Originally Posted by taurus3
Thank you so much for your wolrds of encouragement. Especially about the SSDI thing. That has been the biggest heartache. I was dxd with lupus at 17 and fibro at 24. I am 35 now and have a 20 year work history prior to age 33. I fought very hard to work all of those years. It was so angering to find that all of the taxes I had paid during the 20 years I paid them (started working young) were treated like some handout I was asking for. Prior to all of this I was working full time, singing in a band and married.
I have been turned down once with them stating I was "deconditioned". Yeah they would be deconditioned too if they couldn't move for six months. Since then I've lost weight and gained a little mobility but I'm still not able to work. I do have a lawyer for my appeal hearing. Supposedly that is coming up soon but I am fully prepared to be denied again. Don't want to get my hopes up and be disappointed.
Filling out the functional capacity report with my doctor (who luckily supports my claims) was very depressing. I am a stay-at-home Mom with a two year old so I convince myself a lot that I'm OK and my life is somehow normal. The truth is I have a very smart and patient child who is content to play with his toys and watch cartoons while Momma lays on the couch or the bed. I feed him things that I don't have to prepare mostly. We only leave the house together without my husband about once or twice a week because it's all I can handle. So that report forced me to deal with the reality of what I've lost over the last few years.
Anyway, thanks again and thanks for listening.
A Restful Day to you...
I am so sorry for all you are going thru!!! And I can sooooo well empathize with how difficult it is to manage plus take care od a toddler!! I didn't have all my health problems when my kids were little, but I other kinds (surgeries and some major illnesses) and an ex hub who was an uninvolved alcoholic, so much I had to go alone. I remember some awful times just barely able to cope with taking care of them so I know how very difficult this is for you.
I will pray that you get the disability you so deserve!! I sooo know how you feel about your life now vs "then" - when I had it all in writing in front of me, I remember thinking..."my God, I really am disabled." There's something about seeing it that way!! I had written out EVERYTHING for the judge to see before the hearing, and all the reasons I disagreed with their findings. I had a copy of my entire file, and there were soooo many things in it that either weren't true, were misstated and/or twisted to make me seem like a liar - it just made me so angry!! And anger spurred me to action. I truly do believe that you must BELIEVE. Attitude is so important. I hope your lawyer is WELL prepared and all will go perfectly!!!!!! My hopes and prayers are with you!