I went back to my doc yesterday.. she's a wonderful woman. I just switched over to her a couple of months ago from a total quack who diagnosed me with Fibro the first day he ever met me without any of my medical records (I had just moved). She's very concerned, I mean, she's not one of these doctors who just give up or tell you it's all in your head when she can't figure it out.. she'll send me to another doc. She's still not satisfied with the Fibromyalgia diagnosis.
Well, yesterday, I was in SO much pain I could barely move (I don't have those days too often thank god). My joints were throbbing so badly, and my leg muscles were constantly cramping up that I was in tears practically all day. She said that my latest bloodwork was all ok, other than high albumin levels and low platelets.. ANA was negative (she suspected Lupus), RA factor (? not sure what that test is) was negative, and ESR was normal. I did have a low grade fever, 99.4 degrees.
I broke down bawling when she told me everything seemed normal.. the platelet counts, I already knew about. She said the Albumin level could have been high because I was fasting before the test (dehydration). I was really praying that SOMETHING would show up pointing to what the heck is wrong with me.
She's sending me to a Rheumatoligist now.. I have to call today. She said that if he can't figure it out, she's sending me to Cleveland Ohio (I'm in NY) because there's some really good doctors there - she said maybe I DO have something that just isn't showing up on tests yet.. such as Lupus. Apparently it can take years for the ANA to be positive? I don't know. I'm also going to be tested for Lyme disease since I was bitten by a tick about 3 1/2 years ago that left a huge rash on my leg.. my old doc back then didn't test me for it, and she's doubtful that it would show on tests NOW, but she still wants to make sure.
She's never offered me strong pain meds before until I broke down yesterday.. I left there with a prescription for 60 hydrocodone 500mg.. I'll never take that much. I have a low tolerance to things like that. It knocks me out so it's not something that I can really function with so I'll definately save them for days like these past 2 I've had.
I'm just so frustrated. If nothing's showing up yet, how on earth is a Rheumatologist going to figure it out either??
I just want to give up sometimes. It's so hard to be "sick" and have NO clue what the heck is wrong with you. I haven't been able to work in over 3 years because I never know from one day to the next how much pain I'm going to be in. I want my life back