Hello Everyone; I would like to introduce myself because now that I have found this board, I am going to be a full-time poster
I have read many of your perspectives as to what you believe may have caused your Fibro. I don't know very much about Lyme disease, only that I worked with a girl who had it and it was caused by her being bitten by a tick. That said, I have never been bitten by a tick, but again, I don't know if this is the only way to develop Lyme. I have always been high-strung, even since elementary school and was academically under pressure by my own doings by first grade. I started suffering panic attacks at the age of 6, depression at the age of 13 and severe chronic fatigue by the time I turned 15. The fibro actually kicked in during the time I was going through a divorce. I began having excruciating, deep pains in my bones. I went to the ER once and was asked if I had ever been diagnosed with Osteoarthritis. I thought maybe I had carpal tunnel because my work background was in the legal field with typing taking up my entire day. My husband and I reconciled and have been together for ten years now, but the SEVERE headaches began, even though that particular stress was gone. I thought maybe it was my sinuses and had my family dr. check me and then went to a specialist. Everything came back normal. I think my Fibro was caused by just being high-strung in general, and if I am wrong, I don't think the cause will ever be found. I was diagnosed with Cold Urticaria at the age of 7, but I do not know if there is a link there. Being allergic to cold and breaking out in hives on top of the cold upsetting my Fibro is really irritating. I finally have an appt. with a Rheumatologist Friday, so hopefully I can get some insight. I never linked the pains, chronic fatigue, depression and headaches until each symptom became worse, which led me to do more research. Then I learned about Fibro and I KNOW that is what is causing my symptoms. I can no longer work, even part-time, due to the pain because it is so unpredictable. One day it could start in one leg and move to the left, then my head, the next day I may be okay until the afternoon. Employers do not want to deal with an employee who can't be relied on to show up for work on a daily basis, so I have since filed for disability. I feel guilty at times because I feel like I am 70 years old, even though I am not even 30 yet! They ruled that I was partially disabled. However, due to my age, am not entitled to benefits. So they don't help in the guilt dept. I am in the process of appealing but that could take another year, hopefully less depending on my appt with the Rheumatologist on Friday. I am sure there are some of you who have dealt with Fibro a lot longer than me, and I would like to know if it seems to progress as you get older? I don't know how much more pain I can bear. The only things that seem to curb the pain temporarily are taking Goody Powders on a daily basis, having my husband massage my legs, back, head and hands constantly and anything warm. My dr. jumps on me about the Goody Powders though because they cause my stomach to bleed. I admire those of you who have tried the injections; I am a big baby and do not want to risk that pain for it to only last a few days. I seem to veer more towards wanting to try massage therapy and possibly water aerobics, given the water is not cold. Cold to me is anything under 80 degrees. Anyway, if any of you have more insight on Lyme disease and again, is Fibro a progressive type of illness, I would appreciate your opinions.