My Fibro probably started out as Post Viral (or I just had both, who knows).
Anyway, here is a brief version of my story-
August 2001- I started getting migraines and I was just having a general feeling of being 'unwell'. The doc called it part of my anxiety disorder.
September 2001- migraines and feeling unwell got worse- doc says "post 9/11 stress. I tell the doc that hes a moron because my problem started in August, and as far as I know- I am not psychic
November 2001- saw a neurologist and an oral surgeon. Got diagnosed with chronic migraines and TMJ
Dec 2001- still had migraines, still felt 'unwell'... I got a flu shot (my first ever)
January 2002- I went to the ER because I felt like I had a severe case of the Flu... I was admitted to the hospital for 6 days. I had an infection (they never really figured out what it was, but it wasn't the Flu) but my red and white blood cell counts were VERY low (called pancytopenia, usually only seen in cancer patients who are getting Chemo)- I almost had to have a transfusion
After that I never felt 'right' again, they did call it Post Viral for a while.... and then after going to several doctors and countless specialists, I was finally diagnosed with Fibro in March of 2003.
I don't know if it was Fibro all along, or PVS that triggered Fibro, or what actually happened in my body. My theory is that I had Mono starting in August of 2001 and that getting the Flu shot while I had Mono triggered a very bad immune system reaction.
I also have an autoimmune disease called Undifferentiated Connective Tissue Disease. (autoimmune is when your immune system 'attacks' the healthy cells in your body).... I think that the autoimmune disease was also caused by the combo of Mono and a Flu shot.... it made my immune system go into overdrive and even though the infection is completely gone now, my immune system is still fighting and working hard!! Although now it is destroying my healthy cells too...
Anyway- Post Viral Syndrome is very real, and it can cause a lot of symptoms- including pain... are your doctors at least giving you meds to treat your symptoms? (pain meds for the pain at least??)
It is also possible for trauma to cause Fibro... and that trauma can be anything that stress the body- like an auto accident, serious illness, severe emotional distress... your virus caused a lot of stress to your body.
It may be that you are slowly developing Fibro, but unfortunately the doctors can not call it Fibro until you meet the diagnostic criteria (and part of that criteria is having 11 of the 18 tender spots). There are a few doctors that will diagnose it without you having 11 of the 18, but they are rare (they are the ones who truly understand Fibro).
My advice for you is to try all of the recommended therapies for Fibro and to continue to try to find a doctor that will treat your symptoms. Even if they don't have a good "name" for the reason that you are in pain they should still make an attempt to treat it...
You also have to follow all of their other recommendations for reducing your pain though... I had to go through physical therapy, and trying every type of over-the-counter pain medication (advil, tylenol) and then the doc gave me a prescription for Vioxx and then Bextra (both completely useless because they are anti-inflamatories and there is no inflamation in Fibro)... but I had to try all of their ideas and "jump through all of their hoops" before the doctor felt comfortable with giving me a prescription narcotic pain med and a muscle relaxer... it's a real pain in the butt, but it is the "prescribing criteria" that they HAVE to follow before giving strong pain meds.
Anyway- I really hope that you are able to eventually get a diagnosis that YOU feel comfortable with. I also doubted my Post Viral diagnosis... but it did take a while for my Fibro to "fully form" to the point where I had enough tender spots to fit the criteria. I'll put a list of recommended therapies for Fibro at the bottom of the post...
Sorry that this post is so long... but I type like I talk... too fast and way too much
Good Luck- I really hope that you get some symptom relief soon
Fibro treatments that don't include medications-
**getting good sleep- Quality of sleep is better than Quantity of sleep, it is better to sleep deeply than to sleep for a long time.
**mild exercise and stretching- in a warm pool would be great if you have access, yoga works well too, and walking is excellent (when it isn't freezing cold outside)
**stress reduction- Most people who have Fibro have found that an increase of stress means an increase in pain, so try to keep stress to a minimum (easier said than done). Depression and anxiety can also cause a flare in pain and other symptoms, so if you suffer from either (I have both) it will help your FM if you are getting treatment.
** use heat and massage as needed for specific areas of pain... I use something called a "Bed Buddy" it is a cloth tube that is filled with dry rice and you heat it up in the microwave. (2 minutes in the microwave and you have heat for nearly an hour). I love the Bed Buddy because I can have heat without being plugged into a wall. There are also several companies that now produce "pain patches" that either have heat and/or numbing qualities to them- I have tried a few brands (ben gay, icy hot) and they work pretty well.
** Lifestyle changes- This one was the hardest for me. I changed my pillow and I now use a leg pillow too (that was easy) but changing the way I do dishes and laundry and the way I vacuum... the way I stand and sit... (even positions in bed) ... all of that was hard for me. It took me a lot of practice and a lot of patience with myself to learn totally different ways of doing things... Adapting so that I can cause myself less pain was really worth it though.