It works on the central modulation and processing center of the brain for chronic pain.
Yes, it would be difficult for you to be involved in the clinic trials of Pregabalin. I didn't do well on Neurontin and now I wonder about Pregabalin. I can only try it when it becomes available.
I am sorry that you have the MS with the fibromyalgia. It seems many do.
I am happy to hear that you are doing a bit better at the moment!!
The reason I deleated the other post is because I had asked if you wanted to e-mail privately because we both had a common goal, writing. But it is OK if you don't want to! It was a silly idea.?
As for the Naltexone (LDN) I simply would not be sitting here typing at all without it. It does take care of a.m. pain and stiffness, still. I do believe it is helping my immune system. (I think I had a 12 hour flu one day, but felt good since that day. It could have been a lot worse and a lot longer without LDN, I think.)
I get a little confused with all the research I have been doing. It is sooo hard to comprehend it all. I have come to the conclusion: What can I believe?? Subjects ranges are: new drugs, eating habits, exercise (various types), using various therapies, TENS units, and herbs and hundreds of vitamin and mineral regimes, to meditation, and many other things I have already forgotten such as viral and yeast infections, improper pain perception by the brain, to lack of oxygen to certain parts of the brain, and the latest was muscle pain comes from pain by the outer skin layer, (the epidermis.) And also how hypoglycemia and thyroid problems cause fibro symptoms too. See what I mean?
I don't know how many of us here are trying to research our invisable disease.
I wonder how others feel about the research!! Are you feeling a bit overwhelmed when you look something up too??
It really is too bad that there isn't one simple cause and one simple solution for us. I am sending feather-like hugs to all. MistyMisty
Tanks for the reply. I have been trying to move too for the past two years to a place where there is a health spa with several pools that provides different temperatures. A nice hot one for soaking and a cooler one for warm water stretching exercises. I cannot find a home there that does not cost three times the amount of what I am living in now. I can't get the money by selling this to pay for what it would cost to move there. It would be economical to purchase a year round pass for the spa in which I could go at my own choosing and more than once a day if I wanted to. Yes $$$ dictates my lifestyle too. Yes, this cold weather is making me ache more than usual, as you said! 
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